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Different Glutens, Different Responses?


cdog7

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cdog7 Contributor

Anyone else notice that depending on what type of gluten-containing food you have, your reaction to it can be totally different? Is that, uh, right? I'm noticing this while I'm still in the pre-diagnosis phase and trying to keep some gluten in my diet for the testing..

Example


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RiceGuy Collaborator

I had noticed a difference between wheat and rye, but not sure about different wheat foods. Maybe it has something to do with other ingredients? Like cereal would likely have sugar, and if the intestines are in distress from gluten, maybe the sugar goes right through into the bloodstream or something. Just a stab in the dark...

Celiconfused Newbie

Hey Y'all, I am new to the forum and this disease. I was recently diagnosed by my family practice doctor in December 07. But then when I saw a gastro doctor this month, he wasn't so convinced. He said that my doctor hadn't run enough tests. He did an anitbody panel which of course came up negative because I had been gluten-free for a couple of months.

The doctors office called me and told me to discontinue the gluten-free diet and schedule me for a biopsy. I was off my gluten-free diet for one week and my symptoms all came back. So I cancelled the biopsy. I just don't know if I am doing the right thing. Did any of you have the biopsy done?

:(

PeggyV Apprentice
Hey Y'all, I am new to the forum and this disease. I was recently diagnosed by my family practice doctor in December 07. But then when I saw a gastro doctor this month, he wasn't so convinced. He said that my doctor hadn't run enough tests. He did an anitbody panel which of course came up negative because I had been gluten-free for a couple of months.

The doctors office called me and told me to discontinue the gluten-free diet and schedule me for a biopsy. I was off my gluten-free diet for one week and my symptoms all came back. So I cancelled the biopsy. I just don't know if I am doing the right thing. Did any of you have the biopsy done?

:(

Did you family doctor run tests? I went back and forth about getting a biopsy, but i had been off gluten and get sick eating gluten so decided against it. My daughter however has gone back on gluten again and plans to test. Her reactions were never intestinal problems. If I was younger I think I would, but now with the prospect of paying my own insurance and retirement coming up in a few years I decided I really dont want the diagnosis.

healthygirl Contributor

Hi CDog7, I have noticed different reactions based on the type of food and am wondering if it is to do with the amount of gluten? I am assuming some foods will have more than others, or different types of wheat have a higher amount of gluten in it...when I eat pasta I don't have stomach pains, but I typically have a horrible sleep and am all lethargic the next day. If I eat something like a bowl of shredded wheat, I get really burpy, stomach pains, etc. Perhaps durum wheat used to make pastas doesn't have the same gluten content as the wheats used in cereals and breads???

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      It might be wise to start him on small amounts and work up to 10g. Monitor how he reacts. Some people simply cannot complete the gluten challenge because it makes them too ill. By the way, you can buy powdered gluten in health food stores, at least here in the states you can. With a food scale, it would be easy to measure the amount being consumed in a day. I'm not sure what the intensity of reaction to gluten tells you about what's actually going on with regard to celiac disease. I mean there are some celiacs like me who don't seem to react to minor exposure amounts but who get violently ill with larger exposures. Then there are celiacs who get some kind of reaction to even the tiniest amount of exposure but don't necessarily get violently ill. And how the reaction manifests itself is very different for different people. Some, like me, experience emesis and diarrhea. Others just get brain fog. Others get joint pain. It's all over the map.
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