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Still Having Major Hair Loss And Zero Energy...

LisaN

By LisaN
in Coping with Celiac Disease

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LisaN Rookie
LisaN
Posted

I have been gluten free since November 6, 2007. I have been glutened only 3 times since then. I have switched to a gluten free shampoo. I take a multivitamin, biotin, and b-12 daily. I use to have thick, full hair and it has decreased in thickness by over half. What is wrong or what am I doing wrong?

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Nancym Enthusiast
Nancym
Posted

You might want to get your thyroid checked. Hair loss and fatigue are two major symptoms of hypothyroid. Also people with celiac disease are more likely to have thyroid problems too.

CarlaB Enthusiast
CarlaB
Posted

Sounds like thyroid to me, too.

Google Broda Barnes to learn more about subclinical low thyroid.

Be sure they also check your free t3 and free t4. My tests were low across the board, but all in the normal range. I finally got treated based on my low normals and am feeling much more energetic.

My hair is thick again and isn't breaking like it was.

Joni63 Collaborator
Joni63
Posted
I have been gluten free since November 6, 2007. I have been glutened only 3 times since then. I have switched to a gluten free shampoo. I take a multivitamin, biotin, and b-12 daily. I use to have thick, full hair and it has decreased in thickness by over half. What is wrong or what am I doing wrong?

Hi LisaN,

Many things can cause hair loss and low energy. Thyroid, you would need the full panel including free T3 and free T4, iron deficiencies - specifically serum ferritin level. I would also have your doctor check other vitamin levels like all B's, D, E, A, K, magnesium and your iron levels (including serum ferritin).

I'm dealing with this right now and didn't realize how much my hair is starting to come out. My serum ferritin levels and vitamin D levels are extremely low.

Maybe others can chime in with more suggestions.

A multivitamin wouldn't be enough if your very low in any vitamins. It takes large doses to get the levels back to normal, if you are deficient.

LisaN Rookie
LisaN
Posted
  • Author

Thanks everyone. :) I have had my thyroid tested three times. The first time my doctor said that I was on the verge of having hypothyroidism and to come back in 6 months and test again. I did that and she said that my levels were fine, and again the time after that. Iron is fine although I have been anemic in the past. I also tried to get my doctor to test me for vitamin defencies and she said that with the "american diet" it would be almost impossible to have any defencies... I will go back and get tested again but what happens when the doctor says that my levels are normal?

CarlaB Enthusiast
CarlaB
Posted

Have them run another test for free T3 and free T4.

I never tested low .... but I was low normal so we did a trial of thyroid meds .... it made a HUGE difference.

My doctor is holistic. Most conventional doctors probably won't treat unless you actually test low.

Wonka Apprentice
Wonka
Posted
Thanks everyone. :) I have had my thyroid tested three times. The first time my doctor said that I was on the verge of having hypothyroidism and to come back in 6 months and test again. I did that and she said that my levels were fine, and again the time after that. Iron is fine although I have been anemic in the past. I also tried to get my doctor to test me for vitamin defencies and she said that with the "american diet" it would be almost impossible to have any defencies... I will go back and get tested again but what happens when the doctor says that my levels are normal?

Your doctor is not keeping current. People with celiac disease often have malabsorption issues. It's not the food we eat but our ability to absorb the nutrients in our food.

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      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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    • catnapt
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