Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Diagnosed


minnow

Recommended Posts

minnow Newbie

I am a 45 year old women who has just been diagnosed with Celiac Disease. Can anyone give me advice on what to do....what to eat, to buy, how to restructure my whole life and how I have done things? I need specific names of things you can buy at the grocery that are safe. Pls Help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



minnow Newbie

Hi I was just diagnosed with Celiac. I have no idea what to take what to eat should I take supplements how long untill my abdominal symptoms leave and I feel more normal again? I feel lost and don't know where to start. thx

Lisa Mentor

Welcome to the Club! You have found yourself the best source of Celiac information around.

The best advise I can give you is to start simple. Simple meats, seafood, rice, potatoes, fresh veggies and fruits. Limit your seasonings to salt and pepper until you learn what you can expand upon. Wheat, barley, malt, rye and oats are your enemy.

Your old toaster, chopping block, and scratched pots and pans are subject to serious cross contamination as gluten can hide everywhere.

Anything that you can put in your mouth must be checked for gluten, including your shampoo and lip balm or lipsticks.

If this is overwhelming to you, it's because it is! The beginning is very difficult and the learning curve is steep. With the help of these good folks here, they can teach you everything you need to know. Questions are always welcome.

Recovery is different with every one. For a totally recovery, it took me a full two years, with initial improvement within a month or so. It also is correlated to the level of damage. Good health can be yours again with diligence with the gluten free diet. It will get better and you have come to a wonderful place.

~alex~ Explorer

There's not much I can add to the great advice and information that Lisa posted. You may want to stay away from dairy products for awhile since damaged villi can lead to temporary lactose intolerance. It's not a problem for everybody but might be a good idea if you're still feeling sick on the gluten-free diet.

If you haven't already, you may want to get some blood tests to check for deficiencies like anemia, low B12, etc.

I definitely does get easier. I never thought it would become second nature, but it has!

Lisa Mentor

Here is a list of companies who will clearly list all gluten (as in wheat, rye, barley and malt):

Open Original Shared Link

Learning to read labels will be the key to your success. It does get easier.

AndrewNYC Explorer

Depending on how sick you've been you might, for the moment, consider doing something like the caveman diet (meat, vegetables, fruit) for a while, to allow your stomach to heal. newbies inevitably gluten themselves by accident and it slows down the healing process.

I am a 45 year old women who has just been diagnosed with Celiac Disease. Can anyone give me advice on what to do....what to eat, to buy, how to restructure my whole life and how I have done things? I need specific names of things you can buy at the grocery that are safe. Pls Help.
MDRB Explorer

Hi,

You have come to the right place for information. Have a browse through the posts here and have a look at some other sites. When I was diagnosed I cleared out my entire pantry of anything that contains gluten. I stopped eating most processed food and made everything from scratch. I eat the occasional gluten free corn cracker or chocolate biscuit, but other than that, I don't trust companies to list ingredients properly or to avoid cross contamination.

Try to eat foods that are easy to digest, at least until you heal, flax seed oil is really good for this.

Oh, if you live alone, buy a new toaster. If you live with others don't share the toaster!!!!!

Good luck and welcome :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.