Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Heredity


jmcbride4291

Recommended Posts

jmcbride4291 Contributor

I have posted a few query's and have alot of questions. I have never felt so lousy in my life. From having no energy, a throbbing intestine, dry skin, blurred vision, and feeling like I am be eaten alive, now I am worried about my children. I have read that tests are not accurate but expect that my children may be subject to this. One's liver readings are high with no Dr. with an answer. Two have attention problems in school. When my first was born, he had severe colic and could not keep formula down. He also was diagnosed lactose intolerant at one time. They are just kids but their behavior is extreme at times and do have social issues. Is there a 100% way to actually get them diagnosed? Can celiac also cause weight gains for no good reason?I have had several Celiac indicators in my life now that I look back and my mother had epilepsy, thyroid problems, and she died young from stomach cancer. My grandmother had RA, Thyroid issues. To make matters worse is my wife gets nausious alot, teeth enamel problems, hair loss, orthopedic problems, skin issues, etc. Her mother and sister share fiber myalsia, colitis, skin problems, orthopedic issues, etc. I do not want to sound paranoid or go off the deep end. These are all classic indicators from what I have read and I am quite concerned. Any help will be very appreciated, Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shayesmom Rookie
I have posted a few query's and have alot of questions. I have never felt so lousy in my life. From having no energy, a throbbing intestine, dry skin, blurred vision, and feeling like I am be eaten alive, now I am worried about my children. I have read that tests are not accurate but expect that my children may be subject to this. One's liver readings are high with no Dr. with an answer. Two have attention problems in school. When my first was born, he had severe colic and could not keep formula down. He also was diagnosed lactose intolerant at one time. They are just kids but their behavior is extreme at times and do have social issues. Is there a 100% way to actually get them diagnosed? Can celiac also cause weight gains for no good reason?I have had several Celiac indicators in my life now that I look back and my mother had epilepsy, thyroid problems, and she died young from stomach cancer. My grandmother had RA, Thyroid issues. To make matters worse is my wife gets nausious alot, teeth enamel problems, hair loss, orthopedic problems, skin issues, etc. Her mother and sister share fiber myalsia, colitis, skin problems, orthopedic issues, etc. I do not want to sound paranoid or go off the deep end. These are all classic indicators from what I have read and I am quite concerned. Any help will be very appreciated, Thank you!

You don't sound paranoid at all. But you do sound like you need to be gluten-free as does your entire family.

As far as testing goes...I really don't know what to tell you. Even with all of the symptoms and getting everyone tested, you may never get the diagnosis you seek. So the question really becomes....just how bad off do you need to be before you take control of your own life and trial the diet? The diet isn't particularly harmful to anyone so why not try it out as a family? Truthfully, there is nothing more to lose and a lot to potentially gain. I know that this is a leap of faith for some....but sometimes a little bit of faith goes a very long way. I went down that road with my dd and now I am gluten-free as well...and my husband has no symptoms and he sticks with the diet at home (with exception of the occasional beer). I couldn't begin to count the number of positive things that have happened since we started down this path. It's been life-changing...and mostly in a good way.

Good luck in deciding what to do.

jmcbride4291 Contributor

Thank you very much. Now I need to get everybody on board. I truly agree and feel the same way. More to gain and nothing relly to lose.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,542
    • Most Online (within 30 mins)
      7,748

    Carol Zimmer
    Newest Member
    Carol Zimmer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.