Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh On Feet...?


bassgirls

Recommended Posts

bassgirls Newbie

My 8yo DD has this weird looking rash on her feet and resembles the dh pics I can find online. It starts red with fliud filled blisters that end up rupturing and so forth. They sometimes end up bleeding after its been ruptured for a while. It itches and hurts. No amount of antifungal cream, vaseline prescribed excema cream has helped. I have pics if thats more helpful. We dont know wether the girls have celiac but I think they do and we have so many unresolved GI issues. Your thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Speak to your child's pediatrician and tell them your concerns.

Request to be tested for Celiac. The blood tests (all of them) include:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

Request that the possible DH be biopsied.

Open Original Shared Link

"What is dermatitis herpetiformis (DH)?

DH is an intensely itchy vesicular rash occurring anywhere on the body, especially on the extensor surfaces (knees and elbows) and the scalp. Patients tend to experience the rash in the same area, for example on their hands, in their scalp or on the buttocks. Virtually 100% of patients with DH have celiac disease, though the intestinal lesion is usually milder than most patients who have predominantly gastrointestinal complaints. The lesions of DH are very sensitive to even the ingestion of small amounts of gluten. Other dietary factors, for example iodine, may exacerbate the rash or prevent its healing. The rash is however dependant on the ingestion of gluten. While Dapsone will control the skin lesions of DH, a gluten-free diet allows Dapsone to be discontinued, healing of the intestine and reduction in the risk of the development of lymphoma that is increased in patients with DH."

Open Original Shared Link

"Q: What is dermatitis herpetiformis?

DH is the skin manifestation of celiac disease. It is characterized by an extremely itchy, watery blister or rash that is found on the limbs, trunk, face and scalp. The blisters are often mirrored on both sides of the body or face and reoccur in the same areas. The eruptions are often mistaken for and treated as other skin conditions including psoriasis, infected mosquito bites, contact dermatitis, allergies or "non-specific dermatitis."

DH is a chronic, permanent condition and, if not treated with a gluten-free diet, may cause gastrointestinal symptoms at a later date whether or not the intestines shows damage initially. Less than 10% of patients with DH have GI symptoms, yet if you have DH, you always have celiac disease.

DH is diagnosed by a small skin biopsy at the edge of an eruption. This must be done by a knowledgeable dermatologist as a sampling of tissue from the wrong section of the eruption can be confused with other skin conditions.

The current treatment of DH is two-fold:

1- A strict adherence to a gluten-free diet.

2- The use of medications to relieve the itching and burning of the blisters.

Dapsone is the usual drug of choice. Baseline blood tests should be performed prior to treatment with Dapsone and blood work should be done at regular intervals thereafter. Medications should be taken in the smallest effective doses for as short a time as possible and monitored by a physician.All of the ingested drugs have numerous potential side effects, some extremely severe.

Topical creams containing cortisone and steroids are also prescribed to alleviate symptoms. None of these drugs eliminate the cause of the eruptions or the IgA deposits within the skin, they simply suppress the symptoms.

Q: What triggers DH?

The simple answer is ingested gluten. But iodine (potassium iodide, iodized salt, kelp), some anti-inflammatories and stress can exacerbate the disease. An area of controversy is whether or not gluten can be absorbed through the skin. Most medical experts say no, only dietary gluten is of concern.

DH can be "exquistely sensitive" to gluten. Since the skin may not be rid of the IgA deposits for 2+ years after starting a gluten-free diet, flare-ups may continue to occur. The skin response is much slower compared to the healing of the intestinal mucosa. In particular, outbreaks of facial and scalp lesions while on otherwise adequate treatment is not uncommon."

The biopsy is supposed to come from the skin in the area directly around the sores, not the sore itself.

lovegrov Collaborator

Your description sounds a lot like DH, but the feet would be an unusual place for it. Need to see a doctor who knows something about it.

richard

lattelady Newbie

Yes it does sound a lot like DH, I also have it but not on the feet. The use of clobetasol is the only thing that works for me, BUT it is a steroid cream. I also get small patches on my face and use a different cream for that. Of course I am on a strick gluten free diet, but that doesn't seem to matter sometimes, when the DH wants to flare up it just does. They should be referred to a dermatologist, that is the only way I found out what it was, the doctors didn't really know...I would get the kids tested for sure, it might be easier to get them on gluten free diets young, than waiting 32 years like I did before finding out why I was sick :(

flourgirl Apprentice

I had a break out of DH before I was diagnosed with Celiac. I was told...If you have DH, then you ARE Celiac. My tests all proved that I am. I had blisters absolutely everywhere! I thought it was poison Ivy, but it didn't really act like poison Ivy. Yes, I had it on the bottoms of my feet, the tops of my feet, between my toes, my legs, arms, belly chest, throat, face, and places I don't care to mention. I mean everywhere. I work in a mill 12 hours a day which made it miserable. All of that standing caused my feet blisters to bleed under the skin, and finally to scab over. Messy! It wasn't until I started going Gluten Free that it healed......but if I eat salty things....or use ibuprofen...I get little clusters of blisters. I used bath soaks, Calamine lotion to ease the itching. It helped a little, but not a whole lot. (I was trying to "dry up" the poison ivy with alcohol, too). The hardest part was trying not to scratch my skin off. Hope your kids get better soon....and I know that it's Celiac.

KimmyJ Rookie

It's absolutely possible. I've had break-outs on the tops of my feet many times before going gluten-free.

ItchyMeredith Contributor

yup- the tops of my feet is a place I commonly get blisters.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



moonlitemama Rookie

Don't know if this is what you might be dealing with, but I've (seemingly - self-diagnosed) dealt with chilbains the last few years. Open Original Shared Link

Haven't really found anything that helps - they come and go during the cold months.

Good luck figuring it out!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    2. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    3. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    4. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,226
    • Most Online (within 30 mins)
      7,748

    Liz mirias
    Newest Member
    Liz mirias
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.