Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gastroscopy Done - Biopsies Taken - Gastric Ulcers Found

toomuchagony

Recommended Posts

toomuchagony Apprentice
toomuchagony
Posted

Hi Folks

So okay, figured I was due to give ya an update on my progress here... and I have a question on what was found during my gastroscopy.

Firstly, I'm doing really good ever since Thurs. April 17th (I marked it on my calendar as the difference from the day prior was miraculous, and I knew I had finally turned the corner towards HEALING at last :D I awoke that morning without what has been my "usual GAS" for the past 4 months, and thru the day it was reduced so that I did NOT have to eat my typical daily "30 Rolaids PLUS 1 zantac 75, and 3 peppermint caps & 3 Phayzme simethicone caps" , and only needed to take the zantac & Phayzyme and about 10 Rolaids that day. AND my D stopped completely and has NOT returned now for a week! So in general I'm thinking that I have actually finally succeeded in ridding my environment of hidden :ph34r: gluten and am actually (at least til my next CC :unsure: honestly GLUTEN-FREE here!

Meanwhile in the "medical dept"... things are slow going due to our crappy health care sysytem in BC, I have had to do a lot of "waiting" through this diagnostic testing process which has made me slightly more cynical of the medical system and it's delivery, BUT none the less, I did have my bloodwork tests done, in March they were "Negative, Iga 2 <20", however I was gluten free for 4 days prior to testing so who knows eh. I also had a "Breath Test for Helicobactor Pylori" which was a negative result at same time. Now I've finally gotten a Gastroscopy done as well on Tuesday, a'course now I have to WAIT another 3 weeks to actually learn the full results of biopsies that were taken, though I did learn (not from Dr but by asking a nurse myself what was found out before leaving!) I do have "Gastric (stomach) Ulcers", which he also took biopsies from and apparently is checking those for both the H. Pylori Bacteria Infection (which my "Breath Test" in March was negative for :blink: and Stomach Cancer as being the "cause" of the gastric ulcers. From my own perspective today, I just can't imagine I would be feeling so much better every day if in fact I was currently dying of Stomach Cancer eh (prognosis & speed not good) so I really doubt that is a cause. Perhaps the bacteria breath test was a false negative, that I'd maybe go for.

So anyhoo, now this has me wondering here... Is it possible my digestive system being so compromised by Celiac for months AND my life being extremely STRESSFUL during the same period of time would or could have contributed to either, "causing ulcers" OR "permitting H. Pylori to overproduce" and cause ulcers. I'm myself not at all convinced that "Gastric Ulcers" were the "entire problem" or the cause of my 4 month long bout of D. Typically from what I've read on them one tends to "vomit" (and I have not and do not have that symptom at all), and no where did I read that D was a usual symptom of ulcers. In the case of H. Pylori Infection certainly that can/does cause D as a symptom as well, BUT then I have to ask eh... "would an H. Pylori infection react POSITIVELY from the gluten-free diet"??? It would seem obvious that my having gastric ulcers would certainly exaserbate my "intestinal healing" if I am suffering prior or already from celiac damage. BUT from view in side of this poor old body, truly the one thing that made a difference to my being sick, consistently and progressively day by day, was/is "NOT eating gluten"! So I sure would appreciate hearing folks thoughts on all this.

AND also btw... one other important (to me) thing... for da past 20 or more years I've had a "itchy rash" which is on my feet, it flares and abates, it has always been diagnosed as "exzema/dermatitis" etc and I have been prescribed "creams" which do nothing at all to either relieve or cure my rash, it does as it does. Well gee go figure huh... since I have become gluten-free - my rash is at least 80% HEALED a first for decades! So hmmm eh, I have a feeling it is a mild form of HD that is on my feet... my Dr says no.

Anyhoo... love to hear what ya'll thinks eh :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nora-n Rookie
nora-n
Posted

The rash could be DH, of course.

I think I have read on the forums that one can have ulcers from gluten.

nora

toomuchagony Apprentice
toomuchagony
Posted
  • Author
The rash could be DH, of course.

I think I have read on the forums that one can have ulcers from gluten.

nora

Hi nora... thanks for yer reply :D

(and thanks fer not giving me a well deserved chibe for transposing the acronym "DH" in my post eh ;)

All I know fer sure about my poor feet is they're remarkably better since I stopped gluten. Guess it could be "coincidence" (though I don't believe in them personally I believe in God), however the fact is that apart from my departure from gluten I have done absolutely NOTHING to "treat" my foot rash, and yet it is "changing". Also, this improvement began to occur nearly immediately after I began gluten free efforts, (though I was a few weeks at least still likely having major CC issues so it was slow then) it definetly however had a distinctly noticeable "raging flare up" in a direct and immediate response to the one particularly bad instance of me glutening myself by licking an envelope. It raged bad a week & half, now today (I think :rolleyes: gluten free) they are once again demonstrating a significant "healing" and importantly (for me) are NOT ITCHING at all... so DH or no, my feet seem to like my current diet eh! :D

Regards my query about the "gastric ulcers" and Celiac... I went to the "online medical encyclopedia" at the "College Of Family Physicians Of Canada" website today and used it to research gastric ulcers, and I noted two things from doing so... firstly, once again there is NO mention what so ever of "D" being one of the "symptoms" of gastric or peptic ulcers, and I most certainly had D occuring spuratically in January and then DAILY ongoing non-stop D from Feb 11 (my birthday wouldn't ya know eh <_< right through until just this past Thursday, April 17th, so a "run" (no pun intended huh) of 66 full days straight. Also, I think notably, one of the chief symptoms of gastric type ulcers is "vomiting", I have never once through all of this done so. My primary symptoms all along have been SEVERE weight loss / GAS / Bloating / CRAMPS / Back Ache / Brain Fog / and D!D!D!D! And ALL of which now since da 17th (prior to my gastric ulcer even being found on my Apr 22nd GI scope) (and a'course since I went gluten free) are absolutely and significantly improved, and in the case of my D it has abated for a whole week now! :o

The second thing I noted at that website I will quote to ya here directly from the page:

"For some people, physical stress (such as being sick for a long time) may help cause ulcers."

So it seems to me that fairly answers my question of whether or not my "Celiac sickness" & "Stress" may be a "cause" of my gastric ulcers. :D Anyhoo... shall have to see what the results are in 3 wks to know more from biopsies. Naturally I'll post an update to this thread when I get them.

ptkds Community Regular
ptkds
Posted

When my youngest dd was 14 months old, she had stomach ulcers. She also tested negative for the H. pylori bacteria. Her gastro told me it was probably from Celiac disease and to remove gluten. We did, and she has done great since! So, I do believe that gluten can cause ulcers in a Celiac, because a 14 month old baby can't be stressed enough to cause ulcers.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet official, the Health Director of...
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac...
    3. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together. Our bodies can make Taurine from meats consumed. Our bodies cannot make Thiamine and must consume thiamine from food. Meat is the best source of B vitamins like Thiamine. Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine...
    4. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      @Jmartes71, I went to Doterra's site and had a look around. The Doterra TerraZyme supplement really jumped out at me. Since we, as Celiacs, often have digestive problems, I looked at the ingredients. The majority of the enzymes in this supplement are made using black mold, Aspergillus! Other enzymes are made by yeast Saccharomyces! Considering...
    5. Scott Adams
      - Scott Adams commented on Scott Adams's article in Additional Concerns
      2

      Gluten Transfer from Biodegradable Tableware: What a New Study Found and Why It Matters (+Video)

      Thanks for mentioning this, and here is an older article on the topic:
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,543
    • Most Online (within 30 mins)
      7,748
    Jeanette K.
    Newest Member
    Jeanette K.
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.