Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Member


goldshadow

Recommended Posts

goldshadow Rookie
:P:lol: i have to say yesterday i was home from work and i wrote to the forum. i am so happy that i did, this forum is just great for a mom of a celiac or gluten free young adult. i thought i as the mom was going to l it this was the second time in my life some one told me that my child had a chronic illness. I also have an iddm son who was diagosned at 13 yeaRS old and is now 31. my daughter is 29 and just found out she is a celiac. she use to tell me thank god it was not me with diabetes i could never handle it now she has to handle much more. this is hard on both my young adults but even harder for me. so now i have friends to talk to amd hope they do too. my son has never excepted his diabetes and has complications but he is to old and married for me to be there to tell him what to do. i tried but he does not listen. i love both my young adults and hope they will be fine. thank celiac forum for listening to me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MELINE Enthusiast

Lucky kids they have a caring mother. Be strong, celiac is not so so so bad. Everything will look much better in a few months. Once you get no gluten eveyrhing is back to normal (after a while). I have the same age with your daughter. Tell her not to worry, she is going to be just fine. Feel free to ask any questions.

Meline

Ivanna44 Apprentice
:P:lol: i have to say yesterday i was home from work and i wrote to the forum. i am so happy that i did, this forum is just great for a mom of a celiac or gluten free young adult. i thought i as the mom was going to l it this was the second time in my life some one told me that my child had a chronic illness. I also have an iddm son who was diagosned at 13 yeaRS old and is now 31. my daughter is 29 and just found out she is a celiac. she use to tell me thank god it was not me with diabetes i could never handle it now she has to handle much more. this is hard on both my young adults but even harder for me. so now i have friends to talk to amd hope they do too. my son has never excepted his diabetes and has complications but he is to old and married for me to be there to tell him what to do. i tried but he does not listen. i love both my young adults and hope they will be fine. thank celiac forum for listening to me.

Welcome again, goldshadow

Glad to see you are snooping around the site forums. There's even a search thing, where you can pose a question (think at bottom of each posting) and see if it has been potentially answered before. Your children (agree with Meline) are lucky to have a mom so supportitive. But, then again most mom's are.. its our job to be protective so on.

You will find a lot of support here, for yourself and for your daughter. Not to mention a venting ground, when things drive you a bit crazy (from other people's lack or willingness to obtain knowledge. Gluten/Wheat allergy is one the 7 big ones in terms of food allergies. Yet, the world does seem to pay attention more the peanut allergy one. However, even that one, took a long time of advocating for them. I'm sure one day; gluten allergies will be taken as seriously as the peanuts. :) in the meantime there are forums and local support programs in most major cities.

There are few books out there you may want to try: "The Gluten Free Diet by Shelley Case (dietician) and "More than Rice Cakes: A Young Person's guide to gluten free" I believe that the name of the 2nd book. It was written by a college stutdent, who found out she was celiac in her early 20s. Don't forget the public library too, to borrow a few copies.

And agrees with Meline, it will take a while a couple of months before she is completely gluten free. And its not that bad; I've just been at it a month. I still gluten myself a fair bit (not done intentionally) by simply passing my son one of many cookies :rolleyes: and forgetting to wash my hands :D . It does take practice and a lot of common sense. But, we do get there :D

hugs

  • 1 month later...
purple Community Regular

Hi Ivanna, I am new here too. My 19 year old daughter was diagnosed in Feb this year. What an adjustment. Here are some of the good things I see so far. We all eat too much junk and this Celiac stuff makes us choose wisely and eat healthier. We know what we eat b/c we have to read labels and what is in the food we eat and we have to make it from scratch. Less chemicals and preservatives. Less fat from eating fast food. I get to try new recipes that I didn't want to before. My other family members have symptoms and need to be checked now before they develop other diseases. We don't have to waste time, money, suffering b/c of knowing now why they have symptoms, so we can tell the doc what the problem is- no unnecessary surgeries, etc. We can help others from what we have learned. We make new friends and thru them we learn things we never could have before. We are not alone. We can pray for others, cry with them, hug them, share recipes/fears. We have become a family. We learn things fast on this forum that would have taken a life time without it. We are getting help. We are developing compassion. The Bible says to comfort others the way we have been comforted. We can do that! We can share personal things/feelings and others won't look down on us. Our new "family" understands. We are now getting healthier where as before we were getting worse and didn't know it. Praise God!

purple Community Regular

oops, sorry I am new, my message of encouragement was meant for Goldshadow. I feel the way you do. Things will get better, your kids have a loving mother!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      3

      New issue

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      My journey is it gluten or fiber?

    3. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      13

      Insomnia help

    4. - trents replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      13

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,102
    • Most Online (within 30 mins)
      7,748

    Dawn74
    Newest Member
    Dawn74
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Nope its just me because they can eat wheat and when we use same pans I found out last year thanks to you guys and the autoimmune website im learning,we are not to share though clean, same with sponge. I just wish doctors understood. I am with new gi and new pcp but im falling apart because blood work is fabulous.Im so ANGERY.I have reached out to my local representative, in Stanislaus but its just weekly stuff.Im going to need to physical go down there.Any recommendations on what to say and do because this is absolutely ridiculous. If I didn't have my husband though we are really hurting with one income, I would absolutely be one of the homeless population. Thats alarming begging to be heard about a diagnosis that was given as an adult and dealing with this, medical needs to stick to patients regardless of switching insurance or doctor. 
    • knitty kitty
      If you haven't noticed a difference yet, bump up your Thiamax.  Add in another Thiamax with breakfast and lunch.  Increase the NeuroMag as well.  You can add in another Benfotiamine, too.   Thiamine is safe and nontoxic even in high doses.  Taking more is fine. I had to bump mine up several times when first starting.  It's a matter of finding what works for you.  Everyone is different.   Stick with it.  Some of the health improvements are very subtle and gradual.   Keep going!  You're doing great!
    • knitty kitty
      Hello, @hjayne19, About half of the people with Celiac disease react to the protein Casein in dairy the same as to gluten with the inflammation and antibodies and all.  Reacting to Casein is not the same as lactose intolerance nor a dairy allergy.  Damaged villi are incapable of producing lactAse, the enzyme that digests lactOse, the sugar in dairy.  When the villi grow back, the villi can resume making lactase again.  I react to casein. Keep in mind that part of the autoimmune response to gluten and casein is the release of histamine.  Histamine causes inflammation, but it is also powerful excitory neurotransmitter, causing heightened mental alertness.  Histamine release is what causes us to wake up in the morning.  Unfortunately, excessive histamine can cause insomnia.  Our bodies can make histamine, but foods we eat contain different amounts of histamine, too.  Our bodies can clear a certain amount of histamine, but if overwhelmed, chronic high histamine levels can keep inflammation going and cause other health problems.   I got very weary of playing Sherlock Holmes trying to deduce what I was reacting to this week, so I adopted the low histamine version of the Autoimmune Protocol diet, a Paleo diet designed by a doctor with Celiac, Dr. Sarah Ballantyne.  Her book, The Paleo Approach, has been most helpful.   The low histamine AIP diet cuts out lots of foods that are known to be irritating to the digestive tract.  After a few weeks, when my system was calmer and healing, I could try adding other foods to my diet.  It was much easier starting with safe foods, adding one thing at a time, and checking for reactions than trying to figure out what I was reacting to with so many variables.  I learned to recognize when I had consumed too much histamine from different combinations of foods.  Everyone is different and can tolerate different amounts of histamine in their food.  B Vitamins help us make enzymes that break down histamine.  Vitamin D helps regulate and calm the immune system.  Supplementing with Thiamine helps prevent mast cells from releasing histamine.  Keeping a food-mood-poo'd journal helps identify problematic foods.   I hope you will consider trying the AIP diet.
    • trents
      You may be cross reacting to the protein "casein" in dairy, which is structurally similar to gluten. People assume lactose intolerance is the only problem with dairy. It is not, at least for the celiac community.
    • hjayne19
      Hi @knitty kitty  Just revisiting this to get some help. I found after understanding the extent of my anxiety, my sleep got a little better. Flash forward to a few weeks later I have had a few bad sleeps in a row and I feel desperate for a good nights sleep. I understand worrying about it won’t help but one thing I had tied things too was dairy. Initially when I went gluten free I felt great for the first few weeks then started having some stomach pain. So thought maybe I was lactose intolerant. I started eating lactose free Greek yogurt and that did help take the cramping away I guess. Over the last few months I haven’t eaten it every single day and I went a few weeks without it. The last few nights I did have a small amount with breakfast and noticed that was the only new thing I’ve really added to my diet. I had seen a few other posts about this. Is it possible to still react to lactose free? Would this potentially be a dairy allergy? Or something else. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.