Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten By Accident. Starting From Zero?


MELINE

Recommended Posts

MELINE Enthusiast

Hello. There was a bad information from my doctor, who allowed me to eat dinkel (spelt) bread which finally proved to be non gluten-free. After 3 days of eating it, all the symptoms came back. Just wanted to ask. If someone does accidentaly eat gluten, then he starts the healing period from zero point? Maybe it depends on the amount? To tell you the truth it only took me 2 days to stop feeling exhausted, and the headache disappeared in only few hours so I hope it is like it never happened? or it is not??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kenlove Rising Star

kahleespehrah

For me it depends on the type of accident I eating or inhaling or degree of cross contamination.

I think it also depends on how far you are from the starting point and how much you have healed.

For me its been almost 2 years and if I have an accident now, it can take 2 days to a week to feel normal again.

A year ago it could take 3 weeks.

Ken

Hello. There was a bad information from my doctor, who allowed me to eat dinkel (spelt) bread which finally proved to be non gluten-free. After 3 days of eating it, all the symptoms came back. Just wanted to ask. If someone does accidentaly eat gluten, then he starts the healing period from zero point? Maybe it depends on the amount? To tell you the truth it only took me 2 days to stop feeling exhausted, and the headache disappeared in only few hours so I hope it is like it never happened? or it is not??
MELINE Enthusiast
kahleespehrah

For me it depends on the type of accident I eating or inhaling or degree of cross contamination.

I think it also depends on how far you are from the starting point and how much you have healed.

For me its been almost 2 years and if I have an accident now, it can take 2 days to a week to feel normal again.

A year ago it could take 3 weeks.

Ken

Kalispera to you too!!!

I see...so it is not a rule that you start all over again! It only took me 2 days after eating a good amount of non gluten-free bread, so I guess I don't have to worry so much. thanx for the information ken.

Meline

kenlove Rising Star

I think it just takes time to get to know how your body changed from celiac. I'm still learning after 2 years after 55 years of no trouble with anything.

Some of us on the forum are trying to develop the perfect gluten free pylo. Do they have any gluten free foods in Greece?

Take care

ken

Kalispera to you too!!!

I see...so it is not a rule that you start all over again! It only took me 2 days after eating a good amount of non gluten-free bread, so I guess I don't have to worry so much. thanx for the information ken.

Meline

MELINE Enthusiast
I think it just takes time to get to know how your body changed from celiac. I'm still learning after 2 years after 55 years of no trouble with anything.

Some of us on the forum are trying to develop the perfect gluten free pylo. Do they have any gluten free foods in Greece?

Take care

ken

They actually have, even though people are not aware of celiac. I read on the net that in Greece there is only 1 in 11. 000 people with celiac.....Can it be true?? The same article mentioned 1 in 300 people for Ireland.....Any way!!! I found pasta and bread and cookies and many many things, but unfortunatelly I can't eat them because I also have problems with sugar and lactose and several other foods. But I really don't care. I am so happy with my new non-exhausted self that anything else is tiny little detail. My friends and my family keep telling me they feel so sorry about me not beeing able to eat so many things and I am just wondering why do they pitty me??? Celiac is not such a big deal after all. It just needs some attention. I really never want to taste bread again if it is to feel again that pain in my head and in my stomach and that awfull feeling that I am going to collapse if I make one more step......

as far as pylo is concerned....oups.....I don't know the meaning of that word.....I am going to look it up...But I hope you can make it (whatever it is, I guess it will be a nice surprise..)

MELINE Enthusiast

couldn't find the word pylo....I still don' know the meaning...

YoloGx Rookie
couldn't find the word pylo....I still don' know the meaning...

I think what Ken meant was the paleo diet--after the ancient Paleolithic Hunter Gatherers (i.e. who ate a non-grain diet like everyone did before 15,000 years ago). It means mostly vegetables including roots and squash, some meat, nuts and seeds (soaked and sprouted best), some fruit and if you can handle it sometimes some honey. To branch out you can add some ancient grains--amaranth, teff, quinoa and maybe some rice and corn. But even there it shouldn't be the main part of the diet.

Maybe you had some stray barbarian from the north as one of your ancestors or heaven forbid an Italian. It was the northern Europeans that mostly developed the celiac reaction to gluten. Without it you should be less likely to get degenerative diseases since gluten actually isn't that digestible by anyone--which eventually can makes the body break down more easily.

Yolo


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kenlove Rising Star

I must be spelling it wrong, the wrap for spanakotiropita phylo or filo?

Its great you have such a good attitude towards celiac.

Sure it is natural to miss to eat some foods but there are new ones to explore for, find and enjoy.

I work a lot of figs I think you call seko. The best in the world are from Greece.

Like you I do not miss to have bread at all. But somethings like spanakopita I would like to make again.

take care

couldn't find the word pylo....I still don' know the meaning...
MELINE Enthusiast
I think what Ken meant was the paleo diet--after the ancient Paleolithic Hunter Gatherers (i.e. who ate a non-grain diet like everyone did before 15,000 years ago). It means mostly vegetables including roots and squash, some meat, nuts and seeds (soaked and sprouted best), some fruit and if you can handle it sometimes some honey. To branch out you can add some ancient grains--amaranth, teff, quinoa and maybe some rice and corn. But even there it shouldn't be the main part of the diet.

Maybe you had some stray barbarian from the north as one of your ancestors or heaven forbid an Italian. It was the northern Europeans that mostly developed the celiac reaction to gluten. Without it you should be less likely to get degenerative diseases since gluten actually isn't that digestible by anyone--which eventually can makes the body break down more easily.

Yolo

Hi yolo! That's a pretty clever version of what Ken may wanted to say, but as you can see in his post finally he meant smth else.....as far as northern europe and celiac is concerned guess you are right...

KEEEEEEEEEEN please do try to find out the best way to make gluten free pheelo for spanakopitaaaaaaaaaaaaaaaaaaaaaaaaa. That's a food I am missing!!!! My mother is going to try it this weekend but I don't know the results.....And about seeko - figs oups....Allergy for me there....But you are right! really tasty in greece

kenlove Rising Star

Hi Meline,

What will your mother use to make the spankopita?

I hope she can make a good recipe. My son is a chef here in Hawaii but his first cooking lessons when he was very young were at a Greek church during a festival in Chicago. Growing up in Chicago your countries culture was everywhere and when I trained as a chef in Japan, my teacher asked me to make Greek foods for him since he never tried them.

It's too bad you cannot have seeko. I am lucky I only have celiac and no other troubles.

Can you eat other fruits?

Yolo helped me a lot with information about her diet and information on vitamins and herbs.

adio

ken

Hi yolo! That's a prettycelver version of what Ken may wanted to say, but as you can see in his post finally he meant smth else.....as far as northern europe and celiac is concerned guess you are right...

KEEEEEEEEEEN please do try to find out the best way to make gluten free pheelo for spanakopitaaaaaaaaaaaaaaaaaaaaaaaaa. That's a food I am missing!!!! My mother is going to try it this weekend but I don't know the results.....And about seeko - figs oups....Allergy for me there....But you are right! really tasty in greece

MELINE Enthusiast
Hi Meline,

What will your mother use to make the spankopita?

I hope she can make a good recipe. My son is a chef here in Hawaii but his first cooking lessons when he was very young were at a Greek church during a festival in Chicago. Growing up in Chicago your countries culture was everywhere and when I trained as a chef in Japan, my teacher asked me to make Greek foods for him since he never tried them.

It's too bad you cannot have seeko. I am lucky I only have celiac and no other troubles.

Can you eat other fruits?

Yolo helped me a lot with information about her diet and information on vitamins and herbs.

adio

ken

Kalimera ken

Unfortunately she is going to use only riceflour and oil because at least for the next 6 months I am not allowed to eat anything else that people use to make pheelo for spanakopita. (As far as I know she also uses ouzo, but guess what...allergy in ouzo....)

I can eat bananas and mantarinia (I don' t know the translation....they look like little oranges), and appricots and apples and that's all for fruits....Unfortunatelly extremely limited choises in food.....any way.....It's ok...no big deal.

Interesting...You are a chef and you had a training in Japan....and you live in Hawai....All these places are so exotic to me!! You must have had a nice travelling experience in Japan...Didn't know that in Chicago there are many Greeks....Any way....If you need any recipe for greek food please feal free to ask. (not a gluten-free one, cause I found out that I had to exclude gluten for a life time just last week so my mother did not have time to come up with solutions....And here in Greece only 1 in 11.000 people are celiac - I read yesterday that it is the lowest rate in Europe-so there are no gluten-free products to use in foods...)

kenlove Rising Star

Hi Meline

I think at one time Chicago had more Greeks than anyplace outside of Athens!

ITs too bad you have so many allergies now but maybe some will clear up. We can never stop the celiac but

maybe some of the others. It's too bad about Ouzo. Here no stores sell retsina so I have to order it.

I think mantarinia must be mandarin or tangerine, smaller than orange.

Hawaii and Japan are both similar to Greece in that they are surrounded by ocean and many of the foods come from the sea.

To me Greece is a place I always plan to travel. I've been to so many countries around the world but never to yours.

I hope someday to visit. Maybe when I am in Italy working this summer.

I have to leave for the airport in a few minutes,

take care

ken

Kalimera ken

Unfortunately she is going to use only riceflour and oil because at least for the next 6 months I am not allowed to eat anything else that people use to make pheelo for spanakopita. (As far as I know she also uses ouzo, but guess what...allergy in ouzo....)

I can eat bananas and mantarinia (I don' t know the translation....they look like little oranges), and appricots and apples and that's all for fruits....Unfortunatelly extremely limited choises in food.....any way.....It's ok...no big deal.

Interesting...You are a chef and you had a training in Japan....and you live in Hawai....All these places are so exotic to me!! You must have had a nice travelling experience in Japan...Didn't know that in Chicago there are many Greeks....Any way....If you need any recipe for greek food please feal free to ask. (not a gluten-free one, cause I found out that I had to exclude gluten for a life time just last week so my mother did not have time to come up with solutions....And here in Greece only 1 in 11.000 people are celiac - I read yesterday that it is the lowest rate in Europe-so there are no gluten-free products to use in foods...)

MELINE Enthusiast
Hi Meline

I think at one time Chicago had more Greeks than anyplace outside of Athens!

ITs too bad you have so many allergies now but maybe some will clear up. We can never stop the celiac but

maybe some of the others. It's too bad about Ouzo. Here no stores sell retsina so I have to order it.

I think mantarinia must be mandarin or tangerine, smaller than orange.

Hawaii and Japan are both similar to Greece in that they are surrounded by ocean and many of the foods come from the sea.

To me Greece is a place I always plan to travel. I've been to so many countries around the world but never to yours.

I hope someday to visit. Maybe when I am in Italy working this summer.

I have to leave for the airport in a few minutes,

take care

ken

Have a nice flight Ken!!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      3

      New issue

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      My journey is it gluten or fiber?

    3. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      13

      Insomnia help

    4. - trents replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      13

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,102
    • Most Online (within 30 mins)
      7,748

    Dawn74
    Newest Member
    Dawn74
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Nope its just me because they can eat wheat and when we use same pans I found out last year thanks to you guys and the autoimmune website im learning,we are not to share though clean, same with sponge. I just wish doctors understood. I am with new gi and new pcp but im falling apart because blood work is fabulous.Im so ANGERY.I have reached out to my local representative, in Stanislaus but its just weekly stuff.Im going to need to physical go down there.Any recommendations on what to say and do because this is absolutely ridiculous. If I didn't have my husband though we are really hurting with one income, I would absolutely be one of the homeless population. Thats alarming begging to be heard about a diagnosis that was given as an adult and dealing with this, medical needs to stick to patients regardless of switching insurance or doctor. 
    • knitty kitty
      If you haven't noticed a difference yet, bump up your Thiamax.  Add in another Thiamax with breakfast and lunch.  Increase the NeuroMag as well.  You can add in another Benfotiamine, too.   Thiamine is safe and nontoxic even in high doses.  Taking more is fine. I had to bump mine up several times when first starting.  It's a matter of finding what works for you.  Everyone is different.   Stick with it.  Some of the health improvements are very subtle and gradual.   Keep going!  You're doing great!
    • knitty kitty
      Hello, @hjayne19, About half of the people with Celiac disease react to the protein Casein in dairy the same as to gluten with the inflammation and antibodies and all.  Reacting to Casein is not the same as lactose intolerance nor a dairy allergy.  Damaged villi are incapable of producing lactAse, the enzyme that digests lactOse, the sugar in dairy.  When the villi grow back, the villi can resume making lactase again.  I react to casein. Keep in mind that part of the autoimmune response to gluten and casein is the release of histamine.  Histamine causes inflammation, but it is also powerful excitory neurotransmitter, causing heightened mental alertness.  Histamine release is what causes us to wake up in the morning.  Unfortunately, excessive histamine can cause insomnia.  Our bodies can make histamine, but foods we eat contain different amounts of histamine, too.  Our bodies can clear a certain amount of histamine, but if overwhelmed, chronic high histamine levels can keep inflammation going and cause other health problems.   I got very weary of playing Sherlock Holmes trying to deduce what I was reacting to this week, so I adopted the low histamine version of the Autoimmune Protocol diet, a Paleo diet designed by a doctor with Celiac, Dr. Sarah Ballantyne.  Her book, The Paleo Approach, has been most helpful.   The low histamine AIP diet cuts out lots of foods that are known to be irritating to the digestive tract.  After a few weeks, when my system was calmer and healing, I could try adding other foods to my diet.  It was much easier starting with safe foods, adding one thing at a time, and checking for reactions than trying to figure out what I was reacting to with so many variables.  I learned to recognize when I had consumed too much histamine from different combinations of foods.  Everyone is different and can tolerate different amounts of histamine in their food.  B Vitamins help us make enzymes that break down histamine.  Vitamin D helps regulate and calm the immune system.  Supplementing with Thiamine helps prevent mast cells from releasing histamine.  Keeping a food-mood-poo'd journal helps identify problematic foods.   I hope you will consider trying the AIP diet.
    • trents
      You may be cross reacting to the protein "casein" in dairy, which is structurally similar to gluten. People assume lactose intolerance is the only problem with dairy. It is not, at least for the celiac community.
    • hjayne19
      Hi @knitty kitty  Just revisiting this to get some help. I found after understanding the extent of my anxiety, my sleep got a little better. Flash forward to a few weeks later I have had a few bad sleeps in a row and I feel desperate for a good nights sleep. I understand worrying about it won’t help but one thing I had tied things too was dairy. Initially when I went gluten free I felt great for the first few weeks then started having some stomach pain. So thought maybe I was lactose intolerant. I started eating lactose free Greek yogurt and that did help take the cramping away I guess. Over the last few months I haven’t eaten it every single day and I went a few weeks without it. The last few nights I did have a small amount with breakfast and noticed that was the only new thing I’ve really added to my diet. I had seen a few other posts about this. Is it possible to still react to lactose free? Would this potentially be a dairy allergy? Or something else. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.