Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mainstream Summer Camp For My 8 Year Old


KristinNeff

Recommended Posts

KristinNeff Newbie

Hi everyone. I am the mum of a newly diagnosed 8 year old and we are slowly adjusting to her new diet (and still making some mistakes!).

Last summer, I sent both my daughters to a YMCA overnight camp for 2 weeks which they loved and would like to send them back. I called the camp and spoke to the head of the kitchen who reassured me that they could work with me to allow my daughter to attend camp. Basically, the hard work will be mine, as I will have to review the menu and provide food substitutions, any special cookware, and detailed food preparation/handling instructions.

I know this is a lot of work, but feel it would be good for my daughter to do the things she loves, if possible.

Am I being overly optimistic?

Has anyone done this successfully?

Any reassurance and/or personal experiences would be welcome.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ryebaby0 Enthusiast

We did this last year, as has another friend of ours who is not celiac, but has several anaphylactic allergies. Most camps are ready to deal with this and we had great success. I met with the cook and camp director prior to my son's arrival so they had an actual person to deal with. At Scout camp, Boy Scouts work the summer in the kitchen so I also made a laminated sheet of guidelines about cross-contamination with my son's photo on it for them to post.

Substituting can be difficult. You'll need to get the camp menu at least a month ahead of time and then check any items that might be a problem. And then hope that the camp does not, in fact, change the menu, which often happens. I gotta tell you that there was virtually NOTHING my son could eat at camp, not even the oj for breakfast. (But he has an egg allergy and was not back to dairy yet) Which brought us to our solution (like you, I was determined to have him go if he wanted to)

Every morning, I drove the 25 minutes to camp and delivered lunch and supper. We actually bought the camp a new microwave and the cooking staff warmed up his food and plated it. I bought some Silk, which they kept in the fridge, marked for him. We took a cooler of "back up" food they kept in the walk-in freezer (but never needed to use). I did read the menu so his food was similar to what everyone else was eating. For breakfast he had a box of Gorilla munch, allergy-free bars, canned fruit, etc. that they brought to the table and he chose from.

He had a wonderful time, was not contaminated or sick even once. (We had packed some GoodNites just in case) The boys in the kitchen were wonderful and very nice to my son, nobody picked on him and none of his campmates cared (except when he had something they wanted to eat, too). If your camp is far, you might consider freezing/labelling meals and having them prep those. I would not take a chance with someone else cooking at a big summer camp -- it's just too hard to guarantee they won't make a mistake, but you will know better once you meet the staff. Our head cook had a niece with celiac and a child with anaphylactic peanut allergies, so they were already doing many good things (disinfecting tables, wearing gloves, etc.)

If you want more specific suggestions, feel free to email me directly. It is a very do-able thing, if you are willing to do all the work, assert yourself, and if your daughter is flexible about what she will eat and how she feels about her celiac. Children nowadays have lots of experience with people who can't eat certain things, and if you treat it matter-of-factly, she will learn to as well....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - DebD5 commented on Scott Adams's article in Spring 2026 Issue
      3

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

    2. - Scott Adams commented on Scott Adams's article in Spring 2026 Issue
      3

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

    3. - Scott Adams replied to Jmartes71's topic in Doctors
      7

      Second chance

    4. - Russ H replied to EssexMum's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Concerning GP advice

    5. - DebD5 commented on Scott Adams's article in Spring 2026 Issue
      3

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,647
    • Most Online (within 30 mins)
      7,748

    anonymous54
    Newest Member
    anonymous54
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      I'm not sure why "colonoscopy" keeps coming up for you, again it would be an endoscopy to diagnose celiac disease, but it seems that Kaiser should still have your records. If you were diagnosed by them in the 1990's using a blood test and endoscopy, then you definitely have celiac disease, and hopefully you've been gluten-free since that time. You should be able to contact Kaiser for those records.
    • Russ H
      This sounds like a GP who is ignorant regarding coeliac disease. The risk with consuming gluten for several days is that it triggers the coeliac immune response, leading to raised auto-antibodies and active disease for several months. People may not even be aware of symptoms during this process, but it is causing damage to the body. As trents has said, the gut lining normally recovers on a strict gluten-free diet, and this happens much faster in children than in adults.
    • Jmartes71
      Thats the thing, diagnosed in 1994 before foods eliminated celiac by biopsy colonoscopy at Kaiser in Santa Clara  now condo's but it has to be somewhere in medical land.1999 got married, moved, changed doctor's was with former for 25 years told him I waz celiac and that.Fast forward to last year.i googled celiac specialist and what popped up was a former well known heard of hospital. I thought I would get answers to be put through unnecessary colonoscopy KNOWING im glutenfree and she wasn't listening to me for help rather than screening me for celiac! Im already diagnosed seeking medical help.I did all the appointments ask from her and when I wanted my records se t to my pcp, thats when the with holding my records when I repeatedly messaged, it was down played the seriousness and I was labeled unruly when I asked why am I going through all this when its the celiac name that IS what my issue and All my ailments surrounding it related. I am dea6eoth the autoimmune part though my blood work is supposedly fabulous. Im sibo positive,HLA-DQ2 positive, dealing with skin, eye and now ms.I was employed as a bus driver making good money, I loved it for the few years my body let me do until I was yet again fired.i went to seek medical help because my body isn't well just to be made a disability chaser. Im exhausted,glutenfree, no lawyer will help and disability is in limbo thanks to the lax on my health from the fabulous none celiac Google bay area dr snd team. Its not right.
    • trents
      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
    • Scott Adams
      Here are some articles on cross-reactivity and celiac disease:      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.