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Gluten/wheat Related Intolerances


blondebombshell

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blondebombshell Collaborator

if someone has an intolerance to wheat, because of an irritable bowel, should they still altogether avoid wheat and gluten?


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RiceGuy Collaborator

I'm not sure I understand your question as you intend. Because IBS is not a cause, but a symptom. Doctors don't know what causes it, though many of us do. Therefore it seems impossible by my current understanding, that IBS would result in an intolerance. However, the intolerance certainly does often result in an irritable bowel.

I hope this helps you, but if not I'm sure others will be able to give you clearer answers.

tom Contributor

I second what RiceGuy said.

Pretty much anything that's called ______ _______ Syndrome, to me, indicates that there's a symptom (or a set of them) that the medical community has no cause to attribute it to.

Before x-rays, maybe some broken bones were called "painful limb syndrome". :P

Rachel--24 Collaborator
if someone has an intolerance to wheat, because of an irritable bowel, should they still altogether avoid wheat and gluten?

Poor digestion, enzyme deficiencies, bacteria, parasites, yeast, leaky gut....and a long list of additional factors can lead to symptoms of "irritable bowel" as well as an intolerance to gluten.

Sometimes gluten is the cause of the irritable bowel....sometimes there is more to it....either way you should avoid it until you can determine *why* you are having these symptoms.

As already stated....IBS does not cause food intolerance....nor does it cause any of the factors I just listed. These are the things which cause the bowel to become irritable in the first place. IBS doesnt cause anything....its a symptom.

blondebombshell Collaborator

everything every mentioned makes perfect sense.

i am just confused why i have these constipation/bloating problems. when i went to a new gastro doc last week he mentioned that there are a lot of people that have problems digesting wheat and he said that he doesn't *suspect* i have celiac. he is sending me for some blood test (IGL or something?)

i would like to know why everytime i eat something i bloat up. i have cut gluten out of my diet since august and i feel like asboulte crap (tired, irritable, constipated, stomach pain, etc) when i eat wheat.

AliB Enthusiast
i would like to know why everytime i eat something i bloat up. i have cut gluten out of my diet since august and i feel like asboulte crap (tired, irritable, constipated, stomach pain, etc) when i eat wheat.

Umm......Wheat contains gluten. If you eat wheat, you are eating gluten. If you eat wheat, barley, rye or oats you are eating gluten! If you eat anything that is derived from wheat, barley, rye or oats, you are eating gluten.

If you want to test the gluten-free diet properly you have to remove ALL traces of gluten from your diet.

I had IBS for years. Going gluten-free and adopting a fairly basic diet with little in the way of carbohydrates has really sorted it out. I have been gluten-free and dairy-free for 4 months and am slowly benefitting from the diet, but it is still early days and I am still tripping up here and there.

As I get to know more and understand more about hidden gluten sources, I should be better able to avoid that. I am just so grateful not to have the constant diarrhea, awful stomach pain, gas and bloating and manic restless legs! Yes the diet is hard work at times, but it is so worth it!

home-based-mom Contributor
i would like to know why everytime i eat something i bloat up. i have cut gluten out of my diet since august and i feel like asboulte crap (tired, irritable, constipated, stomach pain, etc) when i eat wheat.

:huh: Are you still eating wheat? If so, you haven't cut gluten out of your diet! :huh:

EDIT - oops! AliB beat me to the submit button!

It could also be something else causing your problems that you haven't discovered yet. Bananas have always caused me problems. Good thing I never liked them anyway! I also can't eat raw carrots or rice bran. Maybe in the future but not now.

Keep a food diary so maybe you can figure out what to stop eating (besides wheat?) so you feel better.


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blondebombshell Collaborator
Umm......Wheat contains gluten. If you eat wheat, you are eating gluten. If you eat wheat, barley, rye or oats you are eating gluten! If you eat anything that is derived from wheat, barley, rye or oats, you are eating gluten.

If you want to test the gluten-free diet properly you have to remove ALL traces of gluten from your diet.

I had IBS for years. Going gluten-free and adopting a fairly basic diet with little in the way of carbohydrates has really sorted it out. I have been gluten-free and dairy-free for 4 months and am slowly benefitting from the diet, but it is still early days and I am still tripping up here and there.

As I get to know more and understand more about hidden gluten sources, I should be better able to avoid that. I am just so grateful not to have the constant diarrhea, awful stomach pain, gas and bloating and manic restless legs! Yes the diet is hard work at times, but it is so worth it!

no, no, no. i have cut all wheat/gluten out of my diet.

:) bc it was a new doc i was wondering if there was truth to this. he told me to use some mirilax in a drink once a day to help with constipation and didnt say anything about being allergic to wheat/gluten. just that eating it sometimes causes an irritble bowel.

pele Rookie
I second what RiceGuy said.

Pretty much anything that's called ______ _______ Syndrome, to me, indicates that there's a symptom (or a set of them) that the medical community has no cause to attribute it to.

Before x-rays, maybe some broken bones were called "painful limb syndrome". :P

Very funny! I was always mentally compare IBS to a doctor telling someone with a headache that they have painful cranium syndrome.

Rachel--24 Collaborator
Very funny! I was always mentally compare IBS to a doctor telling someone with a headache that they have painful cranium syndrome.

Thats a good one! :lol::lol:

I actually suffer from that one....."painful cranium syndrome"....I've had it for 5 years now.

I was getting "treated" for it for awhile too. Lots and lots of pills for my "PCS". :P

ravenwoodglass Mentor
no, no, no. i have cut all wheat/gluten out of my diet.

:) bc it was a new doc i was wondering if there was truth to this. he told me to use some mirilax in a drink once a day to help with constipation and didnt say anything about being allergic to wheat/gluten. just that eating it sometimes causes an irritble bowel.

This doctor sounds like a real idiot. Of course gluten will cause IBS in folks that are CELIAC OR GLUTEN INTOLERANT. It sounds like this doc wants to make lots of money off of you. I noticed in your signature that you say you went gluten-free in August and then had a biopsy in December. This virtually ensured the biopsy would be 'negative'. It sounds like you really need to do a real trial of strict gluten free living for at least a few months. Your body is telling you it is poison, don't let some doctor tell you that based on a not very reliable test that you can consume gluten safely.

blondebombshell Collaborator
This doctor sounds like a real idiot. Of course gluten will cause IBS in folks that are CELIAC OR GLUTEN INTOLERANT. It sounds like this doc wants to make lots of money off of you. I noticed in your signature that you say you went gluten-free in August and then had a biopsy in December. This virtually ensured the biopsy would be 'negative'. It sounds like you really need to do a real trial of strict gluten free living for at least a few months. Your body is telling you it is poison, don't let some doctor tell you that based on a not very reliable test that you can consume gluten safely.

ok this new doctor was a result of my past doctor telling me nothing was wrong with me. hives, bloating, etc. would not be indiciative of a gluten allergy. therefore i went to this new doc and he said that the old doc's endoscopy would not be able to tell if i truly did have celiac or not. he said they only test is 3 pieces of bread for 3 months and that ain't happening. that would make me the size of a house, LOL.

anyway, with that being said i was just trying to see if i could be intolerant to something but not allerigic.

Tim-n-VA Contributor
anyway, with that being said i was just trying to see if i could be intolerant to something but not allerigic.

"Intolerant" is one of those words that is used with different meanings. Some people use it in the context of an umbrella term for "something bad happens when I eat..."

On some other sites, I've seen intolerant as specifically a digestive system issue such as in lactose intolerant where the digestive system doesn't have the ability to digest lactose.

Allergies and Celiac are two different systemic responses to gluten. The bottom line to both (and a digestive wheat intolerance) is don't eat gluten.

So the answer is that you can be intolerant and not allergic but it depends what you mean by intolerant.

As a side note, the information that I've read Enterolab is that they use the term "gluten sensitivity" but some people say that Enterolab said they were "gluten intolerant". I don't know if that is people substituting what they think is an equivalent word.

Some people don't think it matters which response you are having since you treat them all the same. Other people believe that it is important to know because of the tendency of similar diseases to ocurr in clusters.

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
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      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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