Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Constipation Help


blondebombshell

Recommended Posts

blondebombshell Collaborator

this may be TMI but i need help. doctors seem to know 'nothing' about what is wrong with me.

my whooole life i have had issues with going to the bathroom. i probably go once a week. my diet is relatively clean (veggies, fruits, etc) so i dont know why.

wound up going to the doctor in august and asked why it hurt when i laid on my left hand side. always feel bloated, etc. he told me i was constipated and that i should take laxatives. did some bloodwork and came back that i had a gluten, wheat and egg allergy. i had an endoscopy and it came back negative for celiac.

i have been taking the laxatives now for a few months, while eliminating wheat/gluten at the same time and am feeling much, much better.

any ideas as to what is *really* wrong? i feel like no one knows - no allergists, GI's, no one!! when i do eat something that has gluten in it, i get itchy hives all over my legs.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac-mommy Collaborator

Are you still constipated? If you're feeling better overall but are still finding yourself constipated, it may be the constant use of the laxitives. The longer you use them, your body will build a dependancy and you will have a difficult time going without them or having to increase your dose over time because your body is going to need more and more...

debmidge Rising Star
this may be TMI but i need help. doctors seem to know 'nothing' about what is wrong with me.

my whooole life i have had issues with going to the bathroom. i probably go once a week. my diet is relatively clean (veggies, fruits, etc) so i dont know why.

wound up going to the doctor in august and asked why it hurt when i laid on my left hand side. always feel bloated, etc. he told me i was constipated and that i should take laxatives. did some bloodwork and came back that i had a gluten, wheat and egg allergy. i had an endoscopy and it came back negative for celiac.

i have been taking the laxatives now for a few months, while eliminating wheat/gluten at the same time and am feeling much, much better.

Do you mean laxatives or fiber supplements?

blondebombshell Collaborator

laxatives

flourgirl Apprentice

Hi. If you're getting itchy hives when you ingest gluten, that may be dermatitis herpetiformis, which is a skin manifestation of Celiac. A biopsy near the rash would be able to tell you. You can have Celiac without the intestinal damage. Have you had any blood tests? I would look into this further, and be persistant for answers. As far as constipation...I've had it for years...we always thought it was just a familial trait, as most of my family suffers with it. Turns out for me, at least, it's Celiac. When I finally got sick enough Iwent the other way. Now I can't stop the big D! Good luck in your search for answers.

blondebombshell Collaborator
Hi. If you're getting itchy hives when you ingest gluten, that may be dermatitis herpetiformis, which is a skin manifestation of Celiac. A biopsy near the rash would be able to tell you. You can have Celiac without the intestinal damage. Have you had any blood tests? I would look into this further, and be persistant for answers. As far as constipation...I've had it for years...we always thought it was just a familial trait, as most of my family suffers with it. Turns out for me, at least, it's Celiac. When I finally got sick enough Iwent the other way. Now I can't stop the big D! Good luck in your search for answers.

i feel like these doctors suck! (sorry but they do!)

my GI did an edoscopy which came back negative for celiac. he said my intestines look 'fine' and that it must be something else like an allergy causing hives.

so i went to an allergist - came back i was allergic to melons, apples, egg and thats it! not wheat! that came up in a blood test. (eggs and wheat). i was glutened *i think* by eating a rice krispie treat and a bag of jellly beans and i have hives all over my legs.

rick-spiff Rookie
my whooole life i have had issues with going to the bathroom. i probably go once a week. my diet is relatively clean (veggies, fruits, etc) so i dont know why.

Sounds just like me.

My hormone levels are off, allergy tests haven't come back yet, but what my dr did (she's a naturepath) was put me on magnesium to help me go to the bathroom regularly. I had to take stool softener so I didn't get all crampy at first, but speaking from experience, it's real hard on your body keeping in those toxins for a week. I am doing much better now!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,258
    • Most Online (within 30 mins)
      7,748

    mbarnesrrt
    Newest Member
    mbarnesrrt
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      So just to be cautious, there is a big difference between cured, and responding to their medication. I assume you mean that your daughter responded well while taking KAN-101 during the trial, but the drug would not cure celiac disease, but may manage it while you are taking it. Let me know if I got this right.
    • trents
      Welcome to the forum, @Godfather! "Gluten-free" is not the same as zero gluten. The FDA standard for allowing the food industry to us the gluten-free label on a product is that it cannot exceed 20 ppm of gluten. That is safe for most celiacs but not for the subset of celiacs/gltuen sensitive people who are super sensitive. "Gluten-free" wheat starch products have been processed in such a way to remove enough of the protein gluten to comply with the FDA regulation but usually do retain some gluten and we usually get reports from some people on this forum who fall in the more sensitive range that such products cause them to react. Hope this helps. So, you may just have to experiment for yourself.
    • trents
      Welcome to the forum, @Dana0207! Another diagnostic approach would be to get biopsied for dermatitis herpetiformis which would not require an extensive exposure to gluten. But it would need to be done during an active outbreak of the rash. Celiac disease is the only known cause for dermatitis herpetiformis so it would be a definitive diagnosis. It might be tricky, however, to time the dermatology appointment with the gluten exposure and outbreak.
×
×
  • Create New...