Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Your Ideas


holdthegluten

Recommended Posts

holdthegluten Rising Star

I thought maybe you could help me figure ot what is wrong with me......you all are very knowledgeable and your insight might be very helpful.

When i wake up i feel hungover and really tired. I have had upper abdominal tenderness on my right side along my ribcage. have burning eyes a lot of the time and nausea usually just right when i wake up. When my stomach feels real sore i have a really dry mouth. My legs feel weak and stiff off and on, stiff neck and if i overexert myself, my stomach will get really tender (in the area of the liver). My thyroid has gone from 1.3 to 2.16 and i have an elevated liver enzyme of 52 (ALT) and all of the other enzymes are on the upper normal. I do have an H.Pylori infection (Biohealth) and abundant E. Coli. I am worrried if my liver is in danger. My ALT went from 26 to 52 in about 6 months and my liver is always really tender. I eat extremely simple and clean, so gluten is most likely not the problem. Before all of these problems started, even celiac disease, I got really sick where i was vomitting and pooping blood. I went to the hhospital and the bleeding stopped and they said i had the stomach flu. I have never been the same since. My brainfog has improved, but my body feels beat down. Im only 27. The best way i can describe how i feel is toxic. My eyes are always red and irritated, dry mouth, nausea, weak, upper abdominal tenderness (worse on empty stomach), moody. And my adrenals are out of whack. High cortisol in the morning and night, but normal in the day. Cortisol/Dhea ratio 9:1. Please help


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Janeti Apprentice

Hello Wayne,

I have been reading your posts for a while now, and I feel so bad for you. Alot of what you said, is the way that I feel. Have the Drs ever checked to see if your gallbladder is still functioning? I know that when I was at my sickest, my liver functions were abnormal, and within the following months, it was removed, but....I still didn't feel better. I recently started seeing a ND, who I think has helped me to some degree. I am still loaded with fungal overgrowth and it is doing a number on my entire system.

Have you ever been tested for that? It seems like something toxic is pouring into your system and making you feel like crap...And I know, you're scared and fustrated. I get the weakness in my legs at times, muscles pains, tenderness in my abdomen. Do you have any Dr at this point that you think might be able to test you for foods that you might be allergic to? I hope you get some answers soon, and that you'll be on your way to feeling better. :)

AndreaB Contributor

H pylori can do a number to you along with ecoli. Also, when your body is overun by something it gives other things that may have been held in check the opportunity to proliferate.

I really recommend coming over to the OMG I Might Be On To Something thread and posting your story there. Some there have had h pylori and can see if their symtpoms match with yours or not. There are so many variables it could be or it might just be these two things you're dealing with.

Sounds like you need liver support. A good naturopath/holistic doctor or LLMD will be able to suggest what would be best.

I would also recommend muscle testing if you aren't against alternative treatment......in particular one called ART (autonomic response testing). If you are in the west it would be pretty easy to track down someone who does that, I'm guessing your in the SW or south midwest by an earlier picture you had. ART will tell you what your stressors are at this time and also what will be most effective in dealing with and supporting the body while treating it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

    4. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

    5. - Scott Adams replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,210
    • Most Online (within 30 mins)
      7,748

    ngeragosian
    Newest Member
    ngeragosian
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.