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Enterolab Results


Di loves pasta :(

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Di loves pasta :( Newbie

Hello

I am new to this and would love it if anyone can help. Yesterday I got my test results from EnteroLab and was shown to have Fecal Antigliadin IgA 42 (Normal Range <10)

Fecal Antitissue Transglutaminase IgA 31 Units (Normal Range <10)

Quantitative Microscopic Fecal Fat Score 351 Units

These all point to celiac disease correct? I didn't bother getting the gene test since I figured if the results were positive, I would have the gene. Is that correct?

I made an appt with a GI in my area to get a biopsy of the small intestine, but of course they told me the first appointment is a consultation, even though I told them I did the stool sample on my own and cut out the "middle man"

The reason for doing this is that I do not like doctors, for years I knew there was something wrong with me and it took me researching my symptoms and almost losing my mind, to get to an endo and get diagnosed with thyroid and polycystic ovarian disease. I have suffered from ADD and IBS symptoms all my life, but just thought that was normal. Now I see that there is something the matter with me and am just looking for help to see what to do next.

If these test results are positive, is there a good chance that I will have the full blown celiac disease? Should I get my vitamin/mineral levels checked also?

THanks everyone

Diana :blink:


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Nancym Enthusiast

Enterolab doesn't diagnose celiac disease, they diagnose gluten intolerance. Lots of us don't have celiac diagnoses for various reasons but go gluten-free because we *know* how much better we feel without it. You're unlikely to get any GI doctor to acknowledge the Enterolab test because he hasn't published and the "gold standard" is blood tests and biopsy.

If you're interested in getting the full diagnosis then don't go off gluten until all the testing is done. But be aware that there's a lot of false negatives. I'd recommend anyone try the diet whatever the test results show.

lovetocook Newbie
Enterolab doesn't diagnose celiac disease, they diagnose gluten intolerance. Lots of us don't have celiac diagnoses for various reasons but go gluten-free because we *know* how much better we feel without it. You're unlikely to get any GI doctor to acknowledge the Enterolab test because he hasn't published and the "gold standard" is blood tests and biopsy.

If you're interested in getting the full diagnosis then don't go off gluten until all the testing is done. But be aware that there's a lot of false negatives. I'd recommend anyone try the diet whatever the test results show.

I would think the people at Enterolab could help you interpret the results? I haven't been diagnosed either because I don't trust doctors, but I went gluten free and it's not hard and I feel so much better.

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    • trents
      The blood tests you had done are not the main ones. The two main ones are the "Total IGA" (to check for IGA deficiency) and the "TTG-IGA". Current guidelines for the "gluten challenge" when people have been gluten free for a significant time period are the daily consumption of at least10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks leading up to the day of the blood draw. That should give you some perspective.
    • Xravith
      Thank you, really.  I took a test for DGP-IgA and DGP-IgG. Effectively, it is not enough to discard Celiac Disease. I was consuming gluten until then, I only started gluten-free some days ago, when the symptoms became horrible and now I feel considerably better, which is a second confirmation that gluten is the main problem. It's been more than 4 years I have the same suspect, when I first thought gluten was causing me problems, I made a gluten-free diet for a year, I felt really good as never before. However, neither I or my parents were well informed about Celiac disease, so none of us tried to make further exams. My father suffer digestive problems and other members of my family as well. Unfortunately, no one have ever been tested for Celiac disease. I'll have to restart eating gluten in the next weeks, so I can make a serious blood test in laboratory, hopefully between two or three months.
    • trents
      As Scott said, in order for celiac disease testing to be valid, you need to be eating generous amounts of gluten on a regular basis for weeks or months before the blood draw. The blood tests are designed to detect antibodies that the immune system produces in response to the ingestion of gluten. It takes time for them to build up in the blood to detectable levels.
    • Scott Adams
      Based on what you've described, it is absolutely crucial that you pursue further medical exams for Celiac Disease and related conditions with a gastroenterologist. Your symptoms—especially the worsening fatigue, loss of muscle mass, neurological symptoms like migraines, and palpitations, coupled with being underweight—are significant red flags that extend beyond typical IBS. The negative home test is not reliable, particularly given your concern about sample contamination and the fact that you were likely not consuming sufficient gluten at the time for the test to be accurate, which is a common issue. While probiotics like Bifidobacterium Infantis can support gut health, they cannot resolve an autoimmune response to gluten or heal intestinal damage caused by Celiac Disease. Your declining blood test results, even if still "in range," further indicate a trend that needs a doctor's investigation. Please do not hesitate to seek a specialist; a formal diagnosis is the first step toward getting the correct treatment, allowing your body to heal, and finally addressing your weight and overall health concerns. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      I would only add that cross contamination with wheat may still be a possibility, so it's still best to seek out buckwheat that is labeled "gluten-free."
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