Need Help

[muffin2]

Hi. My name is Emily and I have been recently dx with Ciliacs. However I am still not 100% positive this is my problem. I had the small biospy of my small intestine and it was negative. However I had 2 blood test's that I tested positive. Is this possible? I am very new to this and having a hard time finding a doctor that know's anything. I was also having a hard time understanding why I am sooo overweight when I thought people with Celiacs were thin abd I am not. Please help!! Thanks so much!!

[MySuicidalTurtle]

Hello Emily! People with Celiacs come in all shapes and sized. The tests can come back with different results. You should try the diet out and see how you feel!

[celiac3270]

Biopsies are not always accurate. If the doctor selects samples from areas of the intestine that aren't damaged, it can result in a negative biopsy. If you have positive blood results, you almost definitely have celiac.

Though people think of the typical celiac as being the extremely thin person with diarrhea, bloating, gas, etc., that's not actually the most common celiac. Actually, more people are overweight before being diagnosed with celiac and the diet often helps those people lose the weight. Additionally, a majority of celiacs are asymptomatic, which is why so many celiacs never realize they have the disease.

Check out the diet and weight issues section on the board. You'll find that more posts deal with overweight celiac trying to lose weight than underweight celiacs trying to gain

Welcome to the board!

[plantime]

I am overweight and celiac. I never have gotten the diarrhea, instead I get badly constipated. It just depends on how your body reacts to the gluten. Since the bloodtests were positive, my advice is to consider yourself celiac and adhere to the glutenfree diet. Your biopsies being negative only means that no discernable damage has been done yet. An ounce of prevention is worth a pound of cure!

[muffin2]

Thanks for all the great feedback, it is greatly appreciated!!! It is so hard to be 100% gluten free how do you all do it?? I find myself cheating even though I know the consequences will be terrible. If it wasn't for this website I would be so lost. Thanks again!!

[plantime]

Constant vigilance over everything that goes in my mouth is the way. I also have my hubby and kids helping me read labels. Educating them on what I cannot have has been a blessing to me!

[judy05]

Muffin,

If you had been sick for as long as I have you would thank God

that you had something to eat that didn't make you sick. It took me

alnost a year to feel better and I never want to be that sick again.

There are lots of foods to eat. I'm learning more and more every

day. More and more people are being diagnosed every day and

by next January the labels will be much easier to read. You can't feel

sorry for yourself. Think about what you CAN have. Try making

some gluten-free desserts, have a steak and veggies, chicken

and rice, rice cakes with peanut butter. My husband makes delicious

raisin tea biscuits. At Thanksgiving he made me 12 apple pies to

put in the freezer. He is working on a pizza (he used to own a

pizza shop on Cape Cod). I know it will be delicious and he is

also experimenting with bread, but to tell the truth I don't miss

bread, which is the only thing I thought I couldn't live without.

Keep trying, you will feel so much better. I predict by next year

you will be on here encouraging another newbie.

[darlindeb25]

i agree with judy--there is so much out there that we can have--i too fall into that trap of fretting over what i cant have, but all i need do is remember how sick i was and i snap out of it---and muffin i was in that overweight group--well, i still am somewhat--i am in much better shape now--i have lost 60# over the last 3 1/2 years--i never could understand how i could be so sick and still never lose weight--for some reason some of us celiacs's bodies react strangely to gluten--we still dont absorb the vitamins and minerals, but for some reason our bodies feed off of fat and dont lose--i felt like i lived in the bathroom and was so discouraged that not only could i not eat, but i wasnt losing either---unlike judy--i do miss bread--i love sandwiches and i havent found a bread i like and when i do, it usually bothers me in some other way---noodles is another big one i miss, but recently i found tinkyada spaghetti and i do like it---keep trying and yes--go totally gluten free--there is no half way ground for celiacs--we have to be totally gluten-free---deb