Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mainstream Summer Camp For My 8 Year Old


KristinNeff

Recommended Posts

KristinNeff Newbie

Hi everyone. I am the mum of a newly diagnosed 8 year old and we are slowly adjusting to her new diet (and still making some mistakes!).

Last summer, I sent both my daughters to a YMCA overnight camp for 2 weeks which they loved and would like to send them back. I called the camp and spoke to the head of the kitchen who reassured me that they could work with me to allow my daughter to attend camp. Basically, the hard work will be mine, as I will have to review the menu and provide food substitutions, any special cookware, and detailed food preparation/handling instructions.

I know this is a lot of work, but feel it would be good for my daughter to do the things she loves, if possible.

Am I being overly optimistic?

Has anyone done this successfully?

Any reassurance and/or personal experiences would be welcome.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ryebaby0 Enthusiast

We did this last year, as has another friend of ours who is not celiac, but has several anaphylactic allergies. Most camps are ready to deal with this and we had great success. I met with the cook and camp director prior to my son's arrival so they had an actual person to deal with. At Scout camp, Boy Scouts work the summer in the kitchen so I also made a laminated sheet of guidelines about cross-contamination with my son's photo on it for them to post.

Substituting can be difficult. You'll need to get the camp menu at least a month ahead of time and then check any items that might be a problem. And then hope that the camp does not, in fact, change the menu, which often happens. I gotta tell you that there was virtually NOTHING my son could eat at camp, not even the oj for breakfast. (But he has an egg allergy and was not back to dairy yet) Which brought us to our solution (like you, I was determined to have him go if he wanted to)

Every morning, I drove the 25 minutes to camp and delivered lunch and supper. We actually bought the camp a new microwave and the cooking staff warmed up his food and plated it. I bought some Silk, which they kept in the fridge, marked for him. We took a cooler of "back up" food they kept in the walk-in freezer (but never needed to use). I did read the menu so his food was similar to what everyone else was eating. For breakfast he had a box of Gorilla munch, allergy-free bars, canned fruit, etc. that they brought to the table and he chose from.

He had a wonderful time, was not contaminated or sick even once. (We had packed some GoodNites just in case) The boys in the kitchen were wonderful and very nice to my son, nobody picked on him and none of his campmates cared (except when he had something they wanted to eat, too). If your camp is far, you might consider freezing/labelling meals and having them prep those. I would not take a chance with someone else cooking at a big summer camp -- it's just too hard to guarantee they won't make a mistake, but you will know better once you meet the staff. Our head cook had a niece with celiac and a child with anaphylactic peanut allergies, so they were already doing many good things (disinfecting tables, wearing gloves, etc.)

If you want more specific suggestions, feel free to email me directly. It is a very do-able thing, if you are willing to do all the work, assert yourself, and if your daughter is flexible about what she will eat and how she feels about her celiac. Children nowadays have lots of experience with people who can't eat certain things, and if you treat it matter-of-factly, she will learn to as well....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      1

      Second chance

    2. - cristiana replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    3. - Wheatwacked replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    4. - dsfraley replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,562
    • Most Online (within 30 mins)
      7,748

    DHL1964
    Newest Member
    DHL1964
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Mari
      Ijmartes71 I  son't think you are crazy by any psycoligical s=defination but you are obsessive. you may have considerable brain fog  , a problem that affects celiacs and many other people. . With this obsession you have abd being braun dogged you arw not abke to take any advice people are giving you to help you. To take advice you need to reduce your anxieties abd think more clearly. .Stop taking your herbs for at least one week because some of them will have side ellectsif you take them too long. You can add them back if you don't notice any good changes. Be more careful about being strictly gluten free.  
    • cristiana
      Just to say that I too was hesitant to come off dairy products completely @dsfraley.  Milk, yoghurt and soft cheeses definitely caused bloating.  This bloating gave me rib and pelvic pain, and I remember  the pain was so horrible at times it was almost a sick feeling., kind of like the sort of aches you get with flu.   Milk, yoghurt and soft cheeses also gave me diarrhea, but I noted I could still eat small amounts of hard cheese like cheddar without any issues. Re: milk, my gastroenterologist told me at that time that I could just by lactofree products, and should be fine, but when my gut was still very damaged they went right through me regardless. Thankfully I am able to tolerate milk very well again, although I have noted that too much of it can have a slightly laxative effect. The other thing that made me feel off were heavy iron supplements, which contributed to bloating and diarrhea.  In the end a GP told me to take ferrous gluconate, which is a much gentler supplement, with water an hour before breakfast in the morning.  That was helpful.  If your son is supplementing  (which needs to be under medical supervision as too much iron can cause issues) Floravital fruit syrup is another alternative, but make sure you don't buy Floradix as it contains gluten. Lastly, all oats, soya products and certain pulses also made my stomach sore.  Apart from the oats (which need to be certified 'pure' aka gluten free ones) I was able to eat these things again some months after adopting a gluten-free diet. I would say keeping a food diary might be worth a try, noting any negative symptoms following eating.  Patterns start to emerge which might otherwise be difficult to identify.
    • trents
    • Wheatwacked
      Anyway, I have no problem with grass fed milk other than the price.  Maybe I should move to Ireland or New Zealand.  They're the only countries that don't feed grains to their cows to increase milkfat and milk volume. A side note: I just came back trom the vascular surgeon about the scan of my carotid arteries done last week.  A year ago I had over 90% stenosis in the right artery and 80% in the left.  Tcar procedure done in the right with a stent.  The results today were right side downgraded to Moderate stenosis and the surgeon did not expect to see as much improvement on the left. (untouched). I must be doing something right.  Recheck in six months.   Mucosal reactivity to cow's milk protein in coeliac disease This paper proves that cassein is the protein in cow's milk is the trigger but the study did not differentiate as grass fed milk.  I haven't found any studies specific to grassmilk. The study does not differentiate alpha or beta cassein.  Google says: some clinicians speculate that grain-based proteins could potentially pass into the milk, though scientific studies typically find no detectable gluten or gliadin fragments in bovine milk regardless of the cow's diet. So given alpha cassein as the trigger, grass fed A2 cassein; thought to be easier to digest and less likely to trigger the specific inflammatory pathways associated with standard commercial dairy; plus the omega 6:3 ratio of grain fed milk is 5.8:1 vs grass fed ratio of 1:1, grass fed milk is less inflammatory.  
    • dsfraley
      Thank you all. Regarding dairy products: I think we are getting to the point that we are ready to try anything, but of course hesitant to cut this out entirely too as he's still a 9 year old and adjusting to a diet missing other foods he's used to. We have already kept him from milk (which he loves) to not overdo the dairy, but complete elimination will be tough. I have heard that the milk/casein association has more to do with its effects on an already damaged gut, such that it is more of a problem when healing and not long term: is the idea/suggestion proposed here that casein is triggering the same immune reaction as gluten would (which is a different matter)?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.