Tinglying In Feet And Face

[bisja]

Does everyone here thats had any tinglying feelings neurologic symptoms always shown a vit or min

deficiency or have you had these feelings even though you show no deficiency? Had them leave after being gluten-free?

[Lisa]

Yes, others here have had symptoms such as yours. The neurological symptoms seem to be the last to subside.

[jerseyangel]

I had tingling in my face, lower legs, feet and left arm for about a year before being diagnosed. My left arm also had an "altered" feeling--somewhere between being asleep and tingling. The bottoms of my feet would have sudden, stabbing pain.

I didn't have any testing for deficiencies, but these symptoms did resolve after being on the gluten-free diet. The relief was gradual over months. I'll be gluten-free 3 years in June, and I still have a bit of numbness on the left side of my face at times, but that's it.

[bisja]

Did any of you also suffer like chronic fatigue? I have one better day do some house cleaning and the next day feel terrible sometimes for days after feel terrible? Just wondering if the gluten can do alot of this. I also have alot of muscle pain.

[jerseyangel]

Did any of you also suffer like chronic fatigue? I have one better day do some house cleaning and the next day feel terrible sometimes for days after feel terrible? Just wondering if the gluten can do alot of this. I also have alot of muscle pain.

Yes--fatigue is a very common symptom, and it can persist for a long time even after taking gluten out of the diet. Muscle pain is also a symptom.

[bisja]

This is all so crazy I am 54 years old and had stomach problems on and off all my life but the last 2 years have been the worst, I was very anemic was blamed on the change of life, then got mononucleosis, then said I had Lyme Disease on abx for 6 months now off that for a week and a half sent in tests to eneterolab and found out I have a celiac gene and a gluten sensetivity gene, still have these symptoms will go to my reg doc April 16th but do not want tunnel vision being put on Lyme as was already told to me the Lyme was causing my stomach problems and it deffinately wasn't the cause for me. I am hoping my immune system will get much stronger now that I get the gluten out and the dairy. This was the test results I got back then they explained each one.

A) Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value

Fecal Antigliadin IgA 17 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 10 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)

Fecal anti-casein (cow's milk) IgA antibody 10 Units (Normal Range <10 Units)

HLA-DQB1 Molecular analysis, Allele 1 0201

HLA-DQB1 Molecular analysis, Allele 2 0202

Serologic equivalent: HLA-DQ 2,2 (Subtype 2,2)

They said no malabsorption problems guess thats why I was wondering if anyone had these problems from gluten even without vit min probs.

[ravenwoodglass]

This is all so crazy I am 54 years old and had stomach problems on and off all my life but the last 2 years have been the worst, I was very anemic was blamed on the change of life, then got mononucleosis, then said I had Lyme Disease on abx for 6 months now off that for a week and a half sent in tests to eneterolab and found out I have a celiac gene and a gluten sensetivity gene, still have these symptoms will go to my reg doc April 16th but do not want tunnel vision being put on Lyme as was already told to me the Lyme was causing my stomach problems and it deffinately wasn't the cause for me. I am hoping my immune system will get much stronger now that I get the gluten out and the dairy. This was the test results I got back then they explained each one.

A) Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value

Fecal Antigliadin IgA 17 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 10 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)

Fecal anti-casein (cow's milk) IgA antibody 10 Units (Normal Range <10 Units)

HLA-DQB1 Molecular analysis, Allele 1 0201

HLA-DQB1 Molecular analysis, Allele 2 0202

Serologic equivalent: HLA-DQ 2,2 (Subtype 2,2)

They said no malabsorption problems guess thats why I was wondering if anyone had these problems from gluten even without vit min probs.

Although your malabsorption levels are good that doesn't always mean that there are not deficiencies as the fecal fat score measures the amount of fat that is in your stool not the vitamin and mineral levels. You may want to get a good sublingual B12, that will help resolve the nerve issues more quickly.

[bisja]

Although your malabsorption levels are good that doesn't always mean that there are not deficiencies as the fecal fat score measures the amount of fat that is in your stool not the vitamin and mineral levels. You may want to get a good sublingual B12, that will help resolve the nerve issues more quickly.

thanks I was wondering about that fecal fat score as I eat very low fat meals as always get such bad heartburn from anything fatty would that make a difference in that test? Also what brand of sublingual B12 do you recommend? Plus how accurate do you feel the blood tests are they use to check for vit. min. deficiencies I have heard some people say that they are not that accurate.

[ravenwoodglass]

thanks I was wondering about that fecal fat score as I eat very low fat meals as always get such bad heartburn from anything fatty would that make a difference in that test? Also what brand of sublingual B12 do you recommend? Plus how accurate do you feel the blood tests are they use to check for vit. min. deficiencies I have heard some people say that they are not that accurate.

I take the Country Life vegetarian sub-lingual B12 with folic acid. There are other good brands also but I like the Country Life myself. I also use Royal Jelly (from bees) which has some B12 in it also and that seems to help my appetite quite a bit.

As far as the accuracy of the blood tests for levels folks are right about them not being a great tool, especially the B12 levels which can be bottoming out for quite a while before it shows up in the tests. However they can be useful when it comes to assessing how well we are healing if the tests are run when we first start the diet and then rerun at 6 months and a year postdiagnosis.

As to the fat and heartburn issue, your celiac could be impacting the function of your pancreas and or gallbladder. You may very well find after being gluten-free for a few months that high fat foods no longer cause the distress you are having now. I always thought I couldn't handle spicey foods, a spicey burrito or taco would lead to hours of pain, it turned out it wasn't the spice it was the poison it was wrapped in. I now enjoy a lot of foods that I couldn't eat prediagnosis, as long as they are gluten-free. I can't say for sure that will be the case for you as we are all different but you may be pleasently surprised after you have throughly healed.