Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reintroducing Dairy


scottyfeelsick

Recommended Posts

scottyfeelsick Rookie

Thanks so much to everybody on this forum. You have all helped me out so much, and helped me to see the light at the end of the tunel.

My question is about reintriducing dairy after being gluten free for a few months. I showed a mild reaction to dairy on an enterolab test but never felt it personally. But went dairy free a few months ago at the same time as gluten because it sounds so common for people to have a temporary problem with it.

How have you felt reactions to it? was it right away, or did it take a day or two to feel a reaction? did it feel like a GI thing or more of a fatigue thing?

How long did you wait before you tried it? Did it seem like long enough or not?

How should I try it? With just a little butter at first, or go kinda crazy with everything?

Does anybody tolerate dairy in baked goods, like small amounts of butter and cream, but does not tolerate dairy like milk and yogurt and stuff?

Today, about 2 hours ago, I had a brownie that had butter and cream in it, and I feel amazingly better than I have all day. I'm sure the suger rush might have something to do with it, but still.... first dairy in months and no weird feelings in my stomach or nothing. Could I be o.k.? Am I having wishfull thinking?

If anybody has any experience with this or any thoughts about it I would really appreciate it. Thanks so much for all your help. scotty


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfmolly Contributor

Hi Scotty,

I waited a full year before I tried dairy and now I am 1 year and two months out and able to tolerate low-lactose products only. I can have most hard cheeses in small amounts, butter and yogurt. that seems to be all, but everyone is different based on the amount of damage before diagnosis.

I react by the next morning in the form of D, and if I really react, my tummy gets very noisy almost immediately following consumption.

Hope that helps!

Molly

scottyfeelsick Rookie

GFMolly, Thanks so much for letting me know about your personal experience with it. I really do appreciate it.

I would love to hear from anybody else also, to see what kind of reactions people have had. Like if some people feel like they have been glutened or if it is a different kind of feeling. Just what it felt like for them to have a reaction to dairy, and how long before they knew if they had a reaction or not.

Also has anybody had a good experience(no reactions) to reintroducing dairy sooner than a year, like only a few months after going gluten free?

Thanks again for everybodys help on this forum. scotty

mushroom Proficient
GFMolly, Thanks so much for letting me know about your personal experience with it. I really do appreciate it.

I would love to hear from anybody else also, to see what kind of reactions people have had. Like if some people feel like they have been glutened or if it is a different kind of feeling. Just what it felt like for them to have a reaction to dairy, and how long before they knew if they had a reaction or not.

Also has anybody had a good experience(no reactions) to reintroducing dairy sooner than a year, like only a few months after going gluten free?

Thanks again for everybodys help on this forum. scotty

My reactions to lactose came before I recognized the gluten problems. While the gluten made me gassy and bloated, the lactose (milk, cream, ice cream, frozen yogurt --not really yogurt at all) would case ED within an hour or two.

For a while after going gluten-free I cut out cheese, sour cream and yogurt as well, but have added them back in without problem although I think the cheese does make my RA worse. However, after six months gluten-free I have not been game to try cream or ice cream. A little milk in my cappuccino (I ask for all froth) doesn't affect me.

Neroli

scottyfeelsick Rookie

Mushroom, thanks alot for your reply, I really appreciate hearing about anybody else's experiences with all of this stuff.

I don't mean to sound ignorant, but I am kinda new to forums in general(this is the first one I have ever posted on). But, does "ED" refer to the big D? and is "RA" refering to arthritis?

Thanks again for all your help, scotty.

ive Rookie

My husband is gluten intolerant as well (Enterolab test is positive) and I asked him not to eat dairy for 3 months (it was hard, he really loves dairy). So 3 months were up this Saturday and he ate some sour cream and so far so good. He is reintroducing dairy to his diet, but very slowly, starting with sour cream, next week he will start cottage cheese if everything will be fine. He had mostly GI symptoms before diagnosis, but it looks like he is healed enough now.

As for me, I could not tolerate any dairy well before my gluten intolerance diagnosis, first it was lactose intolerance (2 years ago) and then in a year I couldn't tolerate any dairy at all. Mostly it was GI symptoms. I will not attempt to reintroduce dairy into my diet any time soon. I think I will wait another year or so.

I would suggest trying to introduce dairy slowly, and start with low-lactose / fermented dairy products, such as sour cream, yougurt, cottage cheese, butter. Do not drink plain milk just yet. Also start slowly, i.e. eat yougurt for breakfast one day and then do not eat dairy for 3 days and notice if you have any reactions.

roxie Contributor

I tried to add dairy back into my diet after being gluten free for about 4 months now (I think). I tried the Breyers extra creamy nonfat chocolate ice cream. There were all kinds of weird ingredients in the ice cream so I called Breyers, and they said that it was gluten free if the ingredients did not specifically say "wheat". I had a good sized bowl of the ice cream and I was very sick for 2 whole days! I felt like I had the full blown flu. However, I seem to be able to tolerate things with very small amounts of dairy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ksymonds84 Enthusiast
Mushroom, thanks alot for your reply, I really appreciate hearing about anybody else's experiences with all of this stuff.

I don't mean to sound ignorant, but I am kinda new to forums in general(this is the first one I have ever posted on). But, does "ED" refer to the big D? and is "RA" refering to arthritis?

Thanks again for all your help, scotty.

Hi Scotty

I've found through keeping a food journal that dairy was a problem for me but only when I ate heavy cheese sauces such as gluten free alfredo, cheesy enchilada's, or drank a glass of regular milk. I would always have bad gas and a bloaty stomache a couple hours later followed by D the next morning. I have found that I can tolerate hard cheeses and a tablespoon of sour cream on a baked potato. I tried yogurt the other day and got the uncomforable bloat & gas but no D in the morning so I will hold off on yogurt for awhile. I believe RA means rheumetoid Arthritis (probably spelling wrong) but don't know the ED. Don't worry no question here is ignorant, we are all learning!

Nancym Enthusiast

Dairy gives me constipation, it used to counterbalance the dairrhea that wheat gave me, most of the time anyway. :)

Anyway, nowadays my symptoms from dairy are excess mucus production, stuffy nose especially at night and weirdly enough, muscle spasms especially in my neck and shoulder area.

I seem to be ok with butter though.

scottyfeelsick Rookie

Ive, Roxy, Ksymonds84, Nancym; Thanks alot for all of your replies, I really do appreciate it.

So what I am kinda gathering here is that dairy is deffinatelly a digestive issue. Weather it is an upset stomach, or the big D or C, or any other kind of discomfort, it seems to be mostly related to GI issues, and not really the same problems that gluten causes alot of people. (like fatigue, brain fog, physical weakness, severe lethargy, etc..)

Please correct me if I am wrong, but I seem to get the feeling that I should try things like goat yogurt and goat cheese first, and things like kefir, just things a little lower in lactose. And if I don't get any kind of bloating or diarrhea or digestive discomfort, then I am probably ok with that amount, and can move on. If maybe I feel a bit more tired or run down that day, its most likely just an off day or something else not related to the dairy, as long as my stomach and bowels all feel fine still? I know this is not a for sure thing, but am I relatively safe in this assumtion? Please feel free to correct me if I am wrong here. Maybe it is just wishful thinking, because I had a brownie with some dairy in it and felt fine all day afterwards.

Thanks again everybody for all your help, scotty.

ive Rookie
If maybe I feel a bit more tired or run down that day, its most likely just an off day or something else not related to the dairy, as long as my stomach and bowels all feel fine still?

Before I stopped dairy, I would get extremely tired after eating it, even lactose-free milk. We used to do lattes (with lactose-free milk) on the weekends and I would get so sleepy and exhausted after it. It was actually well before my gluten intolerance diagnosis. And I did not have GI symptoms from non-lactose dairy.

So no, you are not safe if you don't have GI symptoms from dairy. Dairy can give you a lot more than GI symptoms, it can give you stuffy nose, fatigue, tiredness, brain fog, skin problems, etc. I guess majority of people have GI symptoms, but some of us do have non-GI symptoms.

scottyfeelsick Rookie

Ive, thanks alot for the info. Thats what I was kinda afraid of, it just seemed to simple to only watch out for GI stuff.

I am sorry to keep asking so many questions, I feel like I am probably getting kinda annoying. But, anyway Ive, could you give me a little bit of an idea of how long after eating dairy that you would notice those symptoms, and how long they would usually last for? Would it usually be pretty consistant, or could you have a different reaction different times? thanks alot, scotty.

Ann1231 Enthusiast
My reactions to lactose came before I recognized the gluten problems. While the gluten made me gassy and bloated, the lactose (milk, cream, ice cream, frozen yogurt --not really yogurt at all) would case ED within an hour or two.

For a while after going gluten-free I cut out cheese, sour cream and yogurt as well, but have added them back in without problem although I think the cheese does make my RA worse. However, after six months gluten-free I have not been game to try cream or ice cream. A little milk in my cappuccino (I ask for all froth) doesn't affect me.

Neroli

I have the same problem with cheese and my RA.

Milk makes it worse as well and also gives me violent D within an hour or two. I am finding that I have to avoid dairy except for butter, which doesn't seem to bother me at all.

Neroli, do you find meat bothers your RA?

RA= rheumatoid arthritis, btw for those who asked.

Ann

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

    2. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

    3. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,422
    • Most Online (within 30 mins)
      7,748

    HAUS
    Newest Member
    HAUS
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.