Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Am I Hurting


bakingbarb

Recommended Posts

bakingbarb Enthusiast

I have no idea what is going on. I am not getting cc'd so that isn't the issue here, when that happens it is a different pain and only temporary while this is almost daily. When I get cc'd my shoulder joints hurt in a different way.

My knees ache, my wrists ache, my shoulders ache and sometimes my hands, these hurt sometimes but more often then not. My lower back always aches and it goes into the hips and makes it hard to get up in the morning unless I use the heating pad. All of these feel better if I use the heating pad, I don't know if that means anything. As the day goes on I am not as sore and am able to do things but I don't do anything extra. I want to walk but I am afraid it is going to hurt more but walking used to always make me feel better.

My Dr isn't going to be any help on this one unless I go to her and say I think this or this is happening. Its one of those things where I have limited insurance and cannot go find a better Dr. She is ok but knows nothing about the Celiac, although she is fine with me having it, if that makes any sense!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

It sounds like another intolerance to me. I feel exactly like that when eating rice, eggs, dairy or nightshades (all lectin foods). All my joints and my back will ache terribly by the next day when eating those (plus gluten, of course). And my knees and ankles buckle on the stairs and give out on me.

bakingbarb Enthusiast
It sounds like another intolerance to me. I feel exactly like that when eating rice, eggs, dairy or nightshades (all lectin foods). All my joints and my back will ache terribly by the next day when eating those (plus gluten, of course). And my knees and ankles buckle on the stairs and give out on me.

That would figure, potatoes are my go to food.

shayesmom Rookie
That would figure, potatoes are my go to food.

I have to agree with Ursula. Most likely, the pain you are experiencing is coming from another food intolerance. I'd seriously look at nightshades, dairy, eggs and even corn as a culprit.

Have you ever had problems with psoriasis? Many times, psoriasis can turn into psoriatic arthritis and cause all sorts of swelling and pain. A friend of mine spent thousands of dollars getting treated for it conventionally only to find out that it was being triggered by gluten, dairy, corn and all of the nightshades. If she gets even the slightest bit of cc, the joint pain comes back. Otherwise, she is doing great and her latest MRI shows the disease is in remission (an "impossibility" according to her rheumatologist). ;)

ravenwoodglass Mentor

I would agree with the others. I had a problem, for example, with nightshades for a while and it gave the same pain you describe. A really hot shower used to help a bit for me but dropping the nightshades really did the most good. After I was healed up, about 6 months, or so I was able to add them back in with no issues. That may or may not be the case for you, I just wanted to give you a bit of hope that all the increasing restrictions that eliminating stuff gives us isn't always forever. I hope you can figure out what is getting you, sometimes if you can find a good old school allergist or naturopath they can be helpful in setting up an elimination diet with you.

Guest digmom1014

I think that is what is happening to me. My muscles ache a lot especially my legs. I am already dairy and egg free-I am still waiting to hit the 6 mo. gluten-free mark. So, now I'll concentrate on corn and nightshades. Can someone please list the nightshades I should avoid?

Thanks

fedora Enthusiast

I am also in pain. I found the elimination diet overwhelming. I am trying to eliminate one thing at a time, but then succumb. Pizza use to be my favorite food. I can't have gluten or dairy...wouldn't be suprised if tomotoes came next(please, please, please no!!!)

My insurance won't cover anything until I reach a high deductable. So I am trying to figure out the food thing. If it isn't better from that then I am going in for additional testing.

ravenwoodglass, That is hopeful knowing you could bring some things back into your diet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator
I think that is what is happening to me. My muscles ache a lot especially my legs. I am already dairy and egg free-I am still waiting to hit the 6 mo. gluten-free mark. So, now I'll concentrate on corn and nightshades. Can someone please list the nightshades I should avoid?

Thanks

The nightshade foods are potatoes, tomatoes, peppers, eggplant. Tobacco is a nightshade as well. If you avoid nightshades, remember that paprika is made from a pepper and is a no-no, and chili peppers are out, too. ALL peppers are included in that.

My muscle aches were caused by foods high in salicylates, and the joint and backpain, as well as migraines and gastrointestinal problems were caused by lectins.

Here is a link to find out about salicylates: Open Original Shared Link

And wouldn't you know that nightshades are high in both lectins AND salicylates. Plus they contain oxalates, which are bad for people with arthritis and can cause pain. A triple whammy.

bakingbarb Enthusiast

Could it be cabbage? It is the food that I have been questioning lately because when I eat it many times it is coleslaw or corned beef and cabbage. Lets see, every time I have eaten it I have had the big d the next day. I have eaten it in salads a lot including coleslaw and an Asian salad plus cooked with corned beef. So it could be the spuds but I for some reason thought it was the cabbage.

I think I will not eat either for a few days and then try the cabbage and make sure I don't have any spuds. Then I will try this with the spuds and not the cabbage.

I eat spuds much more often then cabbage which is why I was thinking the cabbage, this more intense pain isn't daily although the mild ache is becoming daily.

Ugh the more I try and figure this out the harder it is lol. Ok eliminating for one week then adding back in. Since the reaction is intense in the morning I think I will know as soon as I eat one of them and not the other (hope that makes sense).

Oh and there has not been a day in my entire life that my legs didn't ache BUT this is not the same, this is my knees,my wrists etc. My leg ache has not changed one bit with or without gluten so......I don't know what that means.

ravenwoodglass Mentor
Ok eliminating for one week then adding back in.

This is a good plan but eliminate for at least 2 weeks and when you add the cabbage back in make it JUST the cabbage. Nothing on it. Boil it or eat it raw but eat just that and no other suspect items with it at the meal. Otherwise you don't know if you are reacting to the cabbage or to the dressing or whatever it is in. That should be done with anything you challenge. It should be eaten in 'pure' form.

If you do a true elimination diet you would start with 5 or 6 tolerated foods. You would eat those exclusively with no spices and beverages other than water until you are asymptomatic and then add foods back in one at a time to watch for a reaction. You would add the suspect food in three times a day for a week and then if no reaction you would add that item back into your diet and then add another one. It is a time consuming process but can be very insightful.

bakingbarb Enthusiast

I would flip if I had to do the true elimination diet. I don't think it is the spuds, I had some yesterday and am not in the pain like I was on Sunday and Monday. I had cabbage on Saturday and Sunday in the form of coleslaw. Of course I could consider mayo and carrots and celery and and onions and vinegar lol but I really think it is the cabbage. I bet if I ate some today it would be back tomorrow morning. Actually other then the mayo I had all those foods yesterday, we had scalloped potatoes and cucumber/tomato salad which is dressed with vinegar/oil.

Sometimes I think we just know...

I am going to not eat it for awhile and then add it back in when I want to feel the pain again. Oh ya no that isn't right! Maybe I just won't eat it again. I never would have thought cabbage could be a problem, I mean its so good for us.

home-based-mom Contributor
I never would have thought cabbage could be a problem, I mean its so good for us.

Yeah, right. Like WHOLE WHEAT? :lol::lol::lol::lol::lol::ph34r:

bakingbarb Enthusiast
Yeah, right. Like WHOLE WHEAT? :lol::lol::lol::lol::lol::ph34r:

Oh my.... :rolleyes::lol:;):huh::):blink::D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - daniellelawson2011 replied to daniellelawson2011's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Lab results

    2. - trents replied to daniellelawson2011's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Lab results

    3. - daniellelawson2011 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Lab results

    4. - Joe R replied to Joe R's topic in Related Issues & Disorders
      2

      Immunologist Referral if IgA Deficient

    5. - nanny marley replied to nanny marley's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Help needed


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,694
    • Most Online (within 30 mins)
      7,748

    Flara
    Newest Member
    Flara
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • daniellelawson2011
      Thank you for the welcome and reply. The first test was tissue transglutaminase IGA and it was normal. The second test just simply says IGA and it was 638. You definitely answered my question, it sounds like im negative for celiac since the 1st test was normal, and that another condition has caused the abnormal result of the IGA. That's exactly what I was wondering. Im almost positive I have MS and I've read results are higher like that with early onset. Or it could be IBS. Hopefully the visit with the neurologist will give me even more answers and point to a final diagnosis. I really appreciate you taking the time to reply and for helping. Thank you so much!
    • trents
      Welcome to the forum, @daniellelawson2011! First, we need to deal with terminology here. When you refer to the "ttg" test I take that to mean the ttg-iga. And when you refer to the "iga" test I take that to mean total iga since the magnitude of the score would suggest that. Total iga is not a test for celiac disease per se. It is run in order to check for iga deficiency. If you are iga deficient, then the ttg-iga and other iga tests that are specific for celiac disease will be abnormally low and this would potentially produce false negatives. You are not iga deficient but, rather, your total iga is abnormally high. This can suggest underlying health conditions, some of them can be serious in nature.  https://labs.selfdecode.com/blog/high-iga/ "High IgA usually points to chronic infections or inflammation, though many disorders can raise its levels. High IgA does not cause symptoms. People show symptoms from their underlying health problem." One thing I might add and that is you must have been eating normal amounts of gluten for weeks/months prior to the blood draw for antibody testing. Testing while on a gluten free or gluten reduced diet will not yield valid results. Also, here is a primer outlining the various antibody tests that can be ordered to check for celiac disease:  
    • daniellelawson2011
      After struggling with many different symptoms for years with no diagnosis, I decided to do my own research and I stumbled upon an article about celiac disease. I asked my PCP to order a ttg and iga. The results: the iga was high at 638. The ttg was negative. Of course I will discuss with my doctor, but i would like to hear from people that have went through the process of diagnosis to maybe give me some insight on what this means and where to go from here. Also of note, i had a brain mri which showed white lesions which arent typical at 44 years old. I have many MS symptoms. I go to the neurologist on Tuesday, but just curious if anyone knows if there is a correlation between iga and MS. I appreciate any help! Thanks!
    • Joe R
      Thank you for your advice. I appreciate the help. 
    • nanny marley
      Thankyou so much for your reply I decided to skip the senna has I've already had very loose stools last few days I've cut my portions down on the low fiber diet too and drinking lots of liquid has I just thought it would be wise to listen to myself too I've probably already done wat the senna would of done myself naturally by drinking clear apple juice which if not on the diet I would have to avoid anyways has I don't tolerate many fruit juices so I'm sure I've done the right thing I did try to contact the department on my letter but weirdly enough it was ringing but then after a while saying wrong number 🤷 but again I'm positive I've done the right thing I'm going to take today very lightly too with low portions and more liquids so yes thankyou for that advise I am very nervous but I have had time to think and read other peoples experiences and not all are bad there is some good advise and reassuring information from people who do these all the time so I'm trying my best to be positive so I can at least settle my mind knowing im doing this to help my own health has this year has been a rollercoaster for me cutting out gluten and lactose was a good idea but I still get flare ups and other symptoms so it definitely is worth a check like you said it was the calprotein that prompted the doctor to refer me again thankyou for your reply it's means a lot for someone to take the time to listen and respond and give uplifting advise  especially to me just now has I'm a bundle of nerves inside getting closer to tomorrow prep so thankyou for that 🙏
×
×
  • Create New...