Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oh My Goodness


Canadiangirl

Recommended Posts

Canadiangirl Apprentice

It's been awhile since I have posted. I feel like I am in a nightmare! I have been taking the same multivitamin for about 3 years. Its actually 3 pills, through a company of a freind of mine. I assumed ( first mistake) it was fine as when she introduced me to them I was just really begining to understand my Celiac and gluten awareness. A label said " no naturally occuring gluten". I assumed( again...big mistake) it was fine. I ran out of my vitamins about a month ago. I noticed within a week my skin broke out, and I was bruising easily so i ordered a new box. BUT today when it arrived I thought - may as well read the ingredients. To my horror, Maltodextrin AND Modified Food Starch are among the first non-medical ingredients. I felt sick! I called my freind and explained...her reponse? " well, i wonder how much it really contains. sometimes they have to list it b/c its made on the same equipment, or maybe it just has trace amounts" oh my word!!!! I kindly and breifly said, yet again, I cannot even have traces of gluten. Its really not good for me.

Anyways, I have sent the vitamins back. I just cant beleive this!!! And now I am thinking, HOLY COW what have I been putting in my body! Another light bulb just went on as well, I have had this terrible skin condition on my scalp for....ding ding... about 3 years!!!! I wonder if it will clear now?

What can I do to heal? I am soooo choked at msyelf for being so niave! I would sometime throw up the vitamins within 20 minutes of taking them and I thought it was just b/c they were potent! Now I know my body was like " hello!!!! please dont take these!"

Thanks for listening:(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular
It's been awhile since I have posted. I feel like I am in a nightmare! I have been taking the same multivitamin for about 3 years. Its actually 3 pills, through a company of a freind of mine. I assumed ( first mistake) it was fine as when she introduced me to them I was just really begining to understand my Celiac and gluten awareness. A label said " no naturally occuring gluten". I assumed( again...big mistake) it was fine. I ran out of my vitamins about a month ago. I noticed within a week my skin broke out, and I was bruising easily so i ordered a new box. BUT today when it arrived I thought - may as well read the ingredients. To my horror, Maltodextrin AND Modified Food Starch are among the first non-medical ingredients. I felt sick! I called my freind and explained...her reponse? " well, i wonder how much it really contains. sometimes they have to list it b/c its made on the same equipment, or maybe it just has trace amounts" oh my word!!!! I kindly and breifly said, yet again, I cannot even have traces of gluten. Its really not good for me.

Anyways, I have sent the vitamins back. I just cant beleive this!!! And now I am thinking, HOLY COW what have I been putting in my body! Another light bulb just went on as well, I have had this terrible skin condition on my scalp for....ding ding... about 3 years!!!! I wonder if it will clear now?

What can I do to heal? I am soooo choked at msyelf for being so niave! I would sometime throw up the vitamins within 20 minutes of taking them and I thought it was just b/c they were potent! Now I know my body was like " hello!!!! please dont take these!"

Thanks for listening:(

I'm so sorry to hear all that. I hope you feel better soon.

ShayFL Enthusiast

Try not to be too hard on yourself. We all make mistakes. You can correct it now and move on. I hope you feel better soon.

aikiducky Apprentice

Maltodextrin and modified food starch don't automatically contain gluten, they can be made of corn for example. Did you check this with the company?

Pauliina

Ursa Major Collaborator
Maltodextrin and modified food starch don't automatically contain gluten, they can be made of corn for example. Did you check this with the company?

Pauliina

Pauliina, you are right. But why would she throw up after taking them? That makes me think they may have gluten. On the other hand, maybe Canadiangirl is intolerant to corn or whatever the starch is that is in those vitamin pills?

slmprofesseur Apprentice

Usually modified food starch (unspecified source) is usually wheat. You should probably call to find out. I usually go for something that is clearly labeled. Hope you feel better soon!

ravenwoodglass Mentor
Usually modified food starch (unspecified source) is usually wheat. You should probably call to find out. I usually go for something that is clearly labeled. Hope you feel better soon!

In the US modified food starch in FOOD muct be labeled as wheat if it is and in food if it is not specified it must be corn. This same rule does NOT apply for meds or supplements. There are no labeling regs for those and the binders can change at will. Also with supplements ingredients like wheat germ oil and barley grass etc can and are often in items that are supposed to be gluten-free. We need to use care, contact the maker and verify all ingredients on any meds or supplements we use. This applies especially to generic drugs as they can change binders at will.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadiangirl Apprentice

Thanks for all of the replies! This is so nice. I actually did not verify wih the company the source of the maltodextrin and mod. food starch. I paniced! I will do this! how great would it be if i just overreacted!! But i am still pretty sure. The whole scalp/sickness thing makes me very nervous - I'll let ya'll know!

Canadiangirl Apprentice

hello all,

so the compny got back to me very quickly. how nice! however, as suspected:

"The Modified Food Starch in the Double X is derived from corn or wheat

starch, we use both.

At this time, we are not able to certify that all products available

through Quixtar are gluten free. Please note that there are currently no

Canadian regulations regarding the use of the term "gluten-free". We expect

this to change within the next few years, but at this time, a product label

may say "gluten-free" if there is no known source of gluten added to the

product. However, this does not guarantee that the product is actually free

of any trace amounts of gluten."

LAME!

Does anyone know why canada has no regulations regarding gluen free labeling?? Does this mean I can not trust "gluten free" to be gluten free ????

home-based-mom Contributor
LAME!

Does anyone know why canada has no regulations regarding gluen free labeling?? Does this mean I can not trust "gluten free" to be gluten free ????

I'm not sure about Canadian laws, but as ravenwoodglass posted, in the USA allergens in medications and supplements do NOT have to be labeled. It would seem that everyone but the FDA can see how asinine that is, but whatever . . . :angry:

Even worse, once regulations do go into effect, companies will be allowed to label a product as "Gluten Free" if the gluten it contains is below a set minimum, such as 20 ppm. So "Gluten Free" may or may not really be "Gluten Free" so no you will not be able to trust it.

Canadiangirl Apprentice

holy cow. i think this is unbelievably terrible!!!!!!!!!!!!!!!!!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,050
    • Most Online (within 30 mins)
      7,748

    Anna4386
    Newest Member
    Anna4386
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.