Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recently Diagnosed And 5 Weeks Pregnant...help!


kprince

Recommended Posts

kprince Apprentice

My husband and I were unsuccessfully trying to get pregnant ( IUI) and took this last month off ( because I just thought something else was wrong). My stool just seemed to be "not natural." No matter what I ate, it would always be that same tar/fatty stool consistency. Long story short, got tested, have celiacs, and while not worrying about all the infertility stuff, we got pregnant this month. So I am 5 weeks pregnant and after reading everytone's input about waiting at least 6 months...I am freaking out ( which can not be good for the baby either). I literally just went to Trader Joes today and am following a strict gluton free diet as of today, but what can I do? I am meeting with my infertility doctor tomorrow for an initial ultrasound ( there will be no heart beat, but they want to see the sack etc), and I want to know what is needed ( just in case he does not).

#1. Is there any specific blood tests I should have done to see if I am lacking iron, folic acid, calcium?

#2. They have me on PrimaCare One prenatals. Is this OK? Should I be on extra folic acid?

#3. When you all would talk about celiacs bringing on early miscarriages, is that before 12 weeks or sooner?

#4. Please tell me ANY AND ALL advice I should know and require my doctor to do? OF there are specific tests/food/vitamins etc., please let me know!!!

I have never been on a forum before but you all have been so helpful with everyone's questions and I just hope someone can do the same for me. I am really scared and can use any advice you have. Thank you all inadvance for all the helpful information I have gathered from previous emails!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dandelionmom Enthusiast

Try not to worry yet. I had 3 healthy babies while still undiagnosed and on a regular diet. Best wishes for a healthy and happy pregnancy!

ShayFL Enthusiast

First relax. I also had a baby undiagnosed. If your baby is meant to come into this world at this time he/she will. Start talking to the baby. Tell them that you love them no matter what and that you will do everything you can to make sure they are healthy. And tell yourself what a good Mommy you will be and that celiac is not your fault.

They can test your ferritin, folic acid and calcium. Get Vit. D checked also.

Make sure your pre-natals are gluten free.

Phyllis28 Apprentice
#2. They have me on PrimaCare One prenatals. #

Check with the company that makes PrimaCare One. If the information is not on the website call them.

Another option is to look for a prenatal vitamin that you know is gluten free. I only buy vitamins that say "Gluten Free" on the bottle. Costco has a prenatal that I believe is gluten free. Check the back of the bottle. Also, look at Nature Made vitamins. I have yet to find one that is does not say "Gluten Free" on the bottle. They are sold in health food stores and at Costco.

Hope everything goes well.

kprince Apprentice
First relax. I also had a baby undiagnosed. If your baby is meant to come into this world at this time he/she will. Start talking to the baby. Tell them that you love them no matter what and that you will do everything you can to make sure they are healthy. And tell yourself what a good Mommy you will be and that celiac is not your fault.

They can test your ferritin, folic acid and calcium. Get Vit. D checked also.

Make sure your pre-natals are gluten free.

That is such great information. I wrote them down and will get checked tomorrow. If there are any problems with the items you listed above, is there anything I can take to help my body better absorb them? If I take too much, can that too cause problems?

kprince Apprentice
Check with the company that makes PrimaCare One. If the information is not on the website call them.

Another option is to look for a prenatal vitamin that you know is gluten free. I only buy vitamins that say "Gluten Free" on the bottle. Costco has a prenatal that I believe is gluten free. Check the back of the bottle. Also, look at Nature Made vitamins. I have yet to find one that is does not say "Gluten Free" on the bottle. They are sold in health food stores and at Costco.

Hope everything goes well.

Thanks for the adice. I actually just called them and the man I spoke with sounded like he was reading a statement that said bascially said that they have not identified any gluten (barley, rye, oat etc.) in their products. Does that mean it is OK? Sorry I am sounding totally clueless, but it is really hard to figure out what I can use if it doesn't specifically say "Gluten-free."

slmprofesseur Apprentice

Don't worry! I had a healthy baby undiagnosed- my 2nd was a little early (33 wks) due to undetected wheat allergy. I have Kroger brand vitamins and they clearly label allergens. This one has soy.

Good luck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



snoopylian Apprentice

Relax. Breathe. :) Knowing that you have celiac disease at this stage is fantastic. There is so much that can be avoided. Your body will be healthier than ever since you now have this knowledge. Join a local support group, some groups have sponsors to help newly diagnosed people (do a search on the net like "gluten free support group dallas"). Get a couple of phone numbers of people you can call. The first month of diagnosis is tough for everyone. You will make mistakes, everyone does. I would ask my doctor if he could do a complete panel to check all vitamin and mineral levels. Also, I would seek the advice of a nutritionist who has experience with celiacs. Are you near a Whole Foods store? Aside from foods you need to check all personal hygiene (sp???) products (shampoo, lotions, makeup, etc.). But, please relax. One step at a time. yOU'LL DO FINE. :):)

Lillian

HiDee Rookie

Make sure to eat lots of snacks very frequently (every couple of hours), always include some protein in your snacks (nuts, cheese, meats, etc.), as this will help with nausea. Just stick with basics at first, veggies, meats fruit, rice etc. and you should be fine. Rice cakes (lundberg's are gluten free and some quaker rice cakes are fine - read the ingredients, I always buy the quaker apple cinnamon) with peanut butter are a good snack. Drink lots of water and get extra rest/naps if possible. Ginger also helps with nausea. You can make a lovely tea with the root or buy ginger chews (they are gluten free from the "ginger people") for on the go.

ONESOURCE brand prenatals at Walmart are also labeled gluten free but it sounds like your vitamins are probably safe. Good luck and try to de-stress, I know I tend to get sick if I get too stressed and that's probably not the best for me or the baby!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

    2. - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    3. - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    4. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,260
    • Most Online (within 30 mins)
      7,748

    sbr
    Newest Member
    sbr
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.