Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Random Celiac/gluten-free Thoughts For The Week...


buffettbride

Recommended Posts

buffettbride Enthusiast

I was shopping in my favorite local health store yesterday, Vitamin Cottage, loading up on my weekly gluten-free specialty stuff. I really love this store. Now that they are keeping Kinnickinnick pizza crust in stock regularly, I have no need to go to Whole Foods. YAY!!!!

Anyway, I was perusing the gluten-free baking aisle yesterday seeing if there was anything new I wanted to try, and just chatting with the lady stocking some Gluten Free Pantry sammich bread. Another shopper was in the aisle, too, and asked a question about spelt flour and how her husband has Celiac Disease. I mentioned that I didn't think spelt was OK and was told specifically for my 10 year old that spelt was a big no-no. She insisted her husband didn't react to it. Que sera sera.

It was easy enough to let go--no use arguing over it, but how frustrating it is when it is so hard to get it right in the first place, to see someone so misinformed. I had a pretty quick learning curve when it came to adapting to gluten-free when my daughter was diagnosed last year. I really feel for those who manage this disease for themselves, on their own, day in and day out.

Second, Hubby and I are big fatty mcfattysons so we started with the South Beach Diet today. We've had success with it in the past, and it is very easy to do since we keep our house gluten-free anyway. We make enough rice for the kids to have w/ dinner, but not for us, and the rest is a snap. There is a great forum, similar to this (I even thought I saw one of the posters here, Lorka, as a poster there as well). There were post afer post about people who no longer had problems with "IBS" or "reflux" when starting the South Beach Diet (which for the first two weeks is almost inherently gluten-free with the exception of non-obvious glutens in things like soy sauce, salad dressings, etc). No wonder they feel better!!!

Just my random thoughts and observations on the day!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ptkds Community Regular

You are right about the spelt thing. It is so frustrating how even those health food store employees tell people tha spelt is safe. When I first started this diet, the local health food store owner said spelt was safe, and then told me her family was gluten-free (as a personal choice) and they always ate spelt. I am so glad I had this community to come to and teach me the real truth!!

buffettbride Enthusiast

The store lady wasn't really saying it was/wasn't gluten-free, but I'm not sure she would have known completely.

It was just frustrating to see someone buying spelt for a Celiac when I know in my heart-of-hearts it is not OK.

GRRRR. Just frustrating because people like that spoil it for everyone else! My SMIL has a friend who has Celiac or gluten intolerance, or something of that persuasion, but she doesn't follow it very strictly, especially when it comes to CC type issues. Well, this poses a problem for ME when SMIL is cooking for my child and thinks because her friend isn't as strict that my daughter doesn't need to be either.

MDRB Explorer

Oh how frustrating to find someone so misinformed.

I found a gluten free vegetarian cookbook the other day, I was SO excited because a lot of gluten free cookbooks have mostly meat based main meals, anyway I flicked through it and noticed that almost half of the recipes had oats in them!!!! I know that there has been controversy over gluten in oats but the book did not even mention that they MAY have gluten.

Grrrr, what annoys me the most is the possibility that someone new to celiac disease would come along, buy the book and just assume that oats are ok!

I'm so thankful for this forum, we may not be doctors but we know our S%#T :lol:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      1

      New issue

    2. - knitty kitty replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Blood Test for Celiac wheat type matters?

    3. - trents replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

    4. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

    5. - Caligirl57 replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,084
    • Most Online (within 30 mins)
      7,748

    BlueIcyRose
    Newest Member
    BlueIcyRose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jmartes71, Sorry you've been feeling so poorly.   Are you taking any medication to treat the SIBO?   Are you taking any Benfotiamine?  Benfotiamine will help get control of the SIBO.  Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks?  Carbon Monoxide poisoning can cause the same symptoms as the flu and glutening.  Doctors have to check venous blood (not arterial) for carbon monoxide.  Are other inhabitants sick, or just you?  Do they leave the house and get fresh air which relieves their symptoms?  
    • knitty kitty
      European wheat is often a "soft wheat" variety which contains less gluten than "hard wheat" varieties found in the States.   In European countries, different cooking methods and longer  fermentation (rising or proofing) times allow for further breakdown of gluten peptides. Wheat in the States is a blend of hard and soft wheat.  Gluten content can vary according to where the wheat was grown, growing conditions, when harvested, and local preference, so a blend of both hard and soft wheat is used to make a uniform product.   I moved around quite a bit as a child in a military family.  I had different reactions to gluten in different areas of the country every time we moved.  I believe some wheat breeds and blends are able to provoke a worse immune response than others.   Since European soft wheat doesn't contain as much gluten as American wheat, you may try increasing your intake of your soft wheat products.  A minimum of ten grams of gluten is required to get a sufficient immunological response so that the anti-gluten antibodies leave the intestines and enter the bloodstream where they can be measured by the tTg IgA test.  Your whole wheat bread may only have a gram of gluten per slice, so be prepared...  
    • trents
      From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound is real. If I were you I would aim at cutting back in weekly increments for two weeks at a time rather than daily increments. So, for instance, if you have been taking 2x20mg per day, the first week cut that down to 2x20mg for six days and 1x20 mg for the other day. Do that for two weeks and then cut down to 2x20mg for five days and 1x20 for two days. On the third week, go 20x2 for four days and 20x1 for 3 days. Give yourself a week to adjust for the reduced dosage rather than reducing it more each week. I hope this makes sense. 
    • knitty kitty
      Talk to your doctor about switching to an antihistamine, and supplementing essential vitamins and minerals.  Dietary changes (low carb/paleo) may be beneficial for you.  Have you talked to a dietician or nutritionist about a nutrient dense gluten free diet?   It's harder to get all the vitamins needed from a gluten free diet.  Gluten containing products are required to be enriched or fortified with vitamins and minerals lost in processing.  Gluten free facsimile processed foods are not required to be enriched nor fortified.  So we have to buy our own vitamin supplements.   Glad to be of help.  Keep us posted on your progress!
    • Caligirl57
      I’m pretty sure they do. I have been on myfortic, tacrolimus since 2021 for my liver transplant and added prednisone after kidney transplant.  I’m going to try to cut back omeprazole to 20 mg a day and then after a week try to stop altogether. Thank you for your help.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.