Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Traveling With Celiac Tots


AMQmom

Recommended Posts

AMQmom Explorer

Greetings! We are traveling from Michigan to Colorado on Thursday. Both of my girls are celiac. My eldest is 7 years old and also has EE. She is very oral (still sucks thumb and licks hands - I was hoping that this would go away with her anxieties once gluten free, but only diminishing). Here is my question: we will be on an airplane and in rental cars, etc. Have any of your children gotten gluttened just by being in that type of environment? My 3 year old is not oral - I don't worry about her too much with fingers in her mouth, but she is just 3 years old. I was considering gloves for them or masks. Am I going overboard? This is my first trip with them as celiac. Any suggestions are appreciated!!! (P.S. I am not worried about their food - I will pack snacks and already located stores where we will be staying - just worried about contamination while traveling).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Don't go overboard with things like masks or gloves, you will raise them to be paranoid if you do that. But take along travel wipes and wipe down the surfaces in the car, and the armrests in the plane, things like that. But don't make a big deal out of it, either.

gfpaperdoll Rookie

IMO, the plane will be worse because most everything they serve on there is wheat. & I saw a lady get on the plane with a box of donuts in her hand!!!! I thought OMG if she sits next to me I am moving!! - so yes, take wipes & wash their hands & wipe off the area where you are sitting. Also, that is where you get the germs on a plane is from touching things that 30,000 other people have touched - in the plane & in the airport.

rental car should not be so bad - I mean really how many of them actually have had anyone ever sit in the back seat ! much less eating there - I bet not many.

shan Contributor

i fly regularly, 4 times a year, and we have never had a problem with gluten - neither with the plane nor with rental cars. I make sure to bring with PLENTY of food for the plane, coz when everyone else gets, she also wants, and i also take with, and don't rely on, snacks to keep in the car. Thats for when we are stuck in traffic and stuff - Your dd is gonna know that you are stressed about it, so you have to make sure that you are relaxed about it ;)

I also make sure to wash her hands after the play area in the airport, coz everyone gives their kids lunch there, so there is bread crumbs all over...

Just a little tip, bring all food with in containers or bags that you can leave on the plane - it'll be easier when you leave the plane to get off with less luggage and cranky kids :D

dandelionmom Enthusiast

I do a quick wipe down before DD sits down and we do a lot of handwashing. You're probably already doing something similar to this but thought I'd mention it because it has really helped my DD: we came up with a quick phrase to let her know that I'm worried about gluten exposure, we call it "gluten-hands" and that tells her that she shouldn't eat or put her hands in her mouth until we've had a chance to wash them, it is our way of telling her to be careful. It also helps my other child to remember that she needs to wash her hands when she comes home from school before touching anything of her sister's and other things of that nature. They know that when I say that phrase I mean business. :)

Kibbie Contributor
Greetings! We are traveling from Michigan to Colorado on Thursday. Both of my girls are celiac. My eldest is 7 years old and also has EE. She is very oral (still sucks thumb and licks hands - I was hoping that this would go away with her anxieties once gluten free, but only diminishing). Here is my question: we will be on an airplane and in rental cars, etc. Have any of your children gotten gluttened just by being in that type of environment? My 3 year old is not oral - I don't worry about her too much with fingers in her mouth, but she is just 3 years old. I was considering gloves for them or masks. Am I going overboard? This is my first trip with them as celiac. Any suggestions are appreciated!!! (P.S. I am not worried about their food - I will pack snacks and already located stores where we will be staying - just worried about contamination while traveling).

My daughter was diagnosed when she was 18 months old. Exactly 1 month to the day of diagnosis we were on a plane to Arizona headed for a family reunion road/camping trip. I feel your pain the first trip is always the hardest! My daughter is 3 now and has only been glutened 2 times 1 was her own doing and the other was a mess up at a restaurant.

Anyhow I try my best to let her be as normal as possible and gloves and masks are something that I would not consider at all. Personally I think its going overboard.

For rental cars: I check cup holders, and open all the little storage places, plus check the floor to see if it had been cleaned and vacuumed before I got in there. If not I request that they either clean and vac. it or give me a clean car. (This is something I would do with or without having a Celiac kid) I also clean off the areas most likely to be touched by my daughter and food. (again something I would do anyhow just because other people germs gross me out) We've never had a problem with a rental car.

On planes if you tell them your child has an allergy they will either clean off their seat for you or offer you wipes to clean it off yourself. We've never had a problem with flying even when the person next to us is eating glutenful pretzels.

Staying healthy the rest of the trip is really just a matter of washing hands... a lot

Enjoy your trip!

AMQmom Explorer

Many, many thanks to you all! I have calmed down after reading your responses. No masks, no gloves. I went into full protection mode instead of just mommy mode. Thank you. I will follow your tips and hope for the best. I really want them to live life to the fullest and travel is one of those elements that I don't want them to miss out on. Thank you for all of your tips and personal examples.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    2. - tiffanygosci posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Aldi Pueblo Lindo Yellow Corn Tortillas

    3. - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    4. - trents replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    5. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,983
    • Most Online (within 30 mins)
      7,748

    CRae
    Newest Member
    CRae
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.