Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Aches...........again?


holdthegluten

Recommended Posts

holdthegluten Rising Star

I keep on getting these body aches (flu like) off and aroung my hips and lower body. It feels very similar to the flu, but i have no fever and im not exhausted. I get them like evey other week it seems. What would cause these aches to keep coming back (bacteria, viral?)I cant understand it. It is usually accompanied by some stomach discomfort.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



itchygirl Newbie

How are your Vit. D levels? When my D is really low I get the worst leg pains, cramping.... :( also, has your doc checked you for other causes of leg pain (blood flow issues, arthritis, autoimmune disease...)

MDRB Explorer

Hi!

I usually get aches and pains if I have accidentally ingested some gluten. Last time it happened I found out that a product I use regularly (that used to be gluten free) had changed to wheat derived glucose. Manufacturers can change the ingredients at any time. I had just assumed that it was still gluten free and didn't check.

I think your immunity could be low because of some hidden gluten. try checking your toothpaste, other personal care products and any processed foods you eat that might contain gluten. Check the ingredients lists regularly. Also try upping you vitamins with a good gluten free multivitamin.

Good Luck! :)

jitters Apprentice

I'm very interested in hearing everyone's ideas on this topic because the same thing is happening to me. It almost seems to go in a cycle and starts in my wrists, up my arms, shoulders, and down the trunk of my body. Major chills and painful aches and major fatigue. I've been to the doctor and she sent me to a rheumatologist who of course suggested it is depression and said I need antidepressents. Supposedly my vitamins levels are within normal limits. Whatever the problem is I'm pretty much left on my own to figure it out because I'm tired of the "here she comes again" looks. They must think I'm just nuts!

For now I'm thinking that maybe coffee has something to do with it? Do you drink coffee? I know when I give it up it seems to let up. I agree vitamins may help as well, but it takes some time I think for them to really start working.

tom Contributor

Having been a victim of intermittent symptoms for years AFTER being gluten-free, I have to wonder whether both of you also have other food intolerances, which may turn out to be temporary.

A straightforward way to find out is to keep a food/symptom diary.

Sure makes it easy when faced w/ a "dammit I felt crappy in this same way ~2 1/2 wks ago, too!" situation, and being able to look up what foods may be in common in the days prior. (Some ppl find they have 2 or 3 day delays, tho most reactions are 1 day)

An effective food/symptom diary is made easier w/ simpler foods, as opposed to processed foods w/ 20+ ingred.

But regardless of that, it can be invaluable in figuring out what not to eat.

This scenario of additional intolerances seems very common on this forum.

Best of luck to you both :)

Janeti Apprentice

I completely agree with Tom. For me it seems when my body reacts to a food that I have become intolerant to, it effects the weakest of my joints. These are the joints that have deteriorated from years of being calcium and vit D deficient. I finally went to see a ND, and he has been helping me find out what these foods are, and he has put me on vitamins and probiotics. It has made such a big difference.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,470
    • Most Online (within 30 mins)
      7,748

    Elkay008
    Newest Member
    Elkay008
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.