Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Dx In Howell, Mi


Jenn928

Recommended Posts

Jenn928 Rookie

I live in Howell, MI and i just got an out of the blue dx of celiac disease after many different tests for stomach issues and other, I was dx with a biopsy which I understand is the best way. I am really struggling with the emotional part of eating this way and am overwhelmed with knowing what I can and can't eat.

Was just wondering if there was anyone in my area that would be interested in talking more on the subject, could offer tips and recommendations on products etc in the area and gluten-free restaurants. Also does anyone know of a support group in this area.

Thank you for any help you can offer.

Jennifer

Howell, MI


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Renae Newbie
I live in Howell, MI and i just got an out of the blue dx of celiac disease after many different tests for stomach issues and other, I was dx with a biopsy which I understand is the best way. I am really struggling with the emotional part of eating this way and am overwhelmed with knowing what I can and can't eat.

Was just wondering if there was anyone in my area that would be interested in talking more on the subject, could offer tips and recommendations on products etc in the area and gluten-free restaurants. Also does anyone know of a support group in this area.

Thank you for any help you can offer.

Jennifer

Howell, MI

Hi. I am in Lansing and Lansing does have a Celiac support group that meets tonight Feb 26 at 7 pm. It meets at a church in Lansing at the corner of Haag and Miller Rd. (I do not have Celiac but my 9 yr old daughter does.) Lots of good people with lots of help will be there.

Renae

  • 2 weeks later...
Tall-Laydee Newbie

I live in Ferndale and was also recently diagnosed (Feb 11). My sister lives in Howell and she mentioned that the V.G.'s in Howell have good gluten-free selections and there's a place called vitamin planet on Latson & Grand River that has several gluten-free foods. She mentioned brown-rice tortillas that I can't wait to try! The owner/manager there can help, my sister talked to him and said he was great.

Also, I don't know if you have a Whole Foods or a Trader Joe's out by you but both of those stores have a wide variety of options...just be aware Whole Foods should really be called "Whole Paycheck"!

Good luck with everything! I'm happy to talk if you want, I've learned A LOT in the past month. :)

  • 2 weeks later...
hapy4dolphins Contributor

HI, I'm in Lansing and am a part of the local Lansing Celiac Group. That might be too far for you?!?!

There is another celiac group too in Farmington Hills, is that closer?

can always e mail me too.

Nicole

hapy4dolphins Contributor

Here is the link to the Farmington Hills Celiac group Open Original Shared Link

Nicole

hapy4dolphins Contributor

Here you go, I found this on the CSA website.

Dr. Luba Nowek, Howell

517-552-9336, drluba@yahoo.com

  • 3 weeks later...
Jenn928 Rookie

Thanks all, glad to see there are some people in my area. Do most of you belong to a support group? I am wondering if that is the one thing that will help me. Lately I have been struggling, I intentionally ate gluten the other day, feeling depressed because I recently lost my job. Now I feel awful and feel like I took a big step backward. Since dec'07 I have gone through the denial, grieving and acceptance or at least I thought.

So I am wondering if joining a support group would be the missing link to help me stay the path if you know what I mean.

I heard there was a food fair in farmington hills, and thought that would be a good 1st event to attend. As anyone gone to that?

Thanks for all your help, I had forgotten I posted in here!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

I usually go. I think they charged less at the door last year.

Celiac specialties has the best donuts! This could be just what you need right now. Gluten free food that tastes good and a huge crowd of other gluten free people.

Wow it's this Saturday, April 12th 10:00 to 2:00.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,022
    • Most Online (within 30 mins)
      7,748

    Pesto
    Newest Member
    Pesto
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.