Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Aches And Pains

happypoole

Recommended Posts

happypoole Newbie
happypoole
Posted

Does anynoe know if eating wheat can cause joint pain?

I stopped eating wheat about 8 months ago due to being bloated having migrains and getting IBS. I've decided to start eating it again in order to do a celiac test. I've been eating it for a week now and have started getting pains in my hips, Shoulders, neck and back. I used to get these pains but have only just realised that they stopped a while after i gave up wheat.

Is it just a coinsidence or is it linked? Can anyone help?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


HAK1031 Enthusiast
HAK1031
Posted

Yes, gluten can aggravate joint pains. I would reconsider eating it for the test- your response to it is enough to convince me that you have problems with gluten. Do you really "need" an official diagnosis?

happypoole Newbie
happypoole
Posted
  • Author

I don't know really, I suppose not but it would be nice to find out exactly what is wrong with me. do you konw why it can cause joint pains?

HAK1031 Enthusiast
HAK1031
Posted

I have no idea actually. Gluten does weird things to our bodies...I would guess it's some kind of inflammatory response? I don't know, but when I eat gluten I feel like I'm 90...and I'm 16!!! I've had joint troubles all my life, and have already had one knee surgery and am looking at another. But gluten affects my entire body (as it does to most) and I feel like my limps are heavy and sluggish and I get really run down.

If you feel like you need a test to stick to the diet, and are willing to suffer the consequences, then that's ok. But you might also want ot consider enterolab testing (enterolab.com) which is a private company (out of pocket unfortunately, $150) that is much more accurate and is good even when you have been gluten-free for a year. It's a home stool test.

mushroom Proficient
mushroom
Posted
Does anynoe know if eating wheat can cause joint pain?

I stopped eating wheat about 8 months ago due to being bloated having migrains and getting IBS. I've decided to start eating it again in order to do a celiac test. I've been eating it for a week now and have started getting pains in my hips, Shoulders, neck and back. I used to get these pains but have only just realised that they stopped a while after i gave up wheat.

Is it just a coinsidence or is it linked? Can anyone help?

Gluten has a definite connection with joint pain. Gluten can cause an autoimmune response in the body of sensitive individuals, i.e., our immune system treats "normal" things as invaders and sends out all these little histamines to fight them, which causes inflammation, swelling, joint pain. In me it caused psoriatic arthritis, which is psoriasis and rheumatoid arthritis together. Even though I have not been eating gluten for a while now I am still fighting this--shoulders, neck, hips, wrist. I would never go back to gluten for the sake of a test, personally, due to the amount of disability it has caused me over the years and the terrible meds to combat it.

MyMississippi Enthusiast
MyMississippi
Posted

Fibromyalgia can cause pain in those areas you listed.

itchygirl Newbie
itchygirl
Posted

I have Sjogren's syndrome and gluten exposure will send me into a "flare". Don't forget to tell your doc your full range of symptoms, maybe they will want to do a sed rate and C-reactive protein etc while you are glutenated. Those are tests measure inflamation. If you're going to gluten up you might as well get your money's worth out of the awful experience :(

I did the challange back in the day. My C-reactive protein goes right up when I'm on wheat. Its pretty fun to observe. Except I feel like bleah. :huh:

Hope you feel better soon!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted
Fibromyalgia can cause pain in those areas you listed.

But is fibromyalgia really a disease, or is it just another of those wastebasket diagnoses like IBS when they don't know what you've really got?

happypoole Newbie
happypoole
Posted
  • Author

I'd never heard of fibromyalgia. It seems to fit alot of my symptoms but then so do alot of things.

I've decided to come back off the wheat after a week as i'm aching too much and feel exhausted! It was nice to have a donut or five though.

I hadn't even considered that back problems I've had for years could be agrivated by a wheat problem.

Thanks for all the input. This sight is great, I only came across it by chance the other day.

susieg-1 Apprentice
susieg-1
Posted

effects of celiac on body are due to nutitional deficiencies I beleive. I suffer great muscle fatige, bone and joint pain to the extent of barely being able to walk. If glutened accidently, these are my symptoms when most complain of stomach ailments. I finally self-diagnosed celiacs after drinking 1/2 beer caused severe reaction in muscle bone and joint within 30 minutes of drinking beer. I had suspected food reactions were causing my physical discomfort and this episode confirmed my suspicions. After many tests, e.g. colonoscopy, MRI, gall bladder, and more diagnosis e.g. IBS, osteoarthritis, shingles, and hot-tub rash ( I also suffer from DH) to name a few, my own research and food log helped me to diagnose myself, which has now been confirmed w/blood tests. I find vitamin b12 in addition to gluten-free diet helps to relieve my pain and discomfort. Good luck to you and use this forum to help manuver the gluten-free lifestyle.

Wonka Apprentice
Wonka
Posted

Good question. I have the diagnosis of fibromyalgia and I'm curious to see if more of those symptoms decrease the longer I am off gluten. The first time, after an elimination diet, that I stopped eating gluten (I was as careful as now and didn't know as much so I'm sure I was only gluten reduced) my fibromyalgia pain and fatigue reduced by 1/2. The thing with fibromyalgia is that it is NOT an imflammatory condition. I have muscle pain (anti-inflammatories do not touch this pain) that is mainly at the insertion areas. But it is interesting how many of the fibromyalgia symptoms are described here as celiac symptoms. I am on meds to sleep, if I over do it in a day I am in pain the next day and have severe brain fog that is not connected to gluten ingestion. I find the cross over symptomology very hard to interpret. Time will let me know. If my pain and fatigue disappear I guess I will have my answer.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    2. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in...
    3. SilkieFairy
      - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash...
    4. catnapt
      - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      learned I had a high PTH level in 2022 suspected to be due to low vit D got my vit D level up a bit but still have high PTH I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

      I am on day 13 of eating gluten and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748
    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.