Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do We Go Gluten Free?

4blessings

Recommended Posts

4blessings Rookie
4blessings
Posted

Hi

I am wondering how long you go on a gluten free diet to determine if gluten is actually a problem? Also what type of grains need to be cut out? Doing this for our 14mo daughter she has had little gluten to begin with...how long does it take to see results?

Thanks for any help you can give.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lizz7711 Apprentice
Lizz7711
Posted
Hi

I am wondering how long you go on a gluten free diet to determine if gluten is actually a problem? Also what type of grains need to be cut out? Doing this for our 14mo daughter she has had little gluten to begin with...how long does it take to see results?

Thanks for any help you can give.

I don't have experience with little ones with gluten sensitivity, but from what I understand you should notice improvement fairly quickly with younger kids, like within a couple weeks up to a month. It's usually recommended to go off dairy as well. The gluten proteins and dairy protein casein, as well as the soy protein, are all very similar in structure, so often if a person has a problem with gluten, they also have problems with the other two. So you could try going off all three for a few weeks, then gradually introduce one (I'd do soy first), wait several days as some reactions take a few days, and then if it's ok, introduce the next one (dairy), again wait several days, and then you could try gluten. You may find the reactions are stronger than before, because once the body starts to heal, it reacts more strongly to the antagonist. (people also sometimes eliminate corn products as this is a common allergen as well)

You'd want to eliminate gluten that is in wheat, rye, barley, and oats (many people avoid oats although they do not have gluten in them--I personally still eat gluten free oats, but have only been doing this 3 months so that could change).

Here is a link to a good website that lists alot of info about gluten free casein free diets...it's on an autism website, but I found the info to be so helpful I refer to it often, there are also good links to more info and recipes etc : Open Original Shared Link

Good luck!

Liz

4blessings Rookie
4blessings
Posted
  • Author

Liz.

Thank you for the GREAT web site!! and the great info.

Ok I have some more questions...Is flax a gluten containing grain? Is spelt ok to eat I've heard it can sub for wheat.

Thanks for the great info.

Amy

Lizz7711 Apprentice
Lizz7711
Posted
Liz.

Thank you for the GREAT web site!! and the great info.

Ok I have some more questions...Is flax a gluten containing grain? Is spelt ok to eat I've heard it can sub for wheat.

Thanks for the great info.

Amy

Your welcome! I was thinking that alternatively to the elimination plan I mentioned, you could just first eliminate gluten, because if you notice improvement off gluten, you don't want to go back on it to challenge it as that will just continue the damage. Then after that you could test the dairy and soy. Just another way to go about it. I'd personally recommend asking the doc for a blood test for IgG and IgA and antitissue transglutaminase antibodies before you go gluten free. Howver, that said, many people test negative on blood tests, so you could then try the diet if the test is negative. There's also stool testing which is good because it finds antibodies before they get in the blood, I used www.enterolab.com It's not covered by insurance, but you get gluten and casein testing, malabsorption testing, and gene testing (cheek swab) for $369.

Anyway! Flax is fine, spelt is not. I can't remember what the issue is with spelt but I know it's not acceptable on a gluten free diet.

take care,

Liz

kbtoyssni Contributor
kbtoyssni
Posted

Spelt is a derivative of wheat. So it's got the same gluten protein in it.

shelland Rookie
shelland
Posted
Doing this for our 14mo daughter she has had little gluten to begin with...how long does it take to see results?

We recently went gluten free for our 15 month old. By day 3 she was pooping less. By day 5 she was sleeping through the night. After a few days more her poops are normal smelling. I think it helpd that we cut out the oatmeal she was eating in the morning. They were probably cross-contaminated with gluten.

We're all happier now.

Good luck to you- hope you see results soon.

4blessings Rookie
4blessings
Posted
  • Author

Thanks for all the great advice!

We did have celiac panel done and it came back neg. she was also tested for CF and that was neg. We recently found out that my husbands (paternal) uncle and cousin have celiac so with symptoms I am thinking lets rule this one out.

My hope is that she will start gaining weight...she looks like we starve her. But we don't!

We also have a son with ADHD, hoping gluten free will help him. The med he takes is terrible!!

Thanks again all

Amy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,897
    • Most Online (within 30 mins)
      7,748
    Jennbo
    Newest Member
    Jennbo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      How Come Gluten Didnt Bother Me In Italy

      By trents · Posted

      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.