Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What About My Son?


Emilysmomma

Recommended Posts

Emilysmomma Rookie

Should I be concerned about him, since my daughter was just diagnosed with Celiacs? The only sign he shows is he's skinny, and has a hard time gaining weight - other than that, he doesn't have bowel issues or stomach problems. He is 11 years old. I'm just wondering if we should all be tested for it. Our dinners will all be Gluton free because I don't want my daughter eating something different from us - I will make her pizza seperate from ours with gluton free crust from the store, and spaghetti, I will get the gluton free pasta.

I just started wondering if my son should be tested as well?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

My daughter appears extremely healthy. Growing normally for her age. No major illnesses. No stomach problems or D (I have asked). Only 1 round of antibiotics in 12 years for an absessed tooth. Rarely gets a cold. Happy and healthy. So I am not testing her. But she knows that I have the genes. I told her that she doesnt need to be tested right now, but if she ever starts having health problems, it is the first thing she should check out. She accepts this. She is mostly gluten-free because my house is 100% gluten-free. Then now and again she gets gluten at a friends. No bad reactions.

If your son is old enough to understand, just talk to him. You can also casually ask him if he has tummy issues or D. At that age, he might not just tell you he has loose poop. That would be like.....sooooo embarrassing Mom. ;)

bbuster Explorer

I think it would be prudent to test the whole family. My son was diagnosed with Celiac at age 10. He never had any GI symptoms. The reason I had him tested was that he was so short. His TTg bloodwork was positive, so we followed up and had an endoscopy, and that showed damage as well.

Now he has had negative bloodwork for 3 years, and it turns out the short stature was caused by something else.

So the point is, some people can have silent symptoms.

My husband, daughter, and myself all tested negative. But knowing that Celiac can develop at any stage of life, I would do future testing if any of us started showing symptoms.

Ursa Major Collaborator

With his sister having celiac disease being too skinny should prompt you to have him tested also. Plus it is recommended that the whole family and all close relatives get tested anyway after somebody tests positive for celiac disease.

Being too skinny was the major symptom for two of my grandchildren, too. My daughter didn't have them tested, but put them on the gluten-free diet. They started to gain weight immediately, and other problems cleared up, too (like the emotional outbursts by my grandson).

Now those two will get diarrhea within half an hour after getting cross contamination (they didn't have D before they went gluten-free). They obviously have celiac disease.

WendyG Explorer

I totally agree on having everyone in the family tested. I am s celiac and I had my three children tested for a base line and to just make sure for my peace of mind. My middle daughter who is 8 is positive. She was the one I was least concerned about. She is happy, healthy and no tummy symptoms at all.....

Good luck,

Wendy

RiceGuy Collaborator

In my opinion, yes I think your son should be tested, but either way try the gluten-free diet. I had all sorts of odd symptoms when I was little. Looking back, I can see that there were all sorts of things which should (but aren't) thought to be indicative of anything important.

Besides, being skinny and not gaining weight ARE common symptoms, and do indicate malabsorption. That means intestinal damage, of which Celiac is a likely cause.

kbtoyssni Contributor

I would at least do the blood test. It's pretty harmless, and with his family history I think it's a good idea. If he tests negative, I wouldn't make him go gluten-free (aside from him eating the already gluten-free family dinners). I'd just monitor his health. A blood test now could also serve as a baseline. If he gets tested again in a year and his numbers have gone up but still aren't considered positive, you could assume he's reacting some to gluten.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Emilysmomma Rookie

Thank you for all your replies. I guess since my daughter was having the issues, I was more focused on dealing with her symptoms. But my son is so much like my BIL that has Celiacs when he was younger he was skinny just like Tyler, we'd joke that he could eat everything and not gain an ounce, Tyler is the same way. He's 11 1/2 and weighs 70, all of his friends weigh more than him. I am going to ask about getting him tested, at least the blood test, to see what it shows. I know, at 11, he won't be happy about it, he really likes his food!!! But, I want us all to be healthy. We are pretty sure it is my husband that is the carrier since there isn't any Celiacs on my side of the family.

Again, thank you for your replies, it just confirms what I already knew in my head, he should be tested!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,022
    • Most Online (within 30 mins)
      7,748

    Pesto
    Newest Member
    Pesto
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.