Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do We Go Gluten Free?

4blessings

Recommended Posts

4blessings Rookie
4blessings
Posted

Hi

I am wondering how long you go on a gluten free diet to determine if gluten is actually a problem? Also what type of grains need to be cut out? Doing this for our 14mo daughter she has had little gluten to begin with...how long does it take to see results?

Thanks for any help you can give.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lizz7711 Apprentice
Lizz7711
Posted
Hi

I am wondering how long you go on a gluten free diet to determine if gluten is actually a problem? Also what type of grains need to be cut out? Doing this for our 14mo daughter she has had little gluten to begin with...how long does it take to see results?

Thanks for any help you can give.

I don't have experience with little ones with gluten sensitivity, but from what I understand you should notice improvement fairly quickly with younger kids, like within a couple weeks up to a month. It's usually recommended to go off dairy as well. The gluten proteins and dairy protein casein, as well as the soy protein, are all very similar in structure, so often if a person has a problem with gluten, they also have problems with the other two. So you could try going off all three for a few weeks, then gradually introduce one (I'd do soy first), wait several days as some reactions take a few days, and then if it's ok, introduce the next one (dairy), again wait several days, and then you could try gluten. You may find the reactions are stronger than before, because once the body starts to heal, it reacts more strongly to the antagonist. (people also sometimes eliminate corn products as this is a common allergen as well)

You'd want to eliminate gluten that is in wheat, rye, barley, and oats (many people avoid oats although they do not have gluten in them--I personally still eat gluten free oats, but have only been doing this 3 months so that could change).

Here is a link to a good website that lists alot of info about gluten free casein free diets...it's on an autism website, but I found the info to be so helpful I refer to it often, there are also good links to more info and recipes etc : Open Original Shared Link

Good luck!

Liz

4blessings Rookie
4blessings
Posted
  • Author

Liz.

Thank you for the GREAT web site!! and the great info.

Ok I have some more questions...Is flax a gluten containing grain? Is spelt ok to eat I've heard it can sub for wheat.

Thanks for the great info.

Amy

Lizz7711 Apprentice
Lizz7711
Posted
Liz.

Thank you for the GREAT web site!! and the great info.

Ok I have some more questions...Is flax a gluten containing grain? Is spelt ok to eat I've heard it can sub for wheat.

Thanks for the great info.

Amy

Your welcome! I was thinking that alternatively to the elimination plan I mentioned, you could just first eliminate gluten, because if you notice improvement off gluten, you don't want to go back on it to challenge it as that will just continue the damage. Then after that you could test the dairy and soy. Just another way to go about it. I'd personally recommend asking the doc for a blood test for IgG and IgA and antitissue transglutaminase antibodies before you go gluten free. Howver, that said, many people test negative on blood tests, so you could then try the diet if the test is negative. There's also stool testing which is good because it finds antibodies before they get in the blood, I used www.enterolab.com It's not covered by insurance, but you get gluten and casein testing, malabsorption testing, and gene testing (cheek swab) for $369.

Anyway! Flax is fine, spelt is not. I can't remember what the issue is with spelt but I know it's not acceptable on a gluten free diet.

take care,

Liz

kbtoyssni Contributor
kbtoyssni
Posted

Spelt is a derivative of wheat. So it's got the same gluten protein in it.

shelland Rookie
shelland
Posted
Doing this for our 14mo daughter she has had little gluten to begin with...how long does it take to see results?

We recently went gluten free for our 15 month old. By day 3 she was pooping less. By day 5 she was sleeping through the night. After a few days more her poops are normal smelling. I think it helpd that we cut out the oatmeal she was eating in the morning. They were probably cross-contaminated with gluten.

We're all happier now.

Good luck to you- hope you see results soon.

4blessings Rookie
4blessings
Posted
  • Author

Thanks for all the great advice!

We did have celiac panel done and it came back neg. she was also tested for CF and that was neg. We recently found out that my husbands (paternal) uncle and cousin have celiac so with symptoms I am thinking lets rule this one out.

My hope is that she will start gaining weight...she looks like we starve her. But we don't!

We also have a son with ADHD, hoping gluten free will help him. The med he takes is terrible!!

Thanks again all

Amy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,067
    • Most Online (within 30 mins)
      7,748
    Kelly Hughes
    Newest Member
    Kelly Hughes
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Blood results

      By trents · Posted

      Maybe celiac but maybe NCGS that was misdiagnosed as IBS morphing gradually into celiac. Is NCGS a new category to you? It shares many of the same GI symptoms with celiac disease but does not damage the small bowel lining like celiac.
    • knitty kitty
      Oral thrush question

      By knitty kitty · Posted

      Thiamine has antifungal properties.  The body uses thiamine to keep bacteria and yeasts from overgrowth in the digestive system.   Fluconazole use can cause thiamine deficiency.   Supplementing with thiamine in the form Benfotiamine would be beneficial as Benfotiamine promotes intestinal healing.   Thiamine and the other B vitamins tend to be low in Celiac due to malabsorption.  Talk to your doctor about supplementing vitamins and minerals.
    • Scott Adams
      Nutrient deficiencies despite normal MARSH and strict gluten-free diet

      By Scott Adams · Posted

      Welcome @Natalia Revelo, your experience is profoundly difficult and, sadly, not entirely unique within the celiac community. It's the frustrating reality of "silent" or ongoing damage that isn't captured by the MARSH score alone, which only measures active villous atrophy. Your normal biopsy suggests your diet is preventing the classic autoimmune attack, but it doesn't mean your gut has fully healed or that other issues aren't at play. The inflammation from your newly discovered milk and egg allergies is a huge clue; this constant allergic response can create a low-grade inflammatory environment that severely hampers nutrient absorption, effectively creating a "leaky gut" scenario independent of celiac damage. This is likely why your iron stores deplete so rapidly—your body is both unable to absorb it efficiently and may be losing it through inflammation. While the functional medicine path is expensive, it's clearly providing answers and relief that traditional gastroenterology, focused solely on the gluten-free diet and biopsy results, is missing. To move forward, continue the gut-healing protocols your functional doctor recommends (perhaps exploring alternative options to glutamine that won't irritate your cystitis), maintain your strict avoidance of all allergens and irritants, and know that true healing is a multi-faceted process. You might seek a second opinion from a different gastroenterologist who is more knowledgeable about non-responsive celiac disease and the complex interplay of food allergies and micronutrient absorption, but your current path, while costly, seems to be leading you toward the steady health you need.
    • knitty kitty
      Blood results

      By knitty kitty · Posted

      Have you had a DNA test to look for Celiac disease genes?  If she doesn't have any celiac specific genes, look for another explanation.  If she does have Celiac genes, assume they are turned on and active Celiac disease is progressing.  All first degree relatives (mother, father, siblings, children) should be genetically tested as well.   Sometimes blood tests are ambiguous or false negatives if one has anemia, diabetes or thiamine deficiency.  Certain medications like antihistamines and steroids can suppress the immune system and result in false negatives or ambiguous results on antibody tests.  
    • Heatherisle
      Blood results

      By Heatherisle · Posted

      That was just the visual report, so need to wait for confirmation or otherwise from the results. They did take a biopsy from the upper end of the duodenum(D1). D2 looked unremarkable on the camera. Just wish we didn’t have to wait so long for the results as she’s naturally a very anxious person. But thanks so much for taking the time to answer me
×
×
  • Create New...