Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Inside Of My Mouth Shedding


rubylou

Recommended Posts

rubylou Newbie
Would you mind PM'ing me or posting what you eat in a day? I think I'm still consuming something with gluten...which is why the mouth thing won't go away! OR...maybe something I'm eating I'm also intolerant to? Suggestions? I want it gone for good! I also think that when I make a "mistake" it ruins my mouth for AT LEAST 2 weeks. Could that be?

It would be easier for you to tell me what your eating. I have a very simple basic diet...no processed foods. Mainly potato's and meat. I never did eat bread, so I don't bother with that tapioca or rice stuff they try to pass off as bread. If I use any condiments...it's only heinz ketchup, or hellmans light mayo. I don't do bottled salad dressings, as something in them upsets my stomach, I'm assuming it's the distilled vinegar (even though they say it's safe) I make my own salad dressing with red wine vinegar. I usually just take a hamburg or 2 hotdogs for lunch at work ( I work 2nd shift) I still have problems with milk products, they upset my stomach, but sometimes ya gotta have that bowl of ice cream...breyers french vanilla. I have become a creature of habit, only eating the same things. If we go out for dinner, we travel the 40 miles to hit outback....they have a gluten free menu. And as for alcohol....I drink redbridge beer, my local distributor stocks it for me (GOD BLESS THEM) For some reason, some things I eat still upset my stomach (not my mouth though) but I don't believe it's from gluten....I think it's just gonna take awhile for my stomach to heal totally. If you are totally positive that your gluten free....maybe you have some other allergy that is causing the mouth shedding and soreness. Another hidden thing I avoid is anything that says modified food starch.....It may be gluten....so I absolutely avoid it all. Hope this helps some


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rubylou Newbie
Hi again;

I did reply earlier to you and now I remember that for many years I had something also wierd, That the tissue under my tongue would shed. There would be string like strands shedding, eventually they fell off. I always had sores in my mouth I thought it was the Crohn's. Now that I am gluten-free I only have minor sores , I did have the Doc look at it , he said: Celiac, but that was after they determined Celiac. I worry that I might be sensitive to any food that can cause this. It returned again recently and I am trying to find a toothpaste that does not have anything in it. Toms strawberry is good but I hate the Carageenan because I heard some bad things about it : like it can cause Miscarages and who knows what it does to the intestines, I thought I would like to find a toothpaste that is just the basics. Honestly at this point who cares what it tastes like.

Wow...it sounds like you and Jewi008 have the same thing going on......maybe it is your toothepaste. Maybe you should try just plain old arm and hammer baking soda (it's gluten free) make a paste of it with a little water...it tastes horrible, but I've always heard of people using it. I think we are all becoming private investigators.....there are always mysteries that we are trying to solve. We have to investigate every morsel we pop in our mouths..... :angry:

I'm really sorry about your chrohn's disease, I have a friend who was diagnosed. I haven't seen her in years, but the last time I did see her, she said she was doing well. Good luck, and I hope your mouth gets feeling better.

Janessa Rookie

yes, I had this too before going gluten free. My mouth and lips would peel and kind of have a burning tingling feeling. Completely went away after going gluten free, now it'll happen for a few days after getting accidentally glutened.

jewi0008 Contributor
It would be easier for you to tell me what your eating. I have a very simple basic diet...no processed foods. Mainly potato's and meat. I never did eat bread, so I don't bother with that tapioca or rice stuff they try to pass off as bread. If I use any condiments...it's only heinz ketchup, or hellmans light mayo. I don't do bottled salad dressings, as something in them upsets my stomach, I'm assuming it's the distilled vinegar (even though they say it's safe) I make my own salad dressing with red wine vinegar. I usually just take a hamburg or 2 hotdogs for lunch at work ( I work 2nd shift) I still have problems with milk products, they upset my stomach, but sometimes ya gotta have that bowl of ice cream...breyers french vanilla. I have become a creature of habit, only eating the same things. If we go out for dinner, we travel the 40 miles to hit outback....they have a gluten free menu. And as for alcohol....I drink redbridge beer, my local distributor stocks it for me (GOD BLESS THEM) For some reason, some things I eat still upset my stomach (not my mouth though) but I don't believe it's from gluten....I think it's just gonna take awhile for my stomach to heal totally. If you are totally positive that your gluten free....maybe you have some other allergy that is causing the mouth shedding and soreness. Another hidden thing I avoid is anything that says modified food starch.....It may be gluten....so I absolutely avoid it all. Hope this helps some

Here's a common day for me (everything made at home by me): Grilled chicken, tofu, shrimp, all natural greek yogurt, applies, grapes, almonds, olive oil, natural chunky peanut butter, rice cakes, rice milk, chocolate rice milk, soy milk - unflavored, starbucks coffee, sugarfree hazelnut syrup, walnuts, rice and shine, quinoa, lettuce, veggies. The end. Do you see any culprits?!?! I thought it was all gluten-free? My mouth has been burning and raw...no peeling in awhile.

rubylou Newbie
Here's a common day for me (everything made at home by me): Grilled chicken, tofu, shrimp, all natural greek yogurt, applies, grapes, almonds, olive oil, natural chunky peanut butter, rice cakes, rice milk, chocolate rice milk, soy milk - unflavored, starbucks coffee, sugarfree hazelnut syrup, walnuts, rice and shine, quinoa, lettuce, veggies. The end. Do you see any culprits?!?! I thought it was all gluten-free? My mouth has been burning and raw...no peeling in awhile.

Gosh ....you eat way healthier than I do! I'm almost jealous. Nothing there sticks out....you just have to read the labels, and watch out for modified food starch (that ones the stinker for me anyway) I'm wondering if you may have some other food allergies. In my case....my stomach always tells me, if I get gluten....I always have horrible stomach problems Before the mouth situation happens....BUT....sometimes when I eat things that are hard and crispy, it kinda irritates my gums. Like for instance tostitos.....they are hard and crunchy...and salty....something like that may make your mouth sore. Or.....a new toothbrush....I opt for a soft toothbrush so I don't take the hide off. Sometimes when you have allergies, your mouth gets achy too......in the spring and fall, I feel like I have a toothache. So anyhoo...keep eating healthy ( I'm still jealous).

FoxersArtist Contributor

AHAHAHA! No Joke?! How funny to hear that I am not the only one with this problem. My skin sloughed off on the insides of my cheeks every time I brushed my teeth. It didn't hurt and to be brutally honest, I came to kind of enjoy it after a while. I felt more...uhh...clean, I guess. I figured it was a reaction to my toothpaste (crest) but this is very interesting to read. Come to think of it, I have only noticed this happening one or twice since going gluten free whereas it happened every day before. How interesting. I wonder if the sloughing has any relation to those with geographic tongue, which seemed to be a common thing with some celiacs here in another thread I read a while back. Hmmmm.

-Anna

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    4. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    5. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748

    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.