Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I Gluten Intolerant?


hartwell

Recommended Posts

hartwell Newbie

Hi,

I have never done this before, but I figured asking folks who know about this stuff would be helpful.

I have a suspicion that I gluten intolerant, but I am just not sure. About three years ago when I was 26 I lost about 20 pounds without much effort. Shortly after that I moved from the west coast back to Maine. I then developed a rash on my back that my doctor at the time said was contact dermatitis, but 3 years later I still have it. I have not really gained any weight back, and I have lost my sense of smell which could be due to nose polyps. Also since around 19 I have had what I though was acne, but it was (and is) more like little bumps on my face, but I also get them on my chest, neck, back and the back of my arms. They itch a lot and are more like blisters and hives than pimples. I often get upset stomach, but thought everyone did and didn't think much of it.

Due to my suspicion I attempted to cut gluten from my diet but it is extremely difficult. I know some gluten has slipped here and there. My boyfriend is convinced my skin is getting better and it seems my rash is going away. I have only been doing it for about two weeks. I have gotten light headed, been moody, and had a couple real skin "freak-outs" which i wonder is just my body ridding the toxins from my system.

I have no insurance so I can't be sure, Please help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MELINE Enthusiast

I am afraid that you will need to see a doctor.....I had the same acne problem and it was noe because of gluten but because of lactose intolerance (which was a side effect of celiac)......Maybe you are a celiac, maybe you are not. The symptoms you are describing are not so typical, but on the other hand many celiacs don't have symptoms at all. If you can't afford a doctor (I don't know how expensive this is in your country) maybe you can try to really stop all the gluten for something like 1 month and then get it back and see how you react. Just an idea......also try to eliminate lactose and casein.

Meline

Lockheed Apprentice

I think that warrants a food journal and serious consideration for an elimination diet. It's rough but well worth it. I tested for so many food sensitivities that this is how my doctor started me out. Start with two food items you know you don't have any issues with. I started with rice and white potatoes (the staple of my diet). And sadly enough this is all you get to eat for two weeks (it's the purging period). Then you introduce a new food item and keep a log from that point on of what you ate that day and how you felt. When you introduce a food item you cannot introduce another item for 3 days. Food sensitivities can take up to 72 hours to show a side effect. Once you've cleared the 3 days with the new item introduced without any negative symptoms then you can introduce something else. But the day you get a headache or a migraine or upset tummy or acne breakout, you need to back up 3 days on your diet and eliminate whatever was new. You can try that item again later (usually they say like six months later but not right away). It's rough and it sucks and you'll feel like crap and you'll feel like you're starving, but in the end it's well worth it to figure out what's making you sick. But as always you should consult a physician before starting any sort of extreme diet.

Nancym Enthusiast

This cardiologist, who recommends his patients get off grains, especially wheat, says Wheat withdrawals are quite common:

Open Original Shared Link

RiceGuy Collaborator

The loss of the sense of smell may be a zinc deficiency. A deficiency in vitamin B12 can cause all sorts of problems, effecting mood, sleep patterns, memory and other brain functions, and lots lots more. Nutrient deficiencies are common among those with Celiac, and the skin problems you describe also fit.

As others have suggested, it is a good idea to avoid dairy at first too, since the damage due to Celiac often impairs the digestion of dairy. If you start with a basic diet - veggies, fruits, beans, meats, etc, you will not have so much difficulty avoiding gluten. The prepackaged foods are the real tough ones for avoiding gluten.

Many on this board are self-diagnosed, so don't feel alone there either. The diet is, after all, the best diagnostic tool we have for Celiac.

I hope you feel better soon!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,553
    • Most Online (within 30 mins)
      7,748

    Irene Maresca
    Newest Member
    Irene Maresca
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.