Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Different Glutens, Different Responses?


cdog7

Recommended Posts

cdog7 Contributor

Anyone else notice that depending on what type of gluten-containing food you have, your reaction to it can be totally different? Is that, uh, right? I'm noticing this while I'm still in the pre-diagnosis phase and trying to keep some gluten in my diet for the testing..

Example


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

I had noticed a difference between wheat and rye, but not sure about different wheat foods. Maybe it has something to do with other ingredients? Like cereal would likely have sugar, and if the intestines are in distress from gluten, maybe the sugar goes right through into the bloodstream or something. Just a stab in the dark...

Celiconfused Newbie

Hey Y'all, I am new to the forum and this disease. I was recently diagnosed by my family practice doctor in December 07. But then when I saw a gastro doctor this month, he wasn't so convinced. He said that my doctor hadn't run enough tests. He did an anitbody panel which of course came up negative because I had been gluten-free for a couple of months.

The doctors office called me and told me to discontinue the gluten-free diet and schedule me for a biopsy. I was off my gluten-free diet for one week and my symptoms all came back. So I cancelled the biopsy. I just don't know if I am doing the right thing. Did any of you have the biopsy done?

:(

PeggyV Apprentice
Hey Y'all, I am new to the forum and this disease. I was recently diagnosed by my family practice doctor in December 07. But then when I saw a gastro doctor this month, he wasn't so convinced. He said that my doctor hadn't run enough tests. He did an anitbody panel which of course came up negative because I had been gluten-free for a couple of months.

The doctors office called me and told me to discontinue the gluten-free diet and schedule me for a biopsy. I was off my gluten-free diet for one week and my symptoms all came back. So I cancelled the biopsy. I just don't know if I am doing the right thing. Did any of you have the biopsy done?

:(

Did you family doctor run tests? I went back and forth about getting a biopsy, but i had been off gluten and get sick eating gluten so decided against it. My daughter however has gone back on gluten again and plans to test. Her reactions were never intestinal problems. If I was younger I think I would, but now with the prospect of paying my own insurance and retirement coming up in a few years I decided I really dont want the diagnosis.

healthygirl Contributor

Hi CDog7, I have noticed different reactions based on the type of food and am wondering if it is to do with the amount of gluten? I am assuming some foods will have more than others, or different types of wheat have a higher amount of gluten in it...when I eat pasta I don't have stomach pains, but I typically have a horrible sleep and am all lethargic the next day. If I eat something like a bowl of shredded wheat, I get really burpy, stomach pains, etc. Perhaps durum wheat used to make pastas doesn't have the same gluten content as the wheats used in cereals and breads???

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,823
    • Most Online (within 30 mins)
      7,748

    Kayaker
    Newest Member
    Kayaker
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.