Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone From North Carolina

Debkrause1

Recommended Posts

Debkrause1 Newbie
Debkrause1
Posted

Is anyone here from North Carolina?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Yes, we have several members in or near Cary, Raleigh, Apex, Durham, Chapel Hill, New Bern, Winston Salem, Murphy, Kitty Hawk and Edenton....from one end to the other. :D

lizard00 Enthusiast
lizard00
Posted

Greetings from Raleighwood!!

  • 1 month later...
Beth in NC Contributor
Beth in NC
Posted

Just joined and in Raleigh too!

crazymurdock Apprentice
crazymurdock
Posted

I am hiding out in the Waynesville area- not far from mile marker 20 on Interstate 40.

Ridgewalker Contributor
Ridgewalker
Posted

Up in the Pilot Mountain area here.

  • 2 weeks later...
quillpenz Newbie
quillpenz
Posted
Is anyone here from North Carolina?

I am in Chapel Hill. Is there a group? How do I find other celiac sufferers? :P

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
I am in Chapel Hill. Is there a group? How do I find other celiac sufferers? :P

Welcome,

I'm on the East Coast. Here is a list of some people who can get you started:

Open Original Shared Link

Beth in NC Contributor
Beth in NC
Posted
Welcome,

I'm on the East Coast. Here is a list of some people who can get you started:

Open Original Shared Link

I was quite surprised with that list...no one in CENTRAL NC...not a 919 area code in the bunch!

I haven't found a local support group in the Triangle yet...but I haven't look really hard for lack of time. Well, I actually did find something about one online, but it appeared inactive...no events for quite a long time.

Lisa Mentor
Lisa
Posted
I was quite surprised with that list...no one in CENTRAL NC...not a 919 area code in the bunch!

I haven't found a local support group in the Triangle yet...but I haven't look really hard for lack of time. Well, I actually did find something about one online, but it appeared inactive...no events for quite a long time.

Have your tried these folks?:

Open Original Shared Link

Beth in NC Contributor
Beth in NC
Posted
Have your tried these folks?:

Open Original Shared Link

No, I never saw them. I think perhaps because I wasn't using Sprue in my searches? Thanks!

salomeh7 Newbie
salomeh7
Posted

.

quillpenz Newbie
quillpenz
Posted

Thanks Momma. I am close to the Pittsboro group and I will make contact.

I will be on the east coast this summer. Is there support in and around Southport? What about food coops or places to buy gluten free foods? Chapel Hill has Wellspring and also a wonderful coop grocery in Pittsboro. the Co-op in Pittsobor has wonderful pastas, spaghetti and Macaroni pastas of rice and other things. Thanks. Q :)

Beth in NC Contributor
Beth in NC
Posted
Thanks Momma. I am close to the Pittsboro group and I will make contact.

I will be on the east coast this summer. Is there support in and around Southport? What about food coops or places to buy gluten free foods? Chapel Hill has Wellspring and also a wonderful coop grocery in Pittsboro. the Co-op in Pittsobor has wonderful pastas, spaghetti and Macaroni pastas of rice and other things. Thanks. Q :)

Q,

I contacted two of the ladies from that North Raleigh group and there is a meeting at Rex Hospital in Raleigh the third Thursday of each month...they are taking August off but start again in September. 7 p.m. I'm planning to go if at all possible....it's hard to think that far ahead!

crazymurdock Apprentice
crazymurdock
Posted
Thanks Momma. I am close to the Pittsboro group and I will make contact.

I will be on the east coast this summer. Is there support in and around Southport? What about food coops or places to buy gluten free foods? Chapel Hill has Wellspring and also a wonderful coop grocery in Pittsboro. the Co-op in Pittsobor has wonderful pastas, spaghetti and Macaroni pastas of rice and other things. Thanks. Q :)

I do not know if it is so in other FoodLions grocery stores, but a couple of days ago I went into the one in Waynesville and they had a little section dedicated to gluten free foods. I was shocked! Normally I would have to drive 40 miles to go to Earthfare in Asheville to shop for things.

tipnpat Newbie
tipnpat
Posted

I'm in Asheville, NC!

Ridgewalker Contributor
Ridgewalker
Posted
I do not know if it is so in other FoodLions grocery stores, but a couple of days ago I went into the one in Waynesville and they had a little section dedicated to gluten free foods. I was shocked! Normally I would have to drive 40 miles to go to Earthfare in Asheville to shop for things.

There are three Food Lions I shop at, and the newest one (a couple years old) has an organic section. They actually do carry a few gluten-free things mixed into that section-- Bob's Red Mill Chocolate Chip Cookie and Brownie mixes, a couple gluten-free Envirokids cereals, Ian's gluten-free Chicken Nuggets, and Vann's Waffles.

I've gotten things there a couple times, but I usually make the trek to Whole Foods in Winston-Salem. (an hour drive for me, too...)

quillpenz Newbie
quillpenz
Posted
I do not know if it is so in other FoodLions grocery stores, but a couple of days ago I went into the one in Waynesville and they had a little section dedicated to gluten free foods. I was shocked! Normally I would have to drive 40 miles to go to Earthfare in Asheville to shop for things.

Crazy, I have found that Harris Teeter will special order gluten free items if you give them the brand and the item. I had Harris Teeter order the gluten free steel cut oat meal made by red mill. They already had the flours and several soups. They ordered a half dozen oat meals. I bought two. The manager said that the other three disappeared off the shelves in a day. They are realizing that among their anonymous customers, #'s of us exist. They are becoming more sensitive. Harris Teeter and Lowes have lots of products but not in a section. My next request, when I come back from vacation will be to ask them to group the items. I am almost sure that they will because the numbers of celiacs like us are growing.!! I can't wait to check my local Food Lion.

Some restautants are now printing gluten free menus. If we all keep asking, it will get through. I will try to find a list of the ones that do and I will post them in a couple weeks.

  • 4 weeks later...
GlutenFreeRaleigh Newbie
GlutenFreeRaleigh
Posted

hey everybody... I am in Raleigh, NC. Diagnosed Celiac in June. I see the calendar posting for a Raleigh Support Group meeting at Rex Hospital on 9/19 at 7pm. anyone plan on attending? Also, I dont want to get dinged for self promotion, but if anyone is interested in a blog about being gluten-free in Raleigh, feel free to check my profile for the link. I am writing about my experiences (grocery stores, restaurant reviews, etc...). Not selling anything just want to help. Have a great day everyone!

Beth in NC Contributor
Beth in NC
Posted
hey everybody... I am in Raleigh, NC. Diagnosed Celiac in June. I see the calendar posting for a Raleigh Support Group meeting at Rex Hospital on 9/19 at 7pm. anyone plan on attending? Also, I dont want to get dinged for self promotion, but if anyone is interested in a blog about being gluten-free in Raleigh, feel free to check my profile for the link. I am writing about my experiences (grocery stores, restaurant reviews, etc...). Not selling anything just want to help. Have a great day everyone!

I'm planning to be there!

Beth in NC Contributor
Beth in NC
Posted

Just looked at your blog...we go to the same GI practice! I'm seeing Dr. Parekh though...really like him. How do you feel about yours?

I'm also curious if you actually went to the dieticians? My insurance doesn't cover it, and I also thought I had probably learned most of what she would tell me here, ya know? I hate to pay out of pocket for nothing!

Diagnosed a month later than you! July 16...a day I will never forget.

GlutenFreeRaleigh Newbie
GlutenFreeRaleigh
Posted

Beth in NC - I really like my doctor and he found my issue quickly. I know it takes most people a long time to get diagnosed but after one meeting with me he found my issue with a quick blood test. I would consider him a good doctor and would definitely refer him to others. start to finish, he found my issue in about 1 month total.

I have been to the dietitian 1 time (had to buy a package of 3 visits). the first visit was really simple stuff that I had already known (like you said). if you have google, you can find it out. i think the next 2 visits will be better though... i plan on writing about this whole experience on my blog of course. with the next 2 visits, the plan on measuring my metabolism to get a resting rate and then let me know what i should be eating. right now (as i heal from being gluten-free) i am always really hungry so i eat constantly. also, i was able to convince my employer (a rather large one in the area) to change our insurance policy to pay for these services!

maybe i will see you at the meeting at Rex.

hope you like my blog and feel free to check back for updates or let me know anything for ideas that could help others.

mstroud Rookie
mstroud
Posted

Hello all! I'm also in Raleigh. My oldest son was diagnosed with Celiac in May so we're just starting to get into the swing of gluten free living. I attended a North Raleigh support group meeting right after my son was dianosed and also a Cel-Kids picnic / meeting a couple weeks ago. There are several members who attend both. I hope to attend the September meeting as well!

I need to check out the glulten free in Raleigh blog! Any pointers or new info that I can get is great!

Hope to see you all at the September meeting! Oh ... and if any of your all have children with Celiac there is supposed to be a Cel-Kids meeting in November.

Margaret

ForevertheChimera Newbie
ForevertheChimera
Posted

I'm a NC girl myself, new here, just thought I'd say hi. Though I am on the coast, by Elizabeth City.

Lisa Mentor
Lisa
Posted
I'm a NC girl myself, new here, just thought I'd say hi. Though I am on the coast, by Elizabeth City.

Hello and Welcome!

I'm in Edenton. If I can help you in any way, let me know.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,612
    • Most Online (within 30 mins)
      7,748
    Rotary
    Newest Member
    Rotary
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • itsdunerie
      Potential celiac need advice

      By itsdunerie · Posted

      Dang......did it again and yeah I should admit I am 63 with clumsy phone thumbs. I started feeling better quickly and a doctor a year later said I had to eat  poison (gluten) every day for a month so he could formally diagnose me and NO FREAKING WAY. I couldn't then and can't imagine putting my body through that crap (no pun intended) on purpose ever again.  Why ingest poison for a month to have some doctor say Hey, All you Have To Do Is Never Eat poison Again.. 
    • itsdunerie
      Potential celiac need advice

      By itsdunerie · Posted

      Poop head, sorry, but I accidentally posted and can't figure out how to continue my post. My long winded post was going to tell you that after I figu
    • itsdunerie
      Potential celiac need advice

      By itsdunerie · Posted

      15 years ago my best friend 'diagnosed' me as Celiac. Her little nephew had been formally diagnosed and her observations of me dealing with brain fog, stomach problems and other stuff had her convincing me to try going gluten free. Oh my heavens, within 3 days, no lie, I felt human again. Took me about a y
    • Scott Adams
      Potential celiac need advice

      By Scott Adams · Posted

      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.