Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Questions About Weird Hungry Sort Of Feeling


Jujbe

Recommended Posts

Jujbe Rookie

I hope this is the right section of the forum to ask this question. If not, please forgive me & help anyways.

This is hard for me to describe but I'll do the best I can. gluten-free eating is pretty new to me so I don't really know what to expect. Only been at it for a couple of weeks but I've been very strict with NO possible sources of gluten in my foods. I was only diagnosed after I developed dermatitis herpetiformis. While I had some symptoms of gluten intolerance before, it wasn't that severe & it never occurred to me that it was from gluten.

When I was younger, till I was in my 40s really, but more so in my 20s & 30s, I was always hungry & ate LOTS! But I stayed very slim. My normal weight for 115 lb at 5'6" tall. For me, that was 'normal' & I felt good at it, not malnourished. I ate like a lumberjack & could out-eat most guys.

Now, I'm in my 50s & my appetite has decreased a great deal. I also weigh more than I ever did but it's only 126 lb. When I ate, I'd feel full for hours. I only ate twice a day - any more & I felt over-stuffed. And both meals were fairly small compared to many others & what I ate like years ago. I couldn't sleep if I ate any more than 4-6 hours before bedtime too. Compare that when I was young to having to get up at night to eat as my stomach hurt so bad from being empty!

When I was young & went too long without eating, I'd feel extremely grumpy & irritable - felt weird too. Sounds like classic hypoglycemic symptoms but my blood glucose always remained about the same - good normal range. I know 'cause my husband had diabetes & I tested mine on the glucometer a number of times thinking that was the problem.

Okay, no more of that feeling as I got older. In fact, I could go most of the day without eating & feel good (not that I would but in rare cases when I had no choice).

So here I am, eating gluten free - same amount as a few weeks ago or maybe a bit more, but I'm getting that same feeling again. Sort of hungry feeling but mostly this weird sensation of emptiness & bit of a headache & maybe a little light-headed. Does this make sense? Is it because the gluten containing food I ate before stayed in my stomach much longer or what? I have no glucometer to check - husband left years ago. Can anyone relate to this or has anyone read of something similar when switching to a gluten-free diet? If anything, since I started a gluten-free diet, I seem to be getting more headaches than before - not real bad but enough that by bedtime, my head's really hurting. It increases in intensity as the day goes one. Is this part of a healing process or what?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest tamedandfoxed
So here I am, eating gluten free - same amount as a few weeks ago or maybe a bit more, but I'm getting that same feeling again. Sort of hungry feeling but mostly this weird sensation of emptiness & bit of a headache & maybe a little light-headed. Does this make sense? Is it because the gluten containing food I ate before stayed in my stomach much longer or what? I have no glucometer to check - husband left years ago. Can anyone relate to this or has anyone read of something similar when switching to a gluten-free diet? If anything, since I started a gluten-free diet, I seem to be getting more headaches than before - not real bad but enough that by bedtime, my head's really hurting. It increases in intensity as the day goes one. Is this part of a healing process or what?

Can I ask how much of the food you eat is sugar and / or starch / carbs? (you might check out candida if you've done lots of antibiotics) i find those foods really increase the feelings of emptiness and urgent cravings--like waking up in the middle of the night with hunger pains-- i know that one! It can either be that you are still not absorbing the nutrients you need--OR, if you are eating lots of sugar and starch, you may have a problem with yeast, in which case--sugar and starch is feeding it and making the problem worse. Yeast can also cause headaches, brain fog, dizzyness, and all kinds of stuff. Check out the OMG thread for tons of great info. it's a bit daunting to navigate, but it's all there! Feel free to ask any more questions if i can be of use.

~Katy

DingoGirl Enthusiast

I can totally relate. Since removing gluten, just over two years ago, I feel hungry much of the time, and noticeably so...... :(

Before eating gluten-free, I, too, was a bottomless pit, and weighed under 120 all my life (as low as 112 for many years, and I am 5' 7"). I never cared much about food........good food, I loved - there were plenty of great bistros around when I was in the wine industry and I ate out frequently for many years (in Monterey). I always, always ate dessert, tons of bread offered at the table, appetizers w/ dinner etc.....never gained weight.

Now - I watch EVERYthing I eat......I make sure to get plenty of proteins, but barely squeak by with enough veggies, and keep carbs low.....I weigh 140 now - consistently - and can't stand it. If I didn't watch what I eat, I'd be a complete cow. I try to eat small meals, frequently.

I"ve come to conclude that it was all the years of mindless, non-weight-gaining eating that has led to my present feelings of hunger.....I would literally eat a whole bag of potato chips in years past and still be a size 2......so I could be quite full due to quantities of food.......but now - this is not the case. If I binge - I pay. Clothes get tight.

I am 46 years old, and have to retrain decades of bad eating habits. If I made chocolate chip/walnut cookies, for example, I could literally eat the whole batch in two days, and not gain weight.

I MISS BINGE-EATING! :lol::(

Jujbe Rookie
Can I ask how much of the food you eat is sugar and / or starch / carbs? (you might check out candida if you've done lots of antibiotics) i find those foods really increase the feelings of emptiness and urgent cravings--like waking up in the middle of the night with hunger pains-- i know that one! It can either be that you are still not absorbing the nutrients you need--OR, if you are eating lots of sugar and starch, you may have a problem with yeast, in which case--sugar and starch is feeding it and making the problem worse. Yeast can also cause headaches, brain fog, dizzyness, and all kinds of stuff. Check out the OMG thread for tons of great info. it's a bit daunting to navigate, but it's all there! Feel free to ask any more questions if i can be of use.

~Katy

Thanks for answering, Katy! All answers are very much appreciated.

No, I'm actually eating less sugar & carbs. Not a lot less but I didn't eat much sugar before either. Still eating my cooked rice &/or potatoes everyday as I LOVE rice & always have. I don't drink pop, rarely drink fruit juices (prefer water when thirsty), don't eat ready-made foods or other foods that may be a source of hidden sugar. Never have. I've been a bit of a 'health nut' (at least to my friends) for most of my life. I used to manage a health food store & even then, I knew lots of the foods sold in them weren't really all that healthy. I do my own cooking from scratch - not hard when you've always done it that way.

Last time I took antibiotics was in the winter of '96. I very rarely get ill so have no need of them except that one time. I only once had a yeast infection & it was then. Took something that cleared it up & it never came back. That doesn't mean I wouldn't have some Candida in my body but it can't be much - unless eating gluten could've fed it? Don't know - can it even if one didn't eat sugar or lots of carbs?

Is it possible that I'm simply eating less total calories? I know you wouldn't know as you can't watch me eat but I wonder if I've cut back the total amount of fats & carbs without realising it. I guess I need to keep a calorie count of what I eat. I just wondered if eliminating gluten might cause the way I'm feeling as part of a healing process.

aikiducky Apprentice

When I first went gluten free, for a few months I really had to take care to eat every couple of hours or I would get symptoms of low blood sugar (light-headedness, headache, nausea).

Eventually it went away and nowadays (three and a half years gluten-free) I can go for seven-eight hours without food if I need to. Though I like to eat so I seldom do... B)

So I think it might be part of the healing process for some people. Also, pre-gluten free, I used to feel a bit bloated all the time, which gave a kind of a "full" feeling. Once that was gone I had to get used to feeling more empty inside in a way, but that was just the absence of bloating really.

Oh, somewhere along the way I went casein free as well, I don't remember if the blood sugar issues resolving coincided with that or not. But I thought I'd mention that just in case.

Pauliina

Guest tamedandfoxed
Thanks for answering, Katy! All answers are very much appreciated.

No, I'm actually eating less sugar & carbs. Not a lot less but I didn't eat much sugar before either. Still eating my cooked rice &/or potatoes everyday as I LOVE rice & always have. I don't drink pop, rarely drink fruit juices (prefer water when thirsty), don't eat ready-made foods or other foods that may be a source of hidden sugar. Never have. I've been a bit of a 'health nut' (at least to my friends) for most of my life. I used to manage a health food store & even then, I knew lots of the foods sold in them weren't really all that healthy. I do my own cooking from scratch - not hard when you've always done it that way.

Last time I took antibiotics was in the winter of '96. I very rarely get ill so have no need of them except that one time. I only once had a yeast infection & it was then. Took something that cleared it up & it never came back. That doesn't mean I wouldn't have some Candida in my body but it can't be much - unless eating gluten could've fed it? Don't know - can it even if one didn't eat sugar or lots of carbs?

Is it possible that I'm simply eating less total calories? I know you wouldn't know as you can't watch me eat but I wonder if I've cut back the total amount of fats & carbs without realising it. I guess I need to keep a calorie count of what I eat. I just wondered if eliminating gluten might cause the way I'm feeling as part of a healing process.

Gluten wouldn't feed Candida unless there was a reason for it to get out of control--then it would, definitely. i would wonder, like Carla said, if you have enough fat in your diet. Avacados are an excellent addition to any salad! :) I would pay attention to making sure you are getting the right proteins an fats. As for healing, yeah, i think that's a valid point-- when your insides have been hurting for so long, it may take them some time to wake up and realize what it's like to be happy and hungry again. And there is a detox period after going gluten-free, I have found, for some people who ate lots and lots of it.

Good luck!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,545
    • Most Online (within 30 mins)
      7,748

    Jem68
    Newest Member
    Jem68
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.