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- Scott Adams replied to CeliacNew's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1Newly diagnosed, struggling
First off, I’m so sorry you’ve been dealing with this for so long—being sick for half your life is unimaginably tough, and it’s huge that you’ve finally gotten some answers. A celiac diagnosis can feel overwhelming (especially on top of being vegan!), but it’s also a turning point. Your body is about to start healing, and that’s hopeful! This article has s... -
- Scott Adams replied to sheba's topic in Gluten-Free Foods, Products, Shopping & Medications3
foods
Yes, it is likely your villi healed, but if you are exposed to gluten regularly again the damage will likely come back and cause some potentially serious health issues. -
- CeliacNew posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1Newly diagnosed, struggling
Hey yall! I am dealing with a new diagnosis. I have been sick in some sort of way for 10 years. I am 22. I can’t remember a time in the last decade I have not had some strange symptom. This last year it got way worse. I lost 40 pounds and had to drop out of school. I ended up getting and endo and blood tests and got positive results for celiac. I am looking f... -
- sheba replied to sheba's topic in Gluten-Free Foods, Products, Shopping & Medications3foods
I have been on a strict Celiac diet for 20 years and I tried a deep fried breaded cheese stick that I have been craving for years and no symptoms, then I tried a deep fried breaded fish sandwich and also no problems. I am 74 years old and wondering if after all these years the villa has healed, is that possible? -
- Scott Adams replied to Nimsay's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
Confused about gluten challenge symptoms
Your experience with gluten is actually not unheard of! Some people with non-celiac gluten sensitivity (NCGS) or even celiac disease report an initial ‘honeymoon phase’ during a gluten challenge, where symptoms temporarily improve before worsening again. This could be due to your body adjusting or even a temporary immune modulation. Since you’re only 2.5 w...
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By Scott Adams · Posted
Yes, it is likely your villi healed, but if you are exposed to gluten regularly again the damage will likely come back and cause some potentially serious health issues. -
Hey yall! I am dealing with a new diagnosis. I have been sick in some sort of way for 10 years. I am 22. I can’t remember a time in the last decade I have not had some strange symptom. This last year it got way worse. I lost 40 pounds and had to drop out of school. I ended up getting and endo and blood tests and got positive results for celiac. I am looking for advice of ANY type. I am vegan so this is a big adjustment to add this to my diet. Thansk fro the help.
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I have been on a strict Celiac diet for 20 years and I tried a deep fried breaded cheese stick that I have been craving for years and no symptoms, then I tried a deep fried breaded fish sandwich and also no problems. I am 74 years old and wondering if after all these years the villa has healed, is that possible?
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By Scott Adams · Posted
Your experience with gluten is actually not unheard of! Some people with non-celiac gluten sensitivity (NCGS) or even celiac disease report an initial ‘honeymoon phase’ during a gluten challenge, where symptoms temporarily improve before worsening again. This could be due to your body adjusting or even a temporary immune modulation. Since you’re only 2.5 weeks into the challenge, it’s possible more symptoms could reappear if you continue. Celiac testing (bloodwork and endoscopy) is most accurate after a full 6 weeks of gluten, so sticking with it for now is wise. That said, your joint/tendon issues (especially the Achilles stiffness) are interesting—they can be linked to celiac disease or other autoimmune conditions (like rheumatoid arthritis or even reactive arthritis). Have you been tested for celiac antibodies yet? If not, that’s the next step. If the tests come back negative, NCGS or another immune-related issue (like FODMAP intolerance or mast cell activation) might still be at play. It’s also worth noting that recurrent miscarriage and elevated liver enzymes can be linked to celiac (it’s often underdiagnosed in women with ‘atypical’ symptoms like yours). But if celiac is ruled out, a rheumatologist or a gastroenterologist who specializes in immune-related GI issues might help explore other possibilities (like Hashimoto’s, Sjögren’s, or connective tissue disorders). Hang in there—it’s frustrating not to have clear answers, but you’re doing all the right things by paying attention to your body and pushing for testing. Keep us posted on how the rest of your gluten challenge goes! -
By Jacki Espo · Posted
Hi there @Pamp8 yes I've had dermatitis herpetiformis and a negative test for celiac and a negative biopsy. I had stopped eating gluten before taking the test. I have had an inconclusive genetic (?) test. I developed the same all body rash. It was one of the worst experiences of my life and I am sorry you're experiencing it. What helped me: 1). I stopped eating oats of any kind. 2). I also took some anti-biotics that were not prescribed for dermatitis herpetiformis but I read they could help. 3). Salty food exacerbates it for me. Now I have a small flare up any time I get cross contamination like from french fries or a shared grill at a restaurant but it's not as bad as it used to be. Wishing you relief soon.
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