Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When Will I Feel Better?

mammajamma

Recommended Posts

mammajamma Rookie
mammajamma
Posted

I was just wondering what everyone else's experiences were like... I got the official diagnosis on Thursday and started the gluten-free diet immediately. As of Saturday I already felt some minor chnages for the better (was it all in my head????). Saturday night, all of a sudden, my belly started hurting again. I ate very little today (Sunday) but as soon as I ate some dinner it started hurting again...

when will I start to feel better? Is this typical, or am I doing something wrong? I thought I was being very careful...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


flourgirl Apprentice
flourgirl
Posted

Hi. Some people feel better immediately. Some take months. I think most of us go up and down like a yoyo, especially at first as we learn about the foods, weed out other intolerances, and as our bodies adjust. We need time to heal, time for the body's systems to detox, and to level out with healthier living. You'll probably make mistakes with the diet as you learn about what is safe, what is not, what you can't digest because you're still inflamed. Intolerances other than gluten may be temporary or permanent.

I've been gluten free for 6 months now and am finally starting to feel halfway decent. I was very ill and had a lot of damage, was very impatient for improvement. It's so nice to know that I'm healing and continuing to feel better. On the way I've had depression (both physical and emotional causes), panic over food and eating, lots of doubt.

I hope that you can heal quickly and relatively easily. I think that the best thing you can do for yourself is to read, read, read, ask questions, keep a food diary if you're having digestive difficulties. If your doctor is not up on Celiac disease...then take some info with you on your visits (I do) about testing, about related issues, about anything that is causing you concern. This forum has been a Godsend to me, I hope you make good use of it also. There is a wealth of info here, and many people who have been where you are and are willing to help.

laurelfla Enthusiast
laurelfla
Posted

Flourgirl gave you lots of excellent advice! I would just add to stay away from milk for a little while (some people have trouble handling it when they are healing) as well as things like broccoli that can give you gas... I continued to feel like I looked pregnant after I started the diet and I had to weed out things like broccoli, beans, etc. until my system was doing better. Hang in there! There are much better times ahead of you and we're all here for support!

kenlove Rising Star
kenlove
Posted

It just takes time, not only for the healing process but to get used to the cross contamination issues that can cause the pain and discomfort. Other threads on the forum go into how some of us have had to replace all the kitchen utensils, some pots and pans as well as other items. Even tiny amounts can cause us problems if ingested by accident. If others in your house are eating gluten containing foods than chances are your getting infected by them.

Good luck

Ken

I was just wondering what everyone else's experiences were like... I got the official diagnosis on Thursday and started the gluten-free diet immediately. As of Saturday I already felt some minor chnages for the better (was it all in my head????). Saturday night, all of a sudden, my belly started hurting again. I ate very little today (Sunday) but as soon as I ate some dinner it started hurting again...

when will I start to feel better? Is this typical, or am I doing something wrong? I thought I was being very careful...

mammajamma Rookie
mammajamma
Posted
  • Author

Thanks for the responses everyone, I'm already so thankful for this forum. I had some yogurt for breakfast and was soon doubled over with nausea... however, lunch went down fine, very little dairy... so maybe I will have to watch that for a while. It just stinks that I have to eliminate a safe and comfortable food already... but I will adjust...

kenlove Rising Star
kenlove
Posted

When I first got sick I would throw up every morning. Was pretty sure it wasnt morning sickness considering I'm male.

Doc told me to have a slice of bread to calm my insides. Took them 6 months to figure it all out.

Yeah we do have to eliminate a lot of comfort foods but there are so many new things to try. I never would have had these alternative pastas,flours and grains if I didnt get celiac. It's rather fun to experiment with them.

So you can have fun while you adjust!

good luck

ken

Thanks for the responses everyone, I'm already so thankful for this forum. I had some yogurt for breakfast and was soon doubled over with nausea... however, lunch went down fine, very little dairy... so maybe I will have to watch that for a while. It just stinks that I have to eliminate a safe and comfortable food already... but I will adjust...
ThatlldoGyp Rookie
ThatlldoGyp
Posted
I was just wondering what everyone else's experiences were like... I got the official diagnosis on Thursday and started the gluten-free diet immediately. As of Saturday I already felt some minor chnages for the better (was it all in my head????). Saturday night, all of a sudden, my belly started hurting again. I ate very little today (Sunday) but as soon as I ate some dinner it started hurting again...

when will I start to feel better? Is this typical, or am I doing something wrong? I thought I was being very careful...

Hi, it can take months to feel better sometimes. You may have had an accidental cross contam and ingested gluten. I found that after I went gluten-free, my reaction to gluten was way worse than when I was eating it regularly!

I would really suggest that you drop milk products except yogurt if you generally tolerate it, go on a low fat diet, try to eat mostly cooked veggies, avoid onions and other gassy foods for now. Clean every section of your kitchen, get your own set of gluten free cutting boards, cooking utensils,etc. Toss out or mark any foods that may have been used with gluten products and get your own stuff that is not to be used by anyone eating gluten (think butter, peanut butter, jelly, etc.) Check your handlotion and lipstick, (if you are christian)do NOT eat any communion wafers unless they are gluten-free. (I'm forbidden by my religion to eat gluten products now. Like mostly local foods,kosher,organic,and vegetarian was not enough of a challenge, oy!) Check everything that goes into your mouth, twice. Think whole foods and high quality. Good luck and I hope I helped. Happy Healing!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,948
    • Most Online (within 30 mins)
      7,748
    Stephanie94
    Newest Member
    Stephanie94
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.