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Celiac Disease Effects

Celia the Celiac

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Celia the Celiac Apprentice
Celia the Celiac
Posted

I haven't been on here in forever! Everything's changed. I had to go in and find my password it's been so long lolol

Well, this is the deal....

I don't really feel very comfortable laying everything right now...but I'm having major bloat issues...if you know what I mean. When I say major....I mean....I'm very embarassed to even go to work tomorrow because something happened...that I had no control over...I don't want to spell it out for you guys. I'm practically in tears. Why have I been cursed with this poop! And on top of that...my stomache's stapled and I have stomache dumping syndrome. I'm starting go get very very depressed over all this...

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mftnchn Explorer
mftnchn
Posted

Celia, you didn't mention how your gluten-free diet was going--did you fall off the wagon so to speak, or is it possible you got some inadvertent exposure to gluten? Any changes lately like new medication that you haven't checked?

So sorry you are going through this awful experience.

How long have you been gluten-free? Some people here develop other sensitivities too.

Celia the Celiac Apprentice
Celia the Celiac
Posted
  • Author

I was diagnosed with Celiac two years ago. I've ben gluten free for about a year. We all know it's very hard to stay gluten free and have probably been exposed in some way or another. My stomache bloats so bad at times I can bearly breathe. I'm from Texas. You know, the South. None of the gastro doctors around here know much about Celiac. When I was diagnosed, my doctor just said don't eat wheat barley rye or oats. I mean....that was it. No....this is what's going to happen if...no...the reason you have osteoporosis is because you have celiac...no supplement info...nothing

lizard00 Enthusiast
lizard00
Posted

I am so sorry to hear things aren't going well. :(

My first suggestion is going on an elimination diet- eating only fruits, veggies and meats. No dairy or soy, especially. Those seem to be as common a culprit as gluten.

The second is- if that seems too overwhelming, keep a food journal. Be totally specific about what you ate, even if it was one little piece of something. And keep track of the rxns; sometimes things can be delayed. The important thing is to catch the pattern and do away with the further irritants.

Oh yeah, don't feel bad. I have 3 medical schools around me (one well known around the country)- do you think any of the doctors around here that I've been to know anything about Celiac... yeah, not so much.

gfgypsyqueen Enthusiast
gfgypsyqueen
Posted

I'm right there with ya! I was diagnosed in Georgia. It only took 3 or 4 yrs with active problems to by chance get the right dr, and it still took forever to figure out the problem was Celiacs!

I have had problems in the past and only figured it out after checking every single item in the house! Cleaners, soaps, lotions, bath stuff, make up, food, drinks,....huge phone bill! One company makes a small change and we pay dearly! Maybe something else is getting you sick too?

Have you looked into a kinesiologist (sp?)? They might be able to help find a way to reduce the bloat and get your system under more control for you. It was a huge help for me

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    • Celiac50
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      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
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      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
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      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
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