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How To Find Extent Of Intolerances?


Spunky007

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Spunky007 Apprentice

I am currently starting a gluten free diet to determine if I have celiacs. [i don't have any way to get testing done, so this is my only way to find out.]

Now, the more I read about this, the more I realize just how complicated this can be! What if my trial makes no difference because I am also intolerant of soy or something?

Will I still see a difference going gluten free, and then be able to find any additional intolerances?

I'm worried I'll end up thinking "oh it must not be gluten" when in reality it was gluten AND something else.


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happypoole Newbie

A Kanesiologist would help in finding out what you are intoletant too and how intolerant you are to certain things. Its really hard to find out what is causing the problems as some things take a long time to have a reaction and also a long time to get out of your system.

lizard00 Enthusiast

If gluten is a problem for you, then eliminating it will help you to feel better. For many of us, our symptoms are multi-layered, and it takes a while to figure it out all out. We want to believe that when we figure out gluten as a cause, it's the end all be all. And sometimes it is, but often it is not.

I started going to a chiropractor in Sept of 07... I was in stage 3 curvature reversal of my neck vertebrae. My x ray looked like I had whiplash. So, my headaches improved... but I was growing more and more fatigued. In Nov, I did an elimination diet and discovered my problem with gluten. I gradually started feeling better, but still something was wrong. A few weeks ago I realized that my allergy to egg whites ALSO caused a headache, so anything with egg white in it was most likely setting me off. Lastly, I discovered that I needed to be on an allergy medicine to control everything else I couldn't. So for the past two or so weeks, I have felt great.

Long story short: The road to feeling better can take many twists and turns. Be ready to experiment with different things and be willing to eliminate certain things to see if you feel better. So, while gluten is not my only problem, it was a major one for me. But had I not discovered it, I probably wouldn't have realized all the other things.

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      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
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      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
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      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
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