Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can I Eat Oats?


mtkd

Recommended Posts

mtkd Newbie

i've recently been diagnosed with celiac disease, andam struglling with the diet to say the least! i've heard that oats can be eaten evn though they contain some gluten. my doctor's not sure. does anyone know?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

If I were you, I wouldn't. Especially since you are just going gluten free. Many celiac's can't tolerate oats. It's true, they do not contain gluten, but they usually are contaminated by gluten in processing and will make you sick. If you do eat them, you have to buy special oats that are guaranteed gluten free and they are very expensive. Like I already mentioned though, many celiac's can't tolerate oats anyways, so you would be better off staying away from them until you have healed and are feeling much better. In the beginning, you should stick to a mild diet, give your body time to heal. Whole foods, stay away from processed foods as much as possible. Rice, chicken, potatoes, if you can eat them, veggies--that sort of thing.

home-based-mom Contributor

Not to throw a wrench into the discussion, but I do eat the packets of instant oatmeal from WalMart without problems. Others cannot eat oats at all.

So you answer is a definite maybe, maybe not! :rolleyes:

tarnalberry Community Regular

there are two issues with oats:

1) most commercial oats (including McCanns, Country Pride, and Quaker) have been shown to be contaminated by wheat such that they have gluten levels above 200ppm, which is pretty much universally considered UNsafe for celiacs. so, commercial oats and any general oat containing product ought to be right out.

2) you can get oats made in dedicated fields, harvested with dedicated machinery, and processed and shipped on dedicated equipment. these brands are more expensive and harder to find, but you can get it. BUT, studies have shown that about 10% of celiacs respond with the same immune response to avenin, the oat protein, as they do to gliadin, the wheat protein - because avenin is structurally very similar to gliadin. there is no blood test or other laboratory test that can be run to determine this. you would have to find it out for yourself by eating oats.

in summary - as has been said - maybe/maybe not. you would have to try gluten-free oats for yourself and find out if you're one of the 10% who gets intestinal damage from oats. if you tend to not be reactive to the smallest amounts, I wouldn't advise it, because you might not know. even if you do find you can tolerate them, it's advised not to have more than a 1/4 cup a day.

jkmunchkin Rising Star

As others have said, a lot of people with celiac can not tolerate oats. Personally I can. But that said, I will only eat oats that have been grown in dedicated fields. Most commercial oats (such as Quaker) are grown in shared fields with wheat and therefore can very easily be contaminated.

If you have a fair amount of damage to your intestine you might want to wait a bit before seeing if you can tolerate them.

I get oats from Cream Hill Estates.

Open Original Shared Link

Gluten=bad Apprentice

I get my oats from gluten free.com, they are the Only Oats brand. I think their website is www.onlyoats.ca. They have breakfast blends that cook quickly in the microwave similar to Quaker. Hope this helps.

Guest j_mommy

I eat Bob's Red Mill gluten-free oats. I use them to make cookies and have NOT had a problem.

This is one of those things you have to try for yourself and see how you tolerate them. Make sure they are certified Gluten free though for your first try!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MDRB Explorer
i've recently been diagnosed with celiac disease, andam struglling with the diet to say the least! i've heard that oats can be eaten evn though they contain some gluten. my doctor's not sure. does anyone know?

There has been a lot of debate about gluten in oats, but most celiac references say not to. If you are looking for a breakfast alternative there are some really good rice porridges out there.

gfp Enthusiast
there are two issues with oats:

1) most commercial oats (including McCanns, Country Pride, and Quaker) have been shown to be contaminated by wheat such that they have gluten levels above 200ppm, which is pretty much universally considered UNsafe for celiacs. so, commercial oats and any general oat containing product ought to be right out.

2) you can get oats made in dedicated fields, harvested with dedicated machinery, and processed and shipped on dedicated equipment. these brands are more expensive and harder to find, but you can get it. BUT, studies have shown that about 10% of celiacs respond with the same immune response to avenin, the oat protein, as they do to gliadin, the wheat protein - because avenin is structurally very similar to gliadin. there is no blood test or other laboratory test that can be run to determine this. you would have to find it out for yourself by eating oats.

in summary - as has been said - maybe/maybe not. you would have to try gluten-free oats for yourself and find out if you're one of the 10% who gets intestinal damage from oats. if you tend to not be reactive to the smallest amounts, I wouldn't advise it, because you might not know. even if you do find you can tolerate them, it's advised not to have more than a 1/4 cup a day.

Just to add to this,

It depends on how you personally handle gluten-free.

Lets say your OK with the gluten-free oats... I try and simplfy things into what I can have and what I can't.

I haven't risked/tried oats for one specific reason. Its simpler just to exclude them ... and be done with it. I know myself, if I was to class oats as possibly safe then I'd end up taking chances on brands ...

However, this is how I deal with gluten-free diet. Everyone finds there own way. If yours is similar to mine then allowing any oats might lead elsewhere... (think of it as a gateway food :D )

I also do wonder if the reaction to avenin is consistent in individuals. Do some people always not react or might the same person depending on general health and other things react sometimes?

Many of us have other intolerances because our immune systems are over active. I would think its at least possible that some of us react sometimes and others mostly and some not at all?

  • 2 weeks later...
bakingbarb Enthusiast

I would like to see the info about the tainted oats, do you know where I can find it?

Studies have shown over and over that oats are tolerated by Celiacs. Celiac.com posts them all the time. The tainted part is the ONLY part about oats that worries me. I will not spend the extra money on gluten free oats.

I think just as any other aspect of being gluten free, you have to find what works for you. I went through a period when I didn't eat anything extra, no packaged foods unless they said gluten free on the label. Since I didn't and still don't want to spend a lot of money to be gluten free I don't buy a lot of packed foods for myself (chocolate excluded) but I will spend the money on the flours because I bake my own foods as much as possible. (i need to get a job can you tell!)

After not eating oats for a bit I missed them and put them back in my diet and waited for a reaction. I don't have any to them. But I try to buy a brand that is reputable also. Which is why I want to see the info about McCanns being tainted because I thought they were be a reputable brand and others have said they eat them.

bakingbarb Enthusiast
There has been a lot of debate about gluten in oats, but most celiac references say not to. If you are looking for a breakfast alternative there are some really good rice porridges out there.

Those refrences are outdated. This site posts the studies all the time okaying oats for those with Celiac. We use this site for the forum but don't trust the studies they post?

https://www.celiac.com/articles/21550/1/Ano...ents/Page1.html

"Celiac.com 03/26/2008 - According to the results of a recent study, adults with diet-treated celiac disease show no elevation in anti-avenin IgA by oats."

MDRB Explorer
Those refrences are outdated. This site posts the studies all the time okaying oats for those with Celiac. We use this site for the forum but don't trust the studies they post?

https://www.celiac.com/articles/21550/1/Ano...ents/Page1.html

"Celiac.com 03/26/2008 - According to the results of a recent study, adults with diet-treated celiac disease show no elevation in anti-avenin IgA by oats."

Hi,

Its not that I don't trust the information on this site, actually I have found it really helpful. I think the problem is more geograffic. I have not looked at the articles on this site regarding oats, however I live in Australia and we have an organization called 'the celiac society of australia' that provide a lot of up to date, australia based resources, studies, product information etc. I'm not sure about oats in the US but here we are constantly told that oats DO contain gluten and not to eat them. Furthermore, I have tested this theory for myself and become pretty sick, not as sick as I would have been eating a big chunk of wheat bread, but still pretty sick, sick enough for me to want to stay away from oats. I guess if I were someone wanting to add oats back into my diet, no matter where I live, I would be sure to call the company and ask a lot of questions.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

    2. - trents replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

    3. - lalan45 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      29

      My journey is it gluten or fiber?

    4. - Russ H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Anti-endomysial Antibody (EMA) Testing

    5. - Scott Adams replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Just diagnosed today

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,806
    • Most Online (within 30 mins)
      7,748

    IleneG
    Newest Member
    IleneG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • GlorietaKaro
      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
    • Russ H
      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
    • Scott Adams
      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation from one autoimmune condition can sometimes be linked to or trigger other inflammatory responses in the body. MP, which involves inflammation of the fat tissue in the mesentery (the membrane that holds your intestines in place), is often discovered incidentally on scans, exactly as in your case. The fact that your medical team is already planning follow-up with a DEXA scan (to check bone density, common after a celiac diagnosis) and a repeat CT is a very proactive and prudent approach to monitoring your health. Many find that adhering strictly to the gluten-free diet for celiac disease helps manage overall inflammation, which may positively impact MP over time. It's completely normal to feel uncertain right now. Your next steps are to take this one day at a time, focus on the gluten-free diet as your primary treatment for celiac, and use your upcoming appointments to ask all your questions about MP and what the monitoring plan entails. This dual diagnosis is a lot to process, but it is also the starting point for a managed path forward to better health. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.