Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Low Cholesterol?


Guest sriddle78

Recommended Posts

Guest sriddle78

I'm having my blood work for celiac disease next Monday (in one week). I've read a couple different articles on the relationship between not only low blood cholesterol and celiac disease, but low cholesterol and cancer. Anyone know about this?

I'm becoming quite scared. My total cholesterol has dropped from 175 to 122 in about a year. It can't be from weight loss, because I've put on weight (even with the diarrhea and constipation flip flop) in the last year. My doctor said there's nothing to worry about because I'm 26 years old and it's normal to have low cholesterol. All the studies I've read say there's a correlation between cholesterol under 160 and cancer (which my mom was diagnosed with when she was 30 and died of when she was 36). It's not the fact that my cholesterol is now 122, but it's the fact that it's fallen from 175. I've had interim tests where it's been seemingly creeping down along the way (160, 145, etc.). It's just at a shocking level to me now. And my doctor seems to think nothing of it because of my age.

Anyone have any input?

Thank you,

Shannon


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

I don't know anything about this link but I think it's a safe bet you aren't going to suddenly get cancer from low cholesterol.

Or are you saying low cholesterol is a sign of cancer? Well, it's also a sign of possible celiac. My cholesterol has always been 125 to 130. I thought it was good genetics but it turned out it was one of the signals that I wasn't absorbing things (good and bad). Once I went gluten-free my cholesterol climbed up over 200, although it's back down to 180 since I started losing weight and exercising more.

The falling cholesterol is undoubtedly one of the reasons your doctor is testing you for celiac.

richard

Deby Apprentice

I had exactly the same experience as Richard. Very low cholesterol then had it climb to 175 after going gluten-free. Is your doc checking you for cancer? Is you doc saying anything about cancer at all? Certainly if your mother had cancer, I would mention this to your doc, but I would try to be less stressed about the whole thing as added stress can cause its own problems.

Guest sriddle78

Thanks for the quick responses. One article in particular by Elaine N. Meilahn, MD contains the following quote: "...falling levels of cholesterol were linked to an excess risk of hepatic disease and cancer in particular, whereas low, but stable levels over time were not associated with excess risk." The reason I'm scared is because my levels have really fallen. In another article by Gabe Mirkin, MD, he says, "Researchers showed that cholesterols started to fall up to 8 years prior to a person dying of cancer, and those with the greatest fall in cholesterol in a 4 year period were those who were most likely to develop cancer."

Can you see why I'm scared? :unsure:

I can't wait for my doctor appointment Monday. I called to see if I can get in earlier, but no luck.

Thanks again,

Shannon

Deby Apprentice

People who have undiagnosed celiac disease get cancer, colon cancer and non hodgskins lyhmphoma (spelled right???) That may be a factor in those studies since a drop in cholesterol is a common sign of celiac disease.

lovegrov Collaborator

But how high is the risk after the increase? People with untreated celiac have an increased risk for non-Hodgkins lymphoma, which always scares people to death, but even after the increase the risk is still fairly tiny.

richard

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,198
    • Most Online (within 30 mins)
      7,748

    Jamie0230
    Newest Member
    Jamie0230
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
    • Ginger38
      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • JForman
      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
×
×
  • Create New...