Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pain In The Back Of The Chest


Chuckles

Recommended Posts

Chuckles Newbie

Hi there, I have just been diagnosed with Coeliac and have had many symptoms which are listed on various web sites. However, I keep getting severe pain in the back of my chest to the point that even with a combination of painkillers at the same time cannot even touch it. It comes on several hours a day and is like waves of pain or something turning and moving around - I cannot walk when it is really bad and have trouble sitting still as the pain moves around. I have had many scans and tests all of which assure me that there is 'nothing nasty' according to the doctors but the pain is having a major impact on my life. I am also told the pain is in the wrong place, wrong place for what I dont know but it is what it is . I was diagnosed Xmas eve just gone and started the gluten free diet immediately - just after the New Year the pain went altogether until two weeks ago and I have had it every day since then - I would be very grateful if any one could let me know if you have experienced anything similar.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Happynwgal2
Hi there, I have just been diagnosed with Coeliac and have had many symptoms which are listed on various web sites. However, I keep getting severe pain in the back of my chest to the point that even with a combination of painkillers at the same time cannot even touch it. It comes on several hours a day and is like waves of pain or something turning and moving around - I cannot walk when it is really bad and have trouble sitting still as the pain moves around. I have had many scans and tests all of which assure me that there is 'nothing nasty' according to the doctors but the pain is having a major impact on my life. I am also told the pain is in the wrong place, wrong place for what I dont know but it is what it is . I was diagnosed Xmas eve just gone and started the gluten free diet immediately - just after the New Year the pain went altogether until two weeks ago and I have had it every day since then - I would be very grateful if any one could let me know if you have experienced anything similar.

That must be so frustrating! I feel for you. What kinds of doctors have you tried so far? Will your insurance let you go to a specialist without a referral? And have you tried a chiropractor? A good chiropractor may at least be able to steer you in the right direction if he or she cannot help you. Do not give up, but keep going to different kinds of doctors until you find out what this is.

While I have never had a pain like the one you describe, I have had other pains and problems that conventional doctors have been "unable" to find the reason for. Conventional medicine can sometimes be very rigid, until you find a doctor with a more open mind than many of them have.

Good luck! :)

YoloGx Rookie
Hi there, I have just been diagnosed with Coeliac and have had many symptoms which are listed on various web sites. However, I keep getting severe pain in the back of my chest to the point that even with a combination of painkillers at the same time cannot even touch it. It comes on several hours a day and is like waves of pain or something turning and moving around - I cannot walk when it is really bad and have trouble sitting still as the pain moves around. I have had many scans and tests all of which assure me that there is 'nothing nasty' according to the doctors but the pain is having a major impact on my life. I am also told the pain is in the wrong place, wrong place for what I dont know but it is what it is . I was diagnosed Xmas eve just gone and started the gluten free diet immediately - just after the New Year the pain went altogether until two weeks ago and I have had it every day since then - I would be very grateful if any one could let me know if you have experienced anything similar.

I have had similar things--my lungs are very sensitive I think too to both stress and celiac. I first got pneumonia after all as an infant after first being introduced to grains.

Thus it really could be part of the celiac. I have read somewhere or other that it is one way celiac can manifest. Sometimes it causes areas of sensitivity in the lungs which can eventually have DH like sores. You might be getting hidden glutens in your diet or just from some shampoo, toothpaste or other hidden source like an old toaster or frying pan. You need to be a detective to figure out what is what...This is my best advice.

Apart from staying away from all gluten, Detoxification can also help lessen the problem. Herbs again like dandelion, burdock, yellow dock etc. and maybe some licorice root (this last if you don't have high blood pressure). You could also use a little lobelia to relax and lessen the pain. And using a Sauna will help detox the lungs quite a lot--as will aerobic exercise.

However it also could be that you need some kind of adjustment. It might be a bone or muscle out of place. For myself now I do yoga and that really helps keep that and other parts of my body working well together. Deep breathing helps too. Seeing a chiropractor might help. Also going to the Y and using the jacuzzi or getting a good massage or two...

Then too if nothing above works, I would see an acupuncturist. It might be some kind of energy or pinched nerve problem...

Or yet another undiagnosed allergen. If so, go on a fast or simplified paleolithic diet (roots, vegetables, some fruit with, later on, a little meat) and reintroduce your foods slowly to detect the culprit. You might check your pulse too. If its high sometimes and low otherwise despite no concurrent exercise this definitely indicates an allergen.

GlutenGalAZ Enthusiast

About 2 years ago I was going to the dr about my high pulse and I was getting this REALLY bad pain in my upper chest that went through to my back. The dr's could not figure it out I did lots of heart tests to make sure there were no other problems. Months later during the busy season at work I was moving lots of boxes to put stock out and I got a really bad pain in my lower back (where I was crying from the pain). My dr had me get an x-ray but nothing showed up.

My in-laws and husband suggested going to their chiropractor. MY GOSH he helped soooo much!! He did his magic cracking and then I asked about the chest pain and it was like my rib was poking out of place and hitting a nerve which caused the stricking pain that felt like chest problems and then boom the pain was gone. I was shocked and amazed b/c I had never been to a chiropractor before. I have learned that you have to watch how you sleep (i.e. if you lay on your stomach with one leg straight and one bent it messed with your hip bone area or how you place your arms above you head or under the pillow can mess with the bones in your upper chest/neck).

Oh... the pain that I got in my chest area would come and go during the day, it was not constant the whole day and I could not pin point if I did something that it would make the pain come.

Hope you can figure out what is causing the pain. :(

Best of luck.

debmidge Rising Star
Hi there, I have just been diagnosed with Coeliac and have had many symptoms which are listed on various web sites. However, I keep getting severe pain in the back of my chest to the point that even with a combination of painkillers at the same time cannot even touch it. It comes on several hours a day and is like waves of pain or something turning and moving around - I cannot walk when it is really bad and have trouble sitting still as the pain moves around. I have had many scans and tests all of which assure me that there is 'nothing nasty' according to the doctors but the pain is having a major impact on my life. I am also told the pain is in the wrong place, wrong place for what I dont know but it is what it is . I was diagnosed Xmas eve just gone and started the gluten free diet immediately - just after the New Year the pain went altogether until two weeks ago and I have had it every day since then - I would be very grateful if any one could let me know if you have experienced anything similar.

Chuckles

Do you mean that your pain is on your back, under your shoulder blade? If yes, which side? Does it move around after belching or having gas in your intestines move around?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,334
    • Most Online (within 30 mins)
      7,748

    johnfreirefr
    Newest Member
    johnfreirefr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.