Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Free Of Foods Growing In Number

ShayFL

By ShayFL
in Related Issues & Disorders

Recommended Posts

ShayFL Enthusiast
ShayFL
Posted

I like to see articles that bring awareness. So hope "gluten" gets added to the list of foods that manufacturers must disclose. There is one line about how many people only "think" they have an intolerance and that for them it is a "lifestyle choice" to eat foods free of certain ingredients. Dont agree with that. Who would choose this lifestyle? But other than that.....

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

I thought that was a great article. Gluten free by choice or medical need, brings awareness and change. Change is good.

dollamasgetceliac? Explorer
dollamasgetceliac?
Posted

Thank you, I thought that was a great article. I spent the whole day shopping yesturday reading labels checking lists , somethings were good like the Enjoy life Nut and Gluten free food bars thank God it did not have Honey so that is one thing I can just keep in my purse and move on, what really bothered me is that i got exhausted at the end of the day and could not understand why I can't buy Iodized Salt? I know there is a thread about that somewhere , and then another question I had was that why was there say 6 differant kinds of Olive Oil and only one was gluten-free? same with rice?

And why is it not mandetory to write ( processed in a facility that may contain Wheat or Soy). And Celiac disease is a Handicap so it should be mandetory to list it on every item. I mean it is poisen after all to so many people then it should be listed in clear Bold letters. I hope this thread picks up and some things will change quickly, because I really am tired of shopping. I noticed that one rice brand had there gluten-free logo integrated in the design so tactfully that it took 2 people to help me find the golden words.

I actually treid shopping online since the gluten-free is new to me, so I typed in all the foods that I am allergic to and gluten-free it came out with baby wipes. I wonder what that tastes like :huh:

ShayFL Enthusiast
ShayFL
Posted
  • Author
I actually treid shopping online since the gluten-free is new to me, so I typed in all the foods that I am allergic to and gluten-free it came out with baby wipes. I wonder what that tastes like :huh:

That made me laugh. And I needed it!!

Yes, look at my signature. And Ive also just cut citrus for a trial. But I am eating well. I cannot complain. Well I could. But tonight it is homemade meatballs with a new pasta sauce I found that is Nightshade free and rice pasta. Yummy!!

ravenwoodglass Mentor
ravenwoodglass
Posted
why I can't buy Iodized Salt?

Iodized salt is only a problem if you have DH, the skin form of celiac. The iodine in the salt, and for those with DH even fish that is high in it, can cause an outbreak of DH. The oldfashioned way of diagnosing DH was to put iodine on the skin, bandage it and wait to see if the rash appeared. I don't know the exact physiological reason why DH is activated by iodine but it seems to activate the antibodies that get deposited in our dermis. Those of us with the itchy oozy painful rash need to avoid iodine until the antibodies clear the skin. This can take up to 2 years. After that some of us may be able to tolerate it.

kbtoyssni Contributor
kbtoyssni
Posted
There is one line about how many people only "think" they have an intolerance and that for them it is a "lifestyle choice" to eat foods free of certain ingredients. Dont agree with that. Who would choose this lifestyle?

They might be referring to people who don't have an official medical diagnosis. That would include people like me who have a very obvious positive dietary response and will never eat gluten again because I like being able to get out of bed every morning and live my life, but I did technically "choose" this lifestyle rather than have a doctor tell me to go gluten-free.

dollamasgetceliac? Explorer
dollamasgetceliac?
Posted
They might be referring to people who don't have an official medical diagnosis. That would include people like me who have a very obvious positive dietary response and will never eat gluten again because I like being able to get out of bed every morning and live my life, but I did technically "choose" this lifestyle rather than have a doctor tell me to go gluten-free.

:lol: I like to get out of bed too :lol: I think that a person knows there body pretty well, I mean you live in that body 24/7 so you know most likely what to avoid. If a food makes me so sick that I feel like staying in bed all day , that is bad. My allergist said: avoid the foods that are causing you to get hives and make you feel sick, he said never mind that the blood test all turned out negative.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted
  • Author

I guess saying "lifestyle choice" makes it sound like something you want to do. And to me that is what the article made it sound like. It lends credence to all of those people that think we are just being "picky" and that there isnt really anything wrong with us. We are just "choosing" to be different. Choosing to avoid something that makes you so sick you cant get out of bed, doesnt seem like a choice at all to me. :(

Lisa Mentor
Lisa
Posted

"I had was that why was there say 6 differant kinds of Olive Oil and only one was gluten-free? same with rice?"

I have never seen an olive oil that contained gluten and rice as well (except Rice-A-Roni - obviously)

This quote jumped out at me. I am not sure where you are shopping, but if you look for foods that are labeled "gluten free", I am afraid that you might starve to death. :rolleyes:

The key to shopping well and eating well is the ability to read labels effectively. With your additional food allergies, I would think it would be a must.

It does take time to learn and in no time, it will become second nature.

dollamasgetceliac? Explorer
dollamasgetceliac?
Posted

I think that some companies make say rice Pilaf or whatever so they share the same facility that has wheat = Gluten . Then for example I saw that some Gorbanzo beans were shared in a facility that uses Shellfish I imagine that they do not want to run the risk of getting sued. Many times I have called a company that sells an item and they have said that their facility does not share with nuts and a few months later their label changed stating" this product is made in a facility that is shared on equipment that has peanuts and treenuts"

The thing is that there is no law that says that they have to say that but now they are getting scared so they are. The food Allergy Epidemic was on the cover of News Week last year, they covered 4 pages.

ShayFL Enthusiast
ShayFL
Posted
  • Author

And they should say. So I hope they stay scared. I realize that they cannot list every possible allergen/sensitivity. But EVERY ONE of them (food manufacturers) should have to list: Gluten/Wheat/Soy/Dairy/TreeNuts/Peanuts/Eggs/Corn/shellfish

These are the big offenders.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,260
    • Most Online (within 30 mins)
      7,748
    HaleighA
    Newest Member
    HaleighA
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Nateral remedies

      By Jmartes71 · Posted

      Hello, I just wanted to share with the frustration of skin issues and seeing dermatologist and medications not working for years, I did my own healing experiment. As of last week I have been taking a drop internally under the tongue of Vetiver and putting on topically on sores Yellow/Pom.I am seeing a extreme difference at a rapid time.Im also noticing my nails a little harder. Ive always been into natural properties because I feel its safer for the body.I know short time, but really seeing a difference. I also feel the the trapped gases that causes bloating helps break down as well.Curious if any body else can benefit from and has tried. Products is made by Doterra by Dr Hill
    • Scott Adams
      Is Caputo gluten free flour really free of gluten?

      By Scott Adams · Posted

      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      Celiac symptoms

      By Scott Adams · Posted

      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      Kan-101

      By Scott Adams · Posted

      So just to be cautious, there is a big difference between cured, and responding to their medication. I assume you mean that your daughter responded well while taking KAN-101 during the trial, but the drug would not cure celiac disease, but may manage it while you are taking it. Let me know if I got this right.
    • trents
      Is Caputo gluten free flour really free of gluten?

      By trents · Posted

      Welcome to the forum, @Godfather! "Gluten-free" is not the same as zero gluten. The FDA standard for allowing the food industry to us the gluten-free label on a product is that it cannot exceed 20 ppm of gluten. That is safe for most celiacs but not for the subset of celiacs/gltuen sensitive people who are super sensitive. "Gluten-free" wheat starch products have been processed in such a way to remove enough of the protein gluten to comply with the FDA regulation but usually do retain some gluten and we usually get reports from some people on this forum who fall in the more sensitive range that such products cause them to react. Hope this helps. So, you may just have to experiment for yourself.
×
×
  • Create New...