Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Will An Allergy Test Give An Indication To Celiacs?


Guest hesoverthere

Recommended Posts

Guest hesoverthere

More specifically, will an allergy test give an indication to ANY food intolerance? I understand that allergies and intolerance are two different things but will an allergy test show an individuals intolerances as well? Going to cost me around 310 dollars...which sucks but I need to find out or have some place to start.

It is a blood test, this much I know. I don't know any other specifics, just told it is a food allergy test. Do I have to have eaten the food beforehand to get accurate results? I've been attempting gluten free for about a week and a half now and will start up again to receive an accurate result. Forgive me but I don't understand how the two (allergies and intolerances) relate completely yet. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elonwy Enthusiast

Yes and no... It can show you food that gives you issues, but it won't show an indication for/against celiac disease. I tested positive for celiac, and I don't test positive for wheat allergy. The blood test for allergies is also not always conclusive because you have to be eating what they are testing for for antibodies to show up. Its a good place to start, but its not the last step. You may want to talk to your allergist about food diaries and elimination diets as an alternative to spending money on testing. Mine talked me out of testing and towards elimination dieting for the reasons I state above.

That being said, I just got allergy testing done and found out the things I am allergic to that aren't food, and its been very helping getting rid of those extra symptoms that have nothing to do with food. Good luck, and keep asking questions :)

dbmamaz Explorer

I tested negative for celiac (tho the test was after I'd been off gluten for about 6-8 weeks already). I took the A.L.C.A.T test, which cost more than that, and is a mail-order thing, for sensitivities and reacted to 1/3 of the 175 foods. I went to an allergist who specailizes in food allergies, and he did scratch tests and then did small injections for the ones which i didnt react too badly too the first round. I reacted to 90% of the 60 foods he tested for.

The two tests had a lot of overlap, but not totally. A.L.C.A.T, which is a sensitivity test, said chicken was safe, but the allergy test said it wasnt. The allergy test said rice was safe, but the A.L.C.A.T test had it as a moderate (not mild or severe) reaction. I did react to wheat/gluten and milk/casien on both tests.

Furthermore, my son did an allergy blood test through the pediatricain which showed NO allergies and his celiac was also negative. The A.L.C.A.T test showed a strong reaction to gliadin (but not to gluten, oddly), and his 3-5 x per week D went away when I took him off gluten.

Different tests find different things. furthermore, the blood allergy tests (often called rast) are sometimes not as accurate as the scratch and prick tests. The scratch and prick tests are awful, tho - i felt sicker as it went on - first I was just spacy and weak, then i burst in to tears (after the first set of prick tests - and it wasnt from pain) and finally i just felt . .. .just sick. Just achey and miserable and mildy feverish and exhausted.

nora-n Rookie

I had the yorktest which tests for IgG antibodies for more than 100 foodstuffs. It also tests for antiiadin IgG but I had been off gluten for many months so it did not show positive for gliadin IgG. I did react strongly to yeast. I had been off milk so it did not show anything on milk (but i react violently to even traces of milk)

There are even IgM tests out there.

Ordinary allergies are IgE.

And some things you cannot do a blood test for, I think.

And there is Enterolab which many have used to find out about gluten intolerance and they can test for other things too. It is more celiac-ish than the other allergy tests (celiac is not an allergy, but autoimmune)

The ordinary celiac tests are :

Tissue transglutaminase IgA and IgG

antigliadin IgA and IgG

and then you also need the total IgA

and there is the endomysium antibody test

and it happens that people only test positive for one, any one of the tests, that is why they recommend to do all of them here.

Doctors tend to only do the tissue transglutaminase IgA test but some cases might be missed that way.

nora

  • 3 weeks later...
Guest hesoverthere

Well I went ahead with the test either way, if it is an allergy hopefully it will show up. I'll have to look into the other tests mentioned but my funds are limited so I may just go with an elimination diet. I've been trying but its difficult due to my circumstances and not providing my own meals 1/3 of the time. In another week I will be able to so that will probably be my best option. I'm still able to limit my gluten pretty good but not really completely and some effects have subsided quiet a bit, like the bumps on my elbows. I was doing okay until I had another stupid episode of feeling like trash. Yesterday, the itchy bumps on my elbow got really bad around 3 in the afternoon. I can't decide if its gluten or potatoes or something else yet, but I think its one of those two. I had a burger/fries two days before and minimal effects, just a slight stomach ache afterwards. However yesterday I had a bagel around 730am and a plate of hash browns around 1230pm, the bumps and itching showed up and progressed around 3pm and this is usually the first indication of how I'm going to feel for the next day or so. I had been going off of 6 hours of sleep/day the past 2 weeks and yesterday was the first day I took a nap. Then of course today I feel like garbage. This brought another question to mind though, is the concentration of gluten in a bagel higher than that of a hamburger bun from a fast food place (in this case, Carl's Jr.)? ...and could an intolerance cause symptoms to show up that quickly or would something showing up quickly like that be more of an indication of an allergy? I wish I knew if it was gluten or potatoes or whatever but its not like I have the money for a doctor to help me out so I really appreciate your responses. Thanks.

ShayFL Enthusiast

All of these tests are expensive and I must confess I have felt duped sometimes.

For instance I had no reaction to raspberries this past A.L.C.A.T. but get a reaction when I eat them. And some of the things I reacted to, I can eat just fine.

About 2 years ago I did Enterolab and everything came back negative (wheat, dairy, egg, soy). At about that time I also did a home test blood spot for gluten and wheat which came back negative as well. A.L.C.A.T. was negative for wheat and gluten too. Regular Allergist did skin prick and I was negative for wheat. Now that was A LOT of money to spend!!!

Fast forward to 4 months ago. Negative for celiac (both blood and genetic). Positive genetic DQ1 and DQ3 with Enterolab. I didnt do the stool this time and I didnt do the genetic last time. A.L.C.A.T. this time showed SEVERE reaction to gliadin and MODERATE to wheat.

This is my 3rd A.L.C.A.T. and I never responded to wheat or gluten before.

The funny thing is that you are MORE likely to show a response to a food on A.L.C.A.T. if you are currently ingesting it on a regular basis. I had been gluten-free for a month when I had this A.L.C.A.T. done this time, so the fact that it showed up was enough for me to feel secure in my decision to go gluten-free. That and my genes.

Now I am migraine free for almost 3 months. That is like getting 12 days of my life back so far!!

So they may be helpful or they may not. You still have to do A LOT of sleuthing yourself.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.