Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Muscle Weakness And Increase Heart Rate?

Plyncie

Recommended Posts

Plyncie Newbie
Plyncie
Posted

I've been gluten free for a few days more than 6 months now. Every once in a while I make a mistake or eat a spice and forget to call the manufacturer first, and I seem to be able to tell if I've ingested even the TINIEST amount of gluten. My muscles in my arms and legs and neck get a strange tingly and weak feeling, and my heart rate increases, almost to the point of discomfort. I feel lightheaded also. These symptoms set in about an hour after eating the questionable food. I was just curious if anyone else has these symptoms.

I seem to be so sensitive that I can tell if a food that is supposedly free of wheat ingredients, (say corn chips) was manufactured alongside wheat products. I switched brands of corn chips, and they don't' give me the tingly feeling.

Also do any women out there notice that their periods don't hurt anymore?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


TipTip Newbie
TipTip
Posted

Hi There!

i have a tendency to have a lot of problems regulating my body temperature for a couple days after being glutened - it's like i have the flu. i also get terrible muscle fatigue, which drives me nuts.

i found my periods have become "normal" - because they used to be barely noticeable - probably because i was so severely anemic and malnourished - or so i'm told.

i'm closing in on the 6 month mark now too, and it's getting easier - it's still not easy, but it is easier!

Plyncie Newbie
Plyncie
Posted
  • Author
Hi There!

i have a tendency to have a lot of problems regulating my body temperature for a couple days after being glutened - it's like i have the flu. i also get terrible muscle fatigue, which drives me nuts.

OH! that would explain my random fevers!!!

congrats on being gluten free. its getting easier for me too, but i continue having the gluten-mares :)

  • 1 month later...
sallyterpsichore Explorer
sallyterpsichore
Posted

I just saw this when I was searching for what warm, tingly muscles could possibly be and came upon this. I've been gluten-free for nearly two years now and this has been happening to me lately, too. I don't know if it's gluten-related or not, as I've also been lifting weights and doing a lot of heavy cardio for a couple of months and it could just be some kind of muscular reaction to that.

I have the muscle thing going on now and some major bloating, which makes me think I was somehow glutened (NO idea how unless my library book had gluten on it...ridiculous). Anyway, thanks for asking about this...I may bring it up with my doctors next month. I'll post if they shed any light on this one.

Good luck!

~Sally

bakinghomesteader Contributor
bakinghomesteader
Posted

My time of the month has gotten so much better. I'm able to control the pain with Tylenol. I used to have Vicodin for the pain. I used to black out and get really sick to my stomach. I don't get that anymore since gluten free.

JennyBabe Newbie
JennyBabe
Posted

Hi there!

So glad to see what you had posted!

I feel the exact same way! I can recognize when I've had the slightest amount of wheat. About one hour after ingesting it, I start feeling all weird. I experiece the tingling, weak feeling in my arms & legs too. My heart rate does increase, I get very anxious and lightheaded. Also my body temp drops. I'm like an ice cube. Also, corn chips make me sick too. Which brand works for you? I haven't found one yet.

Newly diagnosed 3 weeks ago--so far I seem to get worse at my cycle time.....not better. Probably stiil in the detox phase.

Thanks again for your posting. Means alot to me to know that I am not the only one experiencing these symptoms...

Everyone I talk to, seems to think celiac disease symptoms is just a stomach-ache and frequent trips to the bathroom. They don't understand when I tell them my symptoms.

Thanks again!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,814
    • Most Online (within 30 mins)
      7,748
    Dawn D Weldon
    Newest Member
    Dawn D Weldon
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • lookingforanswersone
      TTG IgA 0.30 U/ml: further tests?

      By lookingforanswersone · Posted

      Hi, a query about testing. Background: I have existing diagnosis of pernicious anaemia (b12 deficiency) autoimmune condition. Diagnosed 5 years ago.  Symptoms for 10 years. Initially got better with b12 shots (for like a month or so) but still kicking around. So query Celiac and other clustered autoimmune conditions to PA. If celaic it would maybe be more silent as don't get vomiting, diarrhea or weight loss. Symptoms = chronic fatigue. Muscular&skeletal pain. Hot hands and feet (worse an night), nausea after eating, tiredness after consuming food like bread and pasta.  Celiac screen came back (private blood test): TTG IgA 0.30 U/ml.  My main question is, is it worth getting total iga for further testing ? I have been advised that 'low' would only count as 0 U/ml for TTG IgA not .3.  Oh and did the genetic testing and have the gene thing. Was also critically low for folate levels in recent tests  All other tests showed no likelihood of other autoimmune conditions like thyroid (luckily). Anyhow, any thoughts welcome but be kind, just trying to get well l.
    • Scott Adams
      Gluten free Areds 2 Vitamins

      By Scott Adams · Posted

      It looks like they are naturally gluten-free, but not labeled gluten-free. It's unlikely that they contain any gluten, but not impossible. This is the one I looked at: https://www.preservision.com/areds-2-formula-minigels/
    • Scott Adams
      Gluten-Free Newbie

      By Scott Adams · Posted

      Welcome to the gluten-free journey—it sounds like you’ve been through a lot, but it’s great to hear you’re feeling better since cutting out gluten! The struggle to get clear answers can be so frustrating, especially when tests come back negative but your body is clearly reacting. It’s smart to hold off on retesting for celiac until you’ve reintroduced gluten (if you choose to), but in the meantime, listening to how your body responds is key. The overlap with perimenopause and gut issues is no joke—hormones really do throw everything into chaos! It’s awesome that you’re working with a kinesiologist and focusing on whole foods; that’s helped so many of us here too. And yes, eating out is a minefield. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • trents
      Anyone From South Africa

      By trents · Posted

      @Izelle, you are welcome! It is important to know that beginning the gluten-free diet or even a reduced gluten diet previous to celiac testing will invalidate the testing. One should seek out testing before experimenting with eliminating gluten. Also, remember that celiac disease is not a food allergy. It is an autoimmune disease. When a celiac consumes gluten it triggers an autoimmune response that damages the lining of the small bowel. That can be confusing to a lot of people because it is an autoimmune response that involves food. So, allergy testing is of no use in diagnosing celiac disease. Of course, people can also have allergies to wheat, barley or rye (the three gluten-containing grains) but that is an entirely different immune system response.
    • cristiana
      Gluten Intolerance And Low White Blood Cell Counts?

      By cristiana · Posted

      Hello Suze and welcome to the forum. Can you tell us which country you are posting from?  The reason I ask is that in some countries, it is quite a good idea to be tested for coeliac disease because if it turns out you are a coeliac, you will be given additional support by the government.  For example if you live in the UK, the NHS offers support from a nutritionist, DEXA bone scans to check for osteoporosis/osteopenia to which coeliacs are sometimes prone, additional vaccinations against certain illnesses, annual reviews with a gastroenterologist to check for dietary compliance and possible health complications, and, in some regions, a prescription to help with the purchase of gluten free bread and other staples, which can be pricey. Another example is Italy.  According to the Celiac Disease Foundation, in Italy, coeliacs are given up to 140 Euros a month to buy specifically gluten free food.  (Source: https://celiac.org/gluten-free-living/global-associations-and-policies/policies-around-the-world/#:~:text=Diagnosed celiacs receive vouchers to,to deal with celiac disease.) But with regards to your white blood cells, my levels were similarly low from memory a couple of years ago during a period of quite high stress.  It was picked up in a pre-op blood test.  But nobody blinked an eyelid at the results.  A few months later at my coeliac review with my gastroenterologist the levels had normalised.  As you are concerned, do raise it with your doctor, but it could well just be a blip as it was in my case.      
×
×
  • Create New...