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How Do I Do This?


VioletBlue

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VioletBlue Contributor

I have to travel at the end of the month. I've been trying to settle my father's estate for two years now and hopefully this will be the last action I have to take to do it. I have no choice, I have to go. It's about a three hour drive. I'll be staying with friends for five days. They are of course gluten eaters, but they want to be as accommodating as they can; they're bending over backward in fact to be helpful. I haven't been away from home since before I was diagnosed in December 06. I'm literally in a panic about it.

I can take a cooler with me, and other foods and pots and what not. There's a Trader Joe's and a Whole Foods within walking distance of their home. I know intellectually that this is doable, but I can't seem to wrap my brain around it without freaking out. This is pretty far outside my comfort zone right now.

They are dear friends and I also don't want to offend them. They're even putting up with my dog, the 82 pound Shepherd who thinks she's a Pomeranian. I worry about having to say things like "I'm sorry, but I can't scramble eggs in your non-stick frying pan because it's probably contaminated.

I could just use suggestions. Well, tranquilizers would be good too, but I don't think I'm getting those here. I'm hoping that enough common sense people will post with ideas and suggestions from their experiences so that I can alleviate some of the panic. Also suggestions on what to be careful about would be useful too. I so hope TJ's or Whole Foods stocks organic wine. I have a hunch I'm going to need it.

I am gluten intolerant, but also nightshade intolerant, allergic sweet potatoes and yams, to sunflowers and cucumbers and sulfites and sodium nitrites. Obvious snack things tend not to be an option because of the nightshades and sunflower thing, and even gluten-free baked goods are tough because I react to sulfites in cornstarch and most common types of baking powder as well as potato flour and starch.

So any suggestions are welcome.

"My mother always told me, it's okay to play with a man's mind

as long as you put it back where you got it when you're done with it."


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tarnalberry Community Regular

they're your friends. just tell them that it's a stressful time, and that you just don't have the mental reserves to deal with the risk, or even the thought of the risk, of contamination. tell them that you're going to bring your own stuff, to make it easier. tell them - if they seem skeptical - that you realize it might seem a bit paranoid, but that there are only so many things that you can deal with at one time, and dealing with estate stuff is it for this trip, and you'll just be a little bit silly for the trip with your own pots and pans, but that's ok.

kbtoyssni Contributor

If they are insistent on getting you some food, you could suggest them having a few snacks around like fruit or eggs or individually packaged cheese.

Wonka Apprentice

Talk to them about your fears in the same way that you have expressed yourself here (the caring for your dear friends comes out loud and clear). Then bring some utensils and pans from home to enable you to cook without fear in their home.

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
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    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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