Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Needing Reassurance

kyga

By kyga
in Related Issues & Disorders

Recommended Posts

kyga Rookie
kyga
Posted

After years of 'strange' symptoms, including vertigo and infertility and a host of other 'random' problems, I finally thought to look into the possibility of celiac disease. I started a gluten-freen diet about a month ago, and then last week went to a doctor who is very knowledgeable about gluten sensitivity. My blood test results will be in probably Tuesday. Anyway, I reasoned that if I am sensitive to gluten, I'll need an endoscopy and will need to eat some gluten in preparation for that. If I am not sensitive to gluten, it won't matter anyway. So I ate gluten all weekend.

Then, on a lark, because my period was late, I took a pregnancy test and it was positive! However, instead of feeling completely happy about it, now I'm worried that if I'm gluten sensitive, I have dramatically increased the likelihood of miscarriage by eating gluten. Anyone out there 'get glutened' during pregnancy without a disastrous result? I need to look on the bright side!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sydneysmommy Apprentice
sydneysmommy
Posted

no no no.... eating gluten will NOT increase chance of miscarraige! rest assured your baby will be okay! but you should call your dr who is doing the endoscopy and let him know about your pregnancy so you can do a blood test to confirm celiac instead of endoscopy!

congratulations!!!!!!!

pregnancy & celiac can work! and eating gluten will not hurt your child! it may upset your stomach... but it wont hurt your baby!

good luck!

kbtoyssni Contributor
kbtoyssni
Posted
no no no.... eating gluten will NOT increase chance of miscarraige! rest assured your baby will be okay! but you should call your dr who is doing the endoscopy and let him know about your pregnancy so you can do a blood test to confirm celiac instead of endoscopy!

Are you sure? I'm pretty sure that if you do have celiac, eating gluten will be harmful to the baby. If you're not absorbing nutrients properly, that can't be good for the baby. Many celiacs have fertility problems and miscarriages. Maybe someone can cite some research here. I don't want to freak you out, but I do think that you want to seriously consider whether eating gluten for traditional medical testing is a good idea right now.

maryjoali Newbie
maryjoali
Posted
Are you sure? I'm pretty sure that if you do have celiac, eating gluten will be harmful to the baby. If you're not absorbing nutrients properly, that can't be good for the baby. Many celiacs have fertility problems and miscarriages. Maybe someone can cite some research here. I don't want to freak you out, but I do think that you want to seriously consider whether eating gluten for traditional medical testing is a good idea right now.

I know there are mixed messages out there, but my doctor told me that throughout pregnancy, I needed to maintain a 100% gluten-free diet, especially during the first trimester. It was much easier for me, though, since I had already been diagnosed and I know how sick I would be if I cheated even a little (I am craving gluteny foods like crazy!) I would definitely check into it further if I were you and remember that you're going to have to do a lot of self-advocacy.

loraleena Contributor
loraleena
Posted

I noticed you said you went gluten free and then had the blood work after. If this is the case it is very likely that your tests will be negative. You have to eat gluten for the tests to show anything. Anyway, I would stay on the diet now that you are pregnant. I wouldn't eat it on purpose, but I don't think a mistake would hurt the baby. I don't know for sure.

shanluts Apprentice
shanluts
Posted

I was gluten-free with my 1st pregnancy AND 2nd Preg (lost this one at 12 weeks). With my 3rd they said I was JUST sensative to wheat so I ate tons of gluten. She was a healthy baby girl. THEN when she was ill (unrelated to gluten) I was retested per her doctors request AND I do have celiac disease SOOOOOO if it is any consolation I ate gluten for an entire pregnancy NOT just a short time. The risks with eating gluten (I was told) was vitamin deficiancies which are taken care of with all the extra we take with pregnancy.

Best of luck to you.

Shannon

kyga Rookie
kyga
Posted
  • Author

Thanks to everyone who replied. I feel better now. I am not eating gluten, but I have decided not to freak out if I accidentally ingest some.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted
no no no.... eating gluten will NOT increase chance of miscarraige! rest assured your baby will be okay! but you should call your dr who is doing the endoscopy and let him know about your pregnancy so you can do a blood test to confirm celiac instead of endoscopy!

congratulations!!!!!!!

pregnancy & celiac can work! and eating gluten will not hurt your child! it may upset your stomach... but it wont hurt your baby!

good luck!

Yes, yes, yes, gluten WILL increase your risk of miscarriage! But getting glutened at times won't. I did have five healthy babies while eating gluten, but I also had eight miscarriages. Plus, I had AWFUL pregnancies, I was sick for nine months every time.

Kyga, I am glad you have decided not to go through with eating gluten again for a test, as you would put your baby at risk (as well as yourself) otherwise.

Make sure you get tested for nutritional deficiencies, so you know which extra supplements (on top of your regular prenatal vitamins) you may need to take. The most common deficiencies with celiac disease are vitamin D, ferretin (iron), calcium, magnesium, vitamins B12 and B6, vitamin K, potassium. Make sure you have enough folic acid!

Try not to worry too much, and do your best to stay gluten-free, that is all you can do.

I agree, even if your blood test comes back negative (which is very likely), that won't mean that you don't have celiac disease. Those blood tests aren't all that accurate to begin with, and having it done after being gluten-free for several weeks is pretty useless.

TLT Newbie
TLT
Posted

Don't get too worked up about it, I didn't realize I had the gluten issue until I was pregnant, so I ate gluten up and through the first month of pregnancy and my little girl is perfect as can be, so do your best to get it out of your system and lay off of it, but you can't change the past. By the way you will feel a ton better when you are off the gluten, it seems you are a million times more sensitive while pregnant. Be careful and good luck.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. MegRCxx
      - MegRCxx replied to MegRCxx's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      How to work through food paranoia

      Thank you @Scott Adams!! I will definitely have a read through these! If anyone is curious to what i had eaten and am worried about it was the tescos finest frozen bourginoun and creamy mash, only allergen stated was milk but it does contain yeast extract which i am aware can be a bit of an odd one. Once again thank you 🙏🏻
    2. Scott Adams
      - Scott Adams replied to MegRCxx's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      How to work through food paranoia

      The short answer is that it would be good for you to learn more about how to read labels, but sticking to looking for "gluten-free" on packaged foods is a great place to start. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.): If you have some time...
    3. MegRCxx
      - MegRCxx posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      How to work through food paranoia

      I have recently started a gluten free diet (waiting for confirmation via endoscope biopsies) I had started to reduce after the biopsy and then had a McDonald’s which confirmed to me my suspicions so decided to go full gluten whilst on holiday as i wanted to enjoy myself, since being back i have noticed that i have got increasingly more anxious due to feeling s...
    4. Scott Adams
      - Scott Adams replied to ValerieC's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guide to colleges for celiac disease

      We've done some articles on this over the years: https://www.celiac.com/search/?q=colleges&quick=1&type=cms_records2 You might also check College Confidential or Reddit’s r/Celiac for firsthand student experiences. Some schools, like the University of Arizona and Oregon State, are known for their allergy-friendly dining halls—calling their nut...
    5. Scott Adams
      - Scott Adams replied to AllyJR's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Gluten free parakeet food

      Most commercial parakeet seed mixes contain gluten-based fillers like wheat or barley, but it is possible to find (or make) a gluten-free alternative. A good starting point is to look for mixes that focus on naturally gluten-free seeds like millet, flaxseed, hemp seeds, quinoa, and buckwheat—just double-check for cross-contamination. Some specialty pet s...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,214
    • Most Online (within 30 mins)
      7,748
    DawnRS
    Newest Member
    DawnRS
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • MegRCxx
      How to work through food paranoia

      By MegRCxx · Posted

      Thank you @Scott Adams!! I will definitely have a read through these! If anyone is curious to what i had eaten and am worried about it was the tescos finest frozen bourginoun and creamy mash, only allergen stated was milk but it does contain yeast extract which i am aware can be a bit of an odd one. Once again thank you 🙏🏻 
    • Scott Adams
      How to work through food paranoia

      By Scott Adams · Posted

      The short answer is that it would be good for you to learn more about how to read labels, but sticking to looking for "gluten-free" on packaged foods is a great place to start. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    If you have some time for a good read, here is chapter 1 of a full book published on Celiac.com that deals with the social aspects of celiac disease:  
    • MegRCxx
      How to work through food paranoia

      By MegRCxx · Posted

      I have recently started a gluten free diet (waiting for confirmation via endoscope biopsies) I had started to reduce after the biopsy and then had a McDonald’s which confirmed to me my suspicions so decided to go full gluten whilst on holiday as i wanted to enjoy myself, since being back i have noticed that i have got increasingly more anxious due to feeling sick when i had accidentally eaten some on holiday. And not im reading labels worrying if everything doesnt state is gluten free but the ingredients look like they check out may still have gluten in.  Im panicking myself making myself feel worse and seem to be at a bit of a loss, i dont know anyone else with coeliac disease and am finding it all quite overwhelming. any advice is greatly appreciated:)
    • Scott Adams
      Guide to colleges for celiac disease

      By Scott Adams · Posted

      We've done some articles on this over the years: https://www.celiac.com/search/?q=colleges&quick=1&type=cms_records2 You might also check College Confidential or Reddit’s r/Celiac for firsthand student experiences. Some schools, like the University of Arizona and Oregon State, are known for their allergy-friendly dining halls—calling their nutrition services directly can give you specifics. If you’re touring campuses, ask about dedicated prep spaces, ingredient labeling, and student support groups. A guide focused solely on this would be so useful—maybe someone here has found one?
    • Scott Adams
      Gluten free parakeet food

      By Scott Adams · Posted

      Most commercial parakeet seed mixes contain gluten-based fillers like wheat or barley, but it is possible to find (or make) a gluten-free alternative. A good starting point is to look for mixes that focus on naturally gluten-free seeds like millet, flaxseed, hemp seeds, quinoa, and buckwheat—just double-check for cross-contamination. Some specialty pet stores or online retailers (like Chewy or Amazon) may carry gluten-free options if you search carefully. If you’re open to DIY, you could blend your own mix using safe seeds and supplements. Just avoid any processed pellets or mixes with unspecified ‘grain products.’ Have you asked your vet or an avian specialist for recommendations? They might know of niche brands. Wishing you and your parakeets the best—hope you find a great solution.
×
×
  • Create New...