Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie Requesting Advice


Sunnytrigal

Recommended Posts

Sunnytrigal Newbie

Hi - I just found this forum this evening. I have been gluten free for nearly a month (after being sicker than a dog for the better half of the last year). I suspect there was gluten in the salad dressing at dinner and I immediately had a flare up. Aside from rolling up in a ball in bed for 2 hours - does anyone have advice for getting thru the backlash of my stomach? Any home remedies? Please feel free to point me to an older post, but I've not been able to find advice on this.

Thanks all and I am so excited to feel this support. As you all know, it's an emotional ride to acceptance and I'd appreciate any advice you have.

Thank you, Sarah


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Yellow Rose Explorer

Hi Sarah and welcome. There is wonderful advice on any subject you care to ask about. For me I have found nothing that helps with glutening. :( I just ride it out and grip a lot. Hope you are feeling better and read all ingrediants.

Yellow Rose

Guest j_mommy

I have taken probiotics in teh past. I should take them every day but I am terrible about remembering! They help cut teh length of time if I get CC'd

Welda Johnson Newbie

Hi,

I've learned that once you realize you've been glutened, the best recourse is to just stop eating, find a spot to relax, maybe read a good book or listen to soothing music, and sip soothing tea. The sooner you can let the gluten move through your digestive system the better.

The following morning, try eating fresh pineapple only. It digests any gluten and moves it right out of your body. I often eat fresh pineapple for breakfast and lunch if I feel clogged up. Then try waiting 3 hours before you eat again, and ingest only starchy foods (no fruit or protein). Three hours after that eat your protein. The key is to read each and every label and list of ingredients, then take note of your feelings after eating each and every meal. Not mixing fruit with starches, or starches or fruit with protein, makes life a lot easier.

Have you been told that casein and whey are ingredients you should avoid, as well as maltodextrin and modified food starch? I have to avoid all grains, all milk & dairy, egg whites, yeast and meat, and it has taken years to learn this, usually the hard way, so I hope that you will be blessed to realize quickly how very good you feel when you eat the right foods. Best wishes. Welda

Lisa Mentor

Have you been told that casein and whey are ingredients you should avoid, as well as maltodextrin and modified food starch?

BallardWA Rookie

Hi Sarah,

Having just recovered from an inadvertant glutening, I can tell you that I feel for you. I have been off gluten for 4+ months, and still manage to have unexplained episodes. Drink lots of water, and ride it out. I'm finding that as I am able to identify the symptoms of a glutening earlier, I am more mentally prepared for what follows. Pepto helps me to sleep.

Be Well,

Karen

marisaerin Newbie

Hi Sarah,

The only thing that helped me get through a flare up is Imodium AD(advanced) caplets...that is if youre having diarrhea from consuming gluten. I dont know what i would do without it. Also, I take GI Revive...a supplement which really helps your intestines. I just mix a teaspoon into a fruity drink.

=]


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 5 weeks later...
katebuggie28 Apprentice

I have SEVERE pain, but I do have 2 things that help. #1 peppermint tea relieves it a lot and #2 I lay on my stomach. It tends to hurt worse for a minute or so, but then it begins to become bearable. It takes me 4-8 hours to get through it. :( I won't eat after 5pm in case I have an adverse reaction. I hate having that pain and being up all night. If the pain radiates to your back use a heating pad.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,912
    • Most Online (within 30 mins)
      7,748

    westman3d
    Newest Member
    westman3d
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.