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Wondering

JgeorgeSCR

By JgeorgeSCR
in Coping with Celiac Disease

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JgeorgeSCR Apprentice
JgeorgeSCR
Posted

The more I read here the more I want to know. Especially since my PCP doesn't know.

1.) Can a Gastro. DR. tell if there was damage to villi just by doing endoscope. Biopsy was positive, but after endoscope Dr. said everything looked fine. He said he did biopsy to rule out sprue, but didn't think it was the case. Hopefully that means there wasn't much damage.

2.) My symptoms were stomach growling, stomach pain and hand rash. Never really had much diarrhea. Does does indicate type of damage.

3.) Can stomach growling continue while intestines heal.

Would appreciate any input.

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Ursa Major Collaborator
Ursa Major
Posted
The more I read here the more I want to know. Especially since my PCP doesn't know.

1.) Can a Gastro. DR. tell if there was damage to villi just by doing endoscope. Biopsy was positive, but after endoscope Dr. said everything looked fine. He said he did biopsy to rule out sprue, but didn't think it was the case. Hopefully that means there wasn't much damage.

If there is severe damage and the doctor actually looks at it, sometimes they can tell by just looking.

2.) My symptoms were stomach growling, stomach pain and hand rash. Never really had much diarrhea. Does does indicate type of damage.

No, it doesn't. Some people have no symptoms at all, or just be anemic, yet have completely flattened villi.

3.) Can stomach growling continue while intestines heal.

Would appreciate any input.

Yes, it can take a while for some symptoms to disappear. I still got severe stomach cramps for about a month after going gluten-free.

flourgirl Apprentice
flourgirl
Posted

Hi J, It is my understanding that you can't actually "see" if there is villi damage, though there may be inflammation visible. I think that you need the biopsy to get results, and that there needs to be several biopsies taken as one area may be flattened and the area right next to it may not be. There is plenty of info. out there for your reading pleasure! :P

For me it took about 6 months gluten free before the horrible pain and bloating went away, but I still get the rumble, noise, some bloating etc. It's just not ALL of the time. I have to admit that it took a while to "get in the groove" so to speak, with the diet. I'm still learning! Be patient, in time things will clear up. Some of us take much longer than others.

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