Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh On Feet...?


bassgirls

Recommended Posts

bassgirls Newbie

My 8yo DD has this weird looking rash on her feet and resembles the dh pics I can find online. It starts red with fliud filled blisters that end up rupturing and so forth. They sometimes end up bleeding after its been ruptured for a while. It itches and hurts. No amount of antifungal cream, vaseline prescribed excema cream has helped. I have pics if thats more helpful. We dont know wether the girls have celiac but I think they do and we have so many unresolved GI issues. Your thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Speak to your child's pediatrician and tell them your concerns.

Request to be tested for Celiac. The blood tests (all of them) include:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

Request that the possible DH be biopsied.

Open Original Shared Link

"What is dermatitis herpetiformis (DH)?

DH is an intensely itchy vesicular rash occurring anywhere on the body, especially on the extensor surfaces (knees and elbows) and the scalp. Patients tend to experience the rash in the same area, for example on their hands, in their scalp or on the buttocks. Virtually 100% of patients with DH have celiac disease, though the intestinal lesion is usually milder than most patients who have predominantly gastrointestinal complaints. The lesions of DH are very sensitive to even the ingestion of small amounts of gluten. Other dietary factors, for example iodine, may exacerbate the rash or prevent its healing. The rash is however dependant on the ingestion of gluten. While Dapsone will control the skin lesions of DH, a gluten-free diet allows Dapsone to be discontinued, healing of the intestine and reduction in the risk of the development of lymphoma that is increased in patients with DH."

Open Original Shared Link

"Q: What is dermatitis herpetiformis?

DH is the skin manifestation of celiac disease. It is characterized by an extremely itchy, watery blister or rash that is found on the limbs, trunk, face and scalp. The blisters are often mirrored on both sides of the body or face and reoccur in the same areas. The eruptions are often mistaken for and treated as other skin conditions including psoriasis, infected mosquito bites, contact dermatitis, allergies or "non-specific dermatitis."

DH is a chronic, permanent condition and, if not treated with a gluten-free diet, may cause gastrointestinal symptoms at a later date whether or not the intestines shows damage initially. Less than 10% of patients with DH have GI symptoms, yet if you have DH, you always have celiac disease.

DH is diagnosed by a small skin biopsy at the edge of an eruption. This must be done by a knowledgeable dermatologist as a sampling of tissue from the wrong section of the eruption can be confused with other skin conditions.

The current treatment of DH is two-fold:

1- A strict adherence to a gluten-free diet.

2- The use of medications to relieve the itching and burning of the blisters.

Dapsone is the usual drug of choice. Baseline blood tests should be performed prior to treatment with Dapsone and blood work should be done at regular intervals thereafter. Medications should be taken in the smallest effective doses for as short a time as possible and monitored by a physician.All of the ingested drugs have numerous potential side effects, some extremely severe.

Topical creams containing cortisone and steroids are also prescribed to alleviate symptoms. None of these drugs eliminate the cause of the eruptions or the IgA deposits within the skin, they simply suppress the symptoms.

Q: What triggers DH?

The simple answer is ingested gluten. But iodine (potassium iodide, iodized salt, kelp), some anti-inflammatories and stress can exacerbate the disease. An area of controversy is whether or not gluten can be absorbed through the skin. Most medical experts say no, only dietary gluten is of concern.

DH can be "exquistely sensitive" to gluten. Since the skin may not be rid of the IgA deposits for 2+ years after starting a gluten-free diet, flare-ups may continue to occur. The skin response is much slower compared to the healing of the intestinal mucosa. In particular, outbreaks of facial and scalp lesions while on otherwise adequate treatment is not uncommon."

The biopsy is supposed to come from the skin in the area directly around the sores, not the sore itself.

lovegrov Collaborator

Your description sounds a lot like DH, but the feet would be an unusual place for it. Need to see a doctor who knows something about it.

richard

lattelady Newbie

Yes it does sound a lot like DH, I also have it but not on the feet. The use of clobetasol is the only thing that works for me, BUT it is a steroid cream. I also get small patches on my face and use a different cream for that. Of course I am on a strick gluten free diet, but that doesn't seem to matter sometimes, when the DH wants to flare up it just does. They should be referred to a dermatologist, that is the only way I found out what it was, the doctors didn't really know...I would get the kids tested for sure, it might be easier to get them on gluten free diets young, than waiting 32 years like I did before finding out why I was sick :(

flourgirl Apprentice

I had a break out of DH before I was diagnosed with Celiac. I was told...If you have DH, then you ARE Celiac. My tests all proved that I am. I had blisters absolutely everywhere! I thought it was poison Ivy, but it didn't really act like poison Ivy. Yes, I had it on the bottoms of my feet, the tops of my feet, between my toes, my legs, arms, belly chest, throat, face, and places I don't care to mention. I mean everywhere. I work in a mill 12 hours a day which made it miserable. All of that standing caused my feet blisters to bleed under the skin, and finally to scab over. Messy! It wasn't until I started going Gluten Free that it healed......but if I eat salty things....or use ibuprofen...I get little clusters of blisters. I used bath soaks, Calamine lotion to ease the itching. It helped a little, but not a whole lot. (I was trying to "dry up" the poison ivy with alcohol, too). The hardest part was trying not to scratch my skin off. Hope your kids get better soon....and I know that it's Celiac.

KimmyJ Rookie

It's absolutely possible. I've had break-outs on the tops of my feet many times before going gluten-free.

ItchyMeredith Contributor

yup- the tops of my feet is a place I commonly get blisters.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



moonlitemama Rookie

Don't know if this is what you might be dealing with, but I've (seemingly - self-diagnosed) dealt with chilbains the last few years. Open Original Shared Link

Haven't really found anything that helps - they come and go during the cold months.

Good luck figuring it out!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to AnneBSunflower's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      mystery gluten?

    2. - knitty kitty replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      13

      Struggling to get into a good pattern

    3. - knitty kitty replied to kopiq's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      almost a year in recovery - so many questions about to give up

    4. - Rejoicephd replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      13

      Struggling to get into a good pattern

    5. - trents replied to junell's topic in Related Issues & Disorders
      1

      Help!


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,650
    • Most Online (within 30 mins)
      7,748

    k3ndra
    Newest Member
    k3ndra
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @AnneBSunflower, I have Hashimoto's, too.  I've learned some things that have helped with mine. This study says it's common to find anti gluten antibodies in Hashimoto's.  So antibodies aren't necessarily due to gluten ingestion.   https://pubmed.ncbi.nlm.nih.gov/31149170/   Take a B Complex supplement and Benfotiamine, a form of thiamine shown to promote intestinal healing, and Vitamin C.  This study found a higher rate of thiamine and Vitamin C deficiencies in people with Hashimoto's.   https://pubmed.ncbi.nlm.nih.gov/37278003/   Try cutting back on the amount of iodine in your diet.  Iodine, even in small amounts, can stimulate the thyroid which in turn stimulates the immune system which increases antibody production.   Dairy and eggs are high in iodine.  Switch from iodized salt to Pink Himalayan salt.   https://pubmed.ncbi.nlm.nih.gov/9703374/   Supplement with Selenium, a mineral that helps the thyroid function and calms the immune response in the thyroid.   https://pubmed.ncbi.nlm.nih.gov/37033262/ Hope this helps!  Keep us posted on your progress!
    • knitty kitty
      @Rejoicephd, Would you consider adding a B Complex to your supplements?   I was taking a multivitamin and still became deficient.  There's a question as to how well multivitamins dissolve in the digestive system.   I found taking a B Complex and Benfotiamine, a form of thiamine shown to promote intestinal healing, very beneficial in my recovery.   Some B Complex supplements use Thiamine Mononitrate which is not well absorbed nor utilized by the body.  Thiamine Hydrochloride is better.  Benfotiamine is easily absorbed.  If not needed, the B vitamins are easily excreted. High B12 out of the blue could be masking a lack of other vitamins that work with B12, like Folate B 9, Pyridoxine B 6, and Thiamine B 1. Meats and liver are great sources of B vitamins.  B vitamins are needed to make digestive enzymes that digest protein, fats, and carbohydrates.   Do keep in mind that most gluten free processed facsimile foods are not required to be enriched with vitamins and minerals lost in processing like their gluten containing counterparts.  The more carbohydrates you eat, the more Thiamine is needed to process them into energy instead of storing them as fat.   Hope this helps!  Keep us posted on your progress.
    • knitty kitty
      @kopiq,  Your case is not hopeless.  Doctors are not required to learn much about nutrition.  Celiac Disease causes damage to the lining of the small intestines resulting in malabsorption of essential vitamins and minerals.  The eight essential B vitamins  and the four fat soluble vitamins (A, D, E, and K) are chemical compounds that our bodies cannot make, so we must get them from what we eat.  If we're not absorbing sufficient amounts from our food, then supplementing with vitamins and minerals help boost our ability to absorb them.  The B vitamins are safe and water soluble, easily excreted in urine if not needed or not absorbed.  Essential minerals are important, too.  Magnesium and Thiamine make life sustaining enzymes together.   Blood tests for the B vitamins are notoriously inaccurate.  By the time a deficiency shows up in the blood, you've been deficient for a few years. The best way to tell is to try taking a  B Complex and looking for health improvements. Taking a B Complex and Benfotiamine, a form of thiamine shown to promote intestinal healing, helped me immensely.  I also took Vitamin D and Magnesium Glycinate and others. Did your doctor offer any treatment to correct your critically low Vitamin D level?   Mine was lower than yours.  My doctor prescribed the less bioavailable form D2.  Our bodies utilize the D3 form better.  I bought over the counter Vitamin D3 supplements (1000 IU) and took several with each meal.  Taking high doses of Vitamin D to correct a deficiency is safe and very effective at improving health.  I started feeling better quickly.  Vitamin D helps regulate the immune system and lower inflammation, as well as makes hormones. Laying out in the sun cannot correct a Vitamin D deficiency unless you're below the 33rd parallel (on a tropical island with abundant exposed skin for several months).  Ultraviolet rays from the sun destroy the thiamine in the body.  That feeling of lethargy is because the sun exposure broke down thiamine into unusable pieces.  Thiamine and the B vitamins make ATP, the energy currency the body requires to function, to make digestive enzymes, to regulate body temperature, to think, to heal itself.  We need more Thiamine when we're outdoors in hot weather, working or exercising.  Thiamine deficiency doesn't cause heat stroke, but thiamine deficiency can make heat stroke symptoms worse.  We need more Thiamine when we're physically ill or injured or undergoing medical procedures.  We need more Thiamine when we're emotionally stressed or traumatized.  Anxiety and depression are very early symptoms of thiamine and other nutritional deficiencies.   Rashes can be caused by deficiencies in Niacin B3, Vitamin A, or Vitamin C.  Some rashes can become worse with exposure to sunlight.   The B vitamins are needed to make digestive enzymes that will help you digest fat and proteins better.  Meats are an excellent source of B vitamins.  Sweet potato and plantain are high in carbohydrates.  The more carbohydrates one eats, there is a greater metabolic need for thiamine to turn them into energy, ATP. Can your doctor refer you to a dietician or nutritionist?
    • Rejoicephd
      Thank you @cristiana.  Its really helpful to hear your experience, thanks for sharing.  8 years is a long time!  And its also good to know that others have experienced worsening before it gets better.  I've just started doing the food diary recently, and I'll keep that going. It's at least helping me try to get a handle on this, and also helps increase my overall awareness of what I'm putting in my body. I will also message my GI doc in the meantime too.  Thanks, it's really helpful to talk through this.  
    • trents
      Yes, the development of additional food intolerances is a common spinoff of celiac disease. To ensure valid testing after beginning a "gluten challenge" you would need to be consuming at least 10g of gluten daily (about the amount in 4-6 slices of wheat bread) for at least two weeks. Many cannot follow through with this regimen, however, as their intolerance reactions are just too strong and present too much health risk.
×
×
  • Create New...