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Dd Still Not Absorbing Nutrients?

ptkds

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ptkds Community Regular
ptkds
Posted

My dd (almost 3) has been having some problems lately with lots of bruising and bleeding gums. One of her blood tests came back abnormal (her PT time was longer than it should have been). So we met with a hematologist today. She is running more tests, but when I asked her what it could be, she said it might be from malabsorption due to her Celiac disease. She said that she may not be absorbing enough Vit. K to produce enough clotting factors.

The thing is, we are really careful about the diet. She has been on it for 1.5 yrs, along with the rest of the family. She very rarely gets glutened. She eats a good variety of food. Could this actually be from malabsorption? She has been doing so great since going gluten-free.

Any ideas?

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jhow32000 Rookie
jhow32000
Posted

Some people don't heal, some don't heal for years. A big problem might be taking her off of gluten and putting her on a gluten free diet that is high in processed gluten-free foods that are hard to digest. I recommend--highly-- the specific carbohydrate diet for her. Basically it cuts out dairy and any carbs that are not monosaccharides. you can google it if you are interested. Otherwise I see no other means of helping her gut heal so she can absorb her nutrients.

jhow32000 Rookie
jhow32000
Posted

That's odd, I thought I had already replied to this post. You absolutely have an option in the Specific Carbohydrate Diet. I recommend it highly. It is a gut healing diet for Celiacs, Crohn's, Ulcerative Colitis and is now being used for Autism and Schizophrenia. It takes all of the hard to digest foods out of the diet and only leaves the very easy ones, simple sugars. I did really well on it. You daughter should not be eating gluten-free processed foods.....these are very highly processed and will be much too hard on her. That is a big mistake alot of people make, going from wheat processed foods to loads of gluten-free processed foods and then acting like they've done themselves a favor. Refined sugars and dairy high in lactose will also be too much for her. You should google 'SCD' and order the book. If you don't want the book there are tons of recipes online, you just need to follow the basic tenants of the diet.

feedmykids Rookie
feedmykids
Posted

So Sorry! I say this a lot, But have you had her tested for Cystic Fibrosis? I have a niece with CF and have had two COusins die from it. I have seen first hand just how similar CF and celiac really are. WE did a LOT of testing with my DD to be sure of her Diagnosis, and we sometimes still wonder. Here are a few of the similarities, THick Mucus, Malabsorbtion, pale skin, growth failure. Does she taste salty? The amount of salt her body is making is a good clue - If she has cF she will taste salty. Our Ped. GI wouldn't see her for celiac until we had her tested for CF first, just to rule it out. HTH.

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