Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Diagnosed With Celiac


wakefield

Recommended Posts

wakefield Apprentice

I was just diagnosed on Friday evening with celiac and am so happy to have found this site. Both my parents have been in hospital for 3 weeks and are very ill so you can imagine my stress level. I had no apparent reason to believe that I had any health issues until I went for a regular physical last week and found out that I was anemic. I have been gaining weight which is most unusual for me and then suddenly last week I lost 18 pounds. Wednesday I had a colonoscopy and endoscopy with biopsy and now I know. I find I am beyond exhausted--which I thought was due to my parents condition--and my heart pounds with any exertion. I am most eager to learn from all of you and have never ever posted on a forum before so I do not know if this is the correct place. I know my diet must change--although I have never eaten that much bread etc. I do wear makeup and am crushed it that is going to be an issue. I have started to read the internet and soap and medicines are also an issue? Thanks in advance for your help.

Wakefield


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Welcome to the board!

Here are some of my favorite resources on the web. There is a LOT of info in these pages. Hopefully they will give you a good start....

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Ingredients and Food Labels

https://www.celiac.com/categories/Safe-Glut...3B-Ingredients/

Open Original Shared Link

wakefield Apprentice
Welcome to the board!

Here are some of my favorite resources on the web. There is a LOT of info in these pages. Hopefully they will give you a good start....

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Ingredients and Food Labels

https://www.celiac.com/categories/Safe-Glut...3B-Ingredients/

Open Original Shared Link

wakefield Apprentice
Welcome to the board!

Here are some of my favorite resources on the web. There is a LOT of info in these pages. Hopefully they will give you a good start....

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Ingredients and Food Labels

https://www.celiac.com/categories/Safe-Glut...3B-Ingredients/

Open Original Shared Link

wakefield Apprentice

I am so sorry. I do not know how to use a forum and I clicked to reply and messed everything up. I can't thank you enough for the list. I will start right now. Wakefield.

Ursa Major Collaborator
I am so sorry. I do not know how to use a forum and I clicked to reply and messed everything up. I can't thank you enough for the list. I will start right now. Wakefield.

No need to apologize. It can be tricky if you have never participated in a forum before. You'll be a pro in no time.

When you click on the reply button that is part of the post window, it will then quote what has been previously said. Which is good if there are several posts, but you want to respond to one post in particular. You can also then edit/take out some of that quoted post, if you just want to respond to part of it.

But you just add what you want to say underneath or above it, and then click on 'add reply'. If you want to see what it looks like and if you have done it right, you click on 'preview' to check if it looks right, and if your links work (if you have added any).

If you don't want to quote anything, you click on the 'reply' button that is farther down (as you have apparently done for the above quoted post).

I didn't follow all of those links, so don't know what advice you got this far.

Just take a deep breath. There is lots of makeup out there that is guaranteed gluten-free. I can't tell you which brands, because I don't wear makeup. But others can help you there. It takes some time to learn how to live gluten-free, but believe me, you will figure it out and soon it will be easy.

In the meantime, the easiest and least stressful way to eat would be to just eat naturally gluten-free foods like meat, vegetables, fruit, fish and eggs. If you have prepared it from scratch, you don't have to worry.

And it might be best if for now you also eliminate dairy, and probably soy, as those can hinder healing.

That must be tough to have both your parents in the hospital at the same time. Are they suffering from the same problem? I hope they will be better soon.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,996
    • Most Online (within 30 mins)
      7,748

    Sasha Bondarev
    Newest Member
    Sasha Bondarev
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JoJo0611
      TTG IgA reference range 0.0 to 14.9 KU/L
    • trents
      What was the reference range for that test? Each lab uses different reference ranges so a raw score like that makes it difficult to comment on. But it looks like a rather large number.
    • JoJo0611
      I have had the tTG-IgA blood test my result are >250.0  I am waiting for the appointment with the gastroenterologist for endoscopy and biopsies.    what are the chances it’s not coeliacs.  waiting and not knowing is so hard. Especially the eating of gluten knowing it may be causing you more harm and coping with the symptoms. 
    • knitty kitty
      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
    • Scott Adams
      They are a sponsor here, and I did noticed a free shipping coupon: GFships
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.