Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stressed To The Max And Now A Limping Toddler


mayakeller

Recommended Posts

mayakeller Newbie

i am currently wating for an appt to see the gastro for my 2.5yr old son - accord to paed his bloodwork for celiac was borderline - i think she said his value was 30 or 35??

anyhow - he has ALLOT of the symptoms and we are so concerned for him......and all along he has been saying his leg was sore allot at night but now during the day and now he is limping.....is this common with celiac - from what i have read it can be??

i am so sad for him and i am feeling very helpless.....what can i do??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



fedora Enthusiast

Yes this is definately a symptom

Pain during the daytime is recognized by the medical establishment as NOT being growing pains.

I started having joint pain at 10. It got so bad that at 12 I could not walk around the mall once. It subsided for no known reason until 20. At 20 my shoulder started hurting. My knee started hurting at 28. Now at 32 I am gluten free and my shoulder is much better. so is my knee. I had pretty much accepted I would hurt forever.

My son also has terrible leg pain. Mostly at night but it has happened during the day. I will be taking him off gluten. We have been discussing it(he's 7). He doesn't want his blood drawn and is willing to try the diet. I hope it works!

Blood work can give false negatives, so a borderline result would be convincing for me along with the symptoms. Also blood work gives false negatives in children even more.

I would try the diet. If you get him a biopsy and it comes back negative, I would still try the diet. The biopsies do not always find the damage.

Good luck.

ptkds Community Regular

It could be from the Celiac, but you shouldn't blame every new symptom on Celiac Disease. Other things can cause leg/joint pain. You should really get him checked out by his pedi ASAP. Make sure they do bloodwork (CBC, etc) to check for anemia or other levels that may be off.

Good luck!

itchygirl Newbie

Open Original Shared Link

Well, according to that link limping toddler means panic and run to the doc! :( Looks scary....

I hope they can find out what is wrong.

Ursa Major Collaborator

I had terrible leg pains as a young child. I remember when I was about four that my mother put a child's chair over my legs and put the blanket over that, because having the blanket on my legs was too painful.

All my pains went away (fifty years later) when I removed the foods I am intolerant to.

But it could be something other than gluten (even though with borderline blood work he should probably be gluten-free). My one grandson is obviously gluten intolerant, and he also used to get awful leg pain, from the age of about 2 1/2. Taking the gluten out of his diet stopped him from being so emotional, stopped his diarrhea and helped him gain weight.

But my daughter figured out that his leg pain was caused by red food dye!

My youngest daughter will get terrible stomach pain and vomiting from yellow food dye (she is also gluten and dairy intolerant).

ryebaby0 Enthusiast

My son was first dx with rheumatoid arthritis; the first symptom was a limp and leg pain. It was his rheumatologist who suggested running a celiac screen panel since his arthritis panel was "off" for a solid diagnosis. The limp, joint pain/swelling was gone within a few months of being gluten-free. Of course, it could NOT be related, too -- the pediatrician needs to see him....

jplain Newbie

Has he or anyone else in the family recently had a virus? Post-viral arthritis is one of the most common non-injury causes of limping in children.

My older daughter once had it for a few days. She had no symptoms of a virus, but her dad had been knocked out by a virus the week before. Our ped said her temporary arthritis was probably part of her immune response to the same virus.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    2. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,864
    • Most Online (within 30 mins)
      7,748

    Jojo3
    Newest Member
    Jojo3
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.