Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Grains - The Great Experiment


ShayFL

Recommended Posts

ShayFL Enthusiast

So I have been doing A LOT of research on grains. And know gluten is a problem for me. So it is OUT for life. But I have been experimenting with alternative grains. Baking and such and having a good time. But I am still not well and I want to do what I can to help my body get better.

I read that grains are indigestible basically because they have a. enzyme inhibitors that make them hard to break down and b. they have phytic acid that once released into your intestines binds with your calcium, zinc and a few other minerals so you cannot absorb them. This leads to deficiencies. This not good.

What to do?

Well I learned that if you soak the grains with a few tsp of vinegar or lemon juice and water over night it inactivates the enzyme inhibitors and gets rid of that phytic acid.

So I tried it with buckwheat. It didnt affect the taste, but made the consistency softer. Fine. Texture is no big deal. And they cooked A LOT faster. This is a bonus. And easier to digest. All good.

I am soaking rice (started soaking it this am) to cook for dinner tonight.

You have to use less water than normal. Like 1 cup of soaked rice to 1 1/2 cups water instead of 2.

This "soaking" rule also applies to nuts and seeds. So I am soaking them as well. It is VERY hard to digest nuts and seeds in general, especially if hard and roasted.

So the experiment continues........


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



purple Community Regular

Has anyone tried digestive enzymes and do they work?

ShayFL Enthusiast

I use digestive enzymes too. They have helped me a lot with my digestion. Right now I take Digest Gold. It covers everything.

Soaking the rice made it quite tasty and seemed to digest much better.

Tonight it is soaked quinoa. :)

Rachel--24 Collaborator

I use digestive enzymes....AFP Peptizyde, No Fenol, and Zyme Prime (Houston Nutraceuticals).

I actually have worse problems with the alternative grains (quinoa, amaranth, sorghum, buckwheat) than I have with gluten.

The majority of my intolerances are not due to the foods themselves but an inability to break them down. Some of it is caused by enzyme dysfunction. I dont react to the food....I react to the build-up of certain food compounds that should normally be broken down and eliminated.

Oxalates are one of these compounds....and the alternative grains are particularly high in oxalates.....so they tend to cause significant inflammation/damage. Yeast also produce oxalates...so if you have a yeast problem oxalates can be elevated already. Oxalates are toxic when they accumulate.

Other natural chemicals that I have difficulty eliminating are phenols/salicylates, amines and sulfur/sulfites. Because certain enzyme systems are down these chemicals accumulate.

I dont soak anything because soaking = fermentation....which causes reactions (for me).

So if you find that your experiment makes you feel worse (and hopefully that wont happen) these are some possibilities as to why that might be.

Good luck. :)

ShayFL Enthusiast

Im actually feeling quite good today!!

Two portions of soaked grains and all is well. I only soak them overnight, then drain, rinse and put in fridge till I cook them. Not a lotta fermentation going on. And if the grains are "alive" they should start to "sprout" and not "ferment". Old rancid grains would "ferment" no doubt.

I have been supp. iron and Vit D pretty strongly for a month now and since I believe I am better able to absorb my nutrients now, this is helping me get well. Dark circles disappearing from around my eyes. My lips have color!!! No longer pale. They are a healthy shade of pink. :)

fedora Enthusiast

I avoid all the alternative grains. One of my caregivers advised it. I eat corn and rice.

I did eat some bread with millet the other week and my shoulder hurt. I will try it again someday, but may just not handle grains real well.

  • 3 weeks later...
ShayFL Enthusiast

BTW - This experiment failed. I digested them too well and got blood sugar spikes. So for now....I am grain free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,033
    • Most Online (within 30 mins)
      7,748

    CE1963
    Newest Member
    CE1963
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.