Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Your Ideas


holdthegluten

Recommended Posts

holdthegluten Rising Star

I thought maybe you could help me figure ot what is wrong with me......you all are very knowledgeable and your insight might be very helpful.

When i wake up i feel hungover and really tired. I have had upper abdominal tenderness on my right side along my ribcage. have burning eyes a lot of the time and nausea usually just right when i wake up. When my stomach feels real sore i have a really dry mouth. My legs feel weak and stiff off and on, stiff neck and if i overexert myself, my stomach will get really tender (in the area of the liver). My thyroid has gone from 1.3 to 2.16 and i have an elevated liver enzyme of 52 (ALT) and all of the other enzymes are on the upper normal. I do have an H.Pylori infection (Biohealth) and abundant E. Coli. I am worrried if my liver is in danger. My ALT went from 26 to 52 in about 6 months and my liver is always really tender. I eat extremely simple and clean, so gluten is most likely not the problem. Before all of these problems started, even celiac disease, I got really sick where i was vomitting and pooping blood. I went to the hhospital and the bleeding stopped and they said i had the stomach flu. I have never been the same since. My brainfog has improved, but my body feels beat down. Im only 27. The best way i can describe how i feel is toxic. My eyes are always red and irritated, dry mouth, nausea, weak, upper abdominal tenderness (worse on empty stomach), moody. And my adrenals are out of whack. High cortisol in the morning and night, but normal in the day. Cortisol/Dhea ratio 9:1. Please help


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Janeti Apprentice

Hello Wayne,

I have been reading your posts for a while now, and I feel so bad for you. Alot of what you said, is the way that I feel. Have the Drs ever checked to see if your gallbladder is still functioning? I know that when I was at my sickest, my liver functions were abnormal, and within the following months, it was removed, but....I still didn't feel better. I recently started seeing a ND, who I think has helped me to some degree. I am still loaded with fungal overgrowth and it is doing a number on my entire system.

Have you ever been tested for that? It seems like something toxic is pouring into your system and making you feel like crap...And I know, you're scared and fustrated. I get the weakness in my legs at times, muscles pains, tenderness in my abdomen. Do you have any Dr at this point that you think might be able to test you for foods that you might be allergic to? I hope you get some answers soon, and that you'll be on your way to feeling better. :)

AndreaB Contributor

H pylori can do a number to you along with ecoli. Also, when your body is overun by something it gives other things that may have been held in check the opportunity to proliferate.

I really recommend coming over to the OMG I Might Be On To Something thread and posting your story there. Some there have had h pylori and can see if their symtpoms match with yours or not. There are so many variables it could be or it might just be these two things you're dealing with.

Sounds like you need liver support. A good naturopath/holistic doctor or LLMD will be able to suggest what would be best.

I would also recommend muscle testing if you aren't against alternative treatment......in particular one called ART (autonomic response testing). If you are in the west it would be pretty easy to track down someone who does that, I'm guessing your in the SW or south midwest by an earlier picture you had. ART will tell you what your stressors are at this time and also what will be most effective in dealing with and supporting the body while treating it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to science enthusiast Christi's topic in Coping with Celiac Disease
      1

      Sugar intolerance 10 years into gluten-free diet

    2. - science enthusiast Christi posted a topic in Coping with Celiac Disease
      1

      Sugar intolerance 10 years into gluten-free diet

    3. - trents replied to Healthierbody2026's topic in Introduce Yourself / Share Stuff
      1

      New at gluten sensitivity

    4. - Healthierbody2026 posted a topic in Introduce Yourself / Share Stuff
      1

      New at gluten sensitivity

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,462
    • Most Online (within 30 mins)
      7,748

    jjwejackso
    Newest Member
    jjwejackso
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @science enthusiast Christi! I don't have a problem with disaccharides but I do with polysaccharides and complex carbohydrates which are so common in many gluten free processed foods. Gar gum, xanthan gum, pea fiber, chicory root, inulin etc. All those "prebiotics". 
    • science enthusiast Christi
      Hey Celiac friends,  I'm wondering how weird I am. About a year ago, I started getting bloated all the time and having extremely smelly gas. Lots of it. I had to avoid people, keep windows open, etc. It really upended my life in a somewhat horrifying way. I figured out that if I didn't eat any sugar, the symptoms mostly resolved. With more experimentation, I found out that I'm intolerant to any disaccharides (things with sucrose, maltose) and some starches. I've since figured my small intestine stopped making some digestive enzymes. Since Celiac causes the immune system to attack the small intestine, I wonder if I was getting low-level gluten contamination from my environment. (My family eats gluten in our home, and I have to use a shared kitchen at work for lunch.)  I am apparently among the 2% of Celiacs who also have a similar reaction to soy. I've been avoiding both gluten and soy for over a decade now, but sometimes you just get poisoned. For example, I love my houseplants and bought an insect-preventing spray online. After spraying it on all my houseplants, I found out it has soybean oil. Sure enough, two days later I was sick. Soy is such a big ingredient used in everything, I doubt it's possible for me to avoid it completely. Everyone uses lotions with soy on their hands, so every doorknob and switch and item I touch is risky for me.  I was just wondering, has anyone else had carbohydrate intolerance after or related to Celiac? My doctor doesn't know anything about it, especially since I can still digest lactose. Wondering if there are other people out there with similar stories. If eating was complicated before, now it's a bit crazy to be honest.  Thanks, Community! 
    • trents
      Welcome to the celiac.com community, @Healthierbody2026! Just let me check something with you because there is still much confusion in the general population regarding the terminology associated with gluten disorders. You say you have recently been diagnosed with gluten sensitivity. Do you mean NCGS (Non Celiac Gluten Sensitivity) or Celiac disease (aka, "gluten intolerance")? The symptoms of these two conditions overlap. Celiac disease has an autoimmune base and so, there are tests that can be run to detect antibodies in the blood that are produced. Celiac disease does damage to the small bowel lining because of the inflammation present from the autoimmune attack. This is not the case with NCGS for which there are no tests. Celiac disease must first be ruled out in order to arrive at a diagnosis of "gluten sensitivity". 
    • Heatherisle
    • Healthierbody2026
      Hi I was recently diagnosed with gluten sensitivity I’m very new at this and trying learn everything I can about everything dealing with this any advice suggestions would be appreciated 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.