Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could I Be Caseinintolerant?

Blondie

By Blondie
in Coping with Celiac Disease

Recommended Posts

Blondie Apprentice
Blondie
Posted

Alright. So by now I'm a little more than 6 months gluten-free. I've improved dramatically, gained about 10-15 kg, I'm able to work and perform hard physical tasks. I've also been lactose-free for a while, but now I seem to tolerate moderate amounts of lactose.

Still, some symptoms have not yet fully subsided. Symptoms such as moderate anxiety, brainfog and some tiredness.

I've tried a casein-free diet on 3 occasions now. Both at about 1 week with no apparent improvement.

So my question is, how long does one need to be casein-free to improve? And what symptoms would be likely if I am indeed casein-intolerant?

Enterolab is not an option by the way.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MELINE Enthusiast
MELINE
Posted

Hello....

well for me casein intolerance symptoms were: extremely severe abdominal pain, bloating and gas.

But it went away immediately.I mean if I had casein on sunday, I had the symptoms on sunday and on monday I was just fine. But that was for me.....

Maybe you have some other food intolerances that you cannot even imagine (my tests gave me 40 no-no foods..). Or maybe you are by accident getting some gluten. Have you checked your cosmetics? Or there is a chance that you need more time. I've read that there are some people who keep on having symptoms after a year or two. I hope that is not your case and that you soon start feeling better.

I have no idea what enterolab is......

Ursa Major Collaborator
Ursa Major
Posted

The symptoms you describe could be caused by soy, or nightshades (potatoes, tomatoes, pepper, eggplant) or maybe eggs, or even rice!

But the most likely suspects are soy and nightshades. Why don't you take soy out of your diet and see if it makes a difference? If after two weeks you don't notice an improvement, try something else.

If you can't figure it out this way, you may have to do an elimination diet, where you eliminate ALL the possible suspects, and then add them back in one at a time, to see which one(s) are a problem. Because it could be more than one!

So, dairy isn't ruled out yet, either. Because if you are intolerant to casein and soy, your symptoms wouldn't go away by just removing one of them.

Mom23boys Contributor
Mom23boys
Posted
So my question is, how long does one need to be casein-free to improve?

It takes a couple months (more or less) to get most of it out of your system.

Symptoms will vary...it can be tummy trouble, mood swings, skin problems, brain fog...

Blondie Apprentice
Blondie
Posted
  • Author

Bump

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents commented on Dr. Ron Hoggan, Ed.D.'s article in Winter 2005 Issue
      1

      New Data on Used Oats

      Thoughtful article. For me the most valuable element of this article is the discussion of IELs. We have many posts on celiac.com from people who have all the symptoms of celiac disease but whose biopsies show no other irregularity than IELs. Perhaps we should be taking that more seriously.
    2. trents
      - trents replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      25

      Blood results

      Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour...
    3. Heatherisle
      - Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      25

      Blood results

      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose i...
    4. DAR girl
      - DAR girl posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Celiac and allergic to common subs and adds in prepared foods

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats.
    5. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Doctors
      1

      Disregarded

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,178
    • Most Online (within 30 mins)
      7,748
    Stephanreyes242
    Newest Member
    Stephanreyes242
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Blood results

      By trents · Posted

      Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour (in the U.S. at least) so when the switch is made to gluten-free facsimile foods, especially if a lot of processed gluten-free foods are being used as substitutes, vitamin and mineral deficiencies can result. There is also the possibility that she has picked up a virus or some but that is totally unrelated to going gluten-free.
    • Heatherisle
      Blood results

      By Heatherisle · Posted

      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
×
×
  • Create New...